About us

Who we are

We founded DMDWarrioR to unite children with Duchenne muscular dystrophy around the world, reduce the cost of approved treatments, and ensure they are accessible in every country. Let’s fight DMD together.

Our Story

We are the families of children diagnosed with Duchenne muscular dystrophy (DMD).

We are a community united by strength, hope, and determination. DMDWarrioR.com was founded by families, friends, and supporters of individuals living with Duchenne muscular dystrophy (DMD) to share knowledge, raise awareness, and inspire courage. Our aim is not to collect donations, but to bring together families of children diagnosed with DMD.

Don't say, "Someone is already helping." That "someone" is you.

Children born with DMD experience intense, lifelong stress due to pharmaceutical companies’ profit-driven practices and government indifference. Families—unless they are billionaires—are forced to organize fundraisers to afford treatments such as gene therapy and exon-skipping therapies developed for DMD.

Can EKINCI - Founder | EMEA Region

This Was Never a Choice — It Was a Breaking Point

DMDWarrioR.com was not built out of convenience. It was born out of necessity, frustration, and a refusal to accept a system that moves too slowly while lives are at stake. We are families, patients, and advocates from around the world who have seen firsthand what delay, bureaucracy, and inequality cost. And we are done waiting.

We Do Not Ask — We Demand

Let us be absolutely clear: we are not here to beg. We are here to demand what should already exist—timely, fair, and affordable access to treatment for every individual living with Duchenne Muscular Dystrophy (DMD). If that requires challenging institutions, confronting decision-makers, or disrupting the status quo, then that is exactly what we will continue to do—relentlessly.

No Sponsors, No Silence, No Compromise

We are a fully independent community. We do not receive funding, donations, or support from pharmaceutical companies, industry groups, or any organization that could compromise our voice. This independence is not incidental—it is intentional. It allows us to speak openly, criticize freely, and advocate without conflict of interest. Our only allegiance is to patients and their families.

Half a Million Voices — And Growing Stronger

What started as a platform for information and solidarity has grown into a global movement. Today, DMDWarrioR.com is visited by nearly half a million users—and that number continues to rise every month. This growth is not driven by marketing budgets or institutional backing, but by trust. Families return because they know we tell the truth, publish what others avoid, and refuse to dilute reality.

Awareness That Forces Action

To raise awareness in a way that accelerates drug development, not just visibility. Awareness without impact is meaningless—we focus on pressure, accountability, and measurable outcomes.

Information Without Borders

To publish clinical trials transparently and without country-based discrimination. Access to information should not depend on geography. Every patient, regardless of where they live, deserves to know what exists, what is coming, and what is possible.

Pressure That Cannot Be Ignored

To apply continuous pressure on regulatory bodies and health authorities to expedite approval processes. Delays are not abstract—they translate into irreversible progression. We will continue to challenge the FDA, EMA, and national health ministries until urgency replaces inertia.

We Are Not Observers — We Are a Force

We are not a passive platform. We are an active force.

Until Rights Replace Barriers

We will continue to question, to push, to expose, and to demand—until access to treatment is no longer a privilege, but a right.

This Is Not a Campaign. This Is a Fight.

We are DMD Warriors