DMDWarrior (“we”, “our”, or “us”) is committed to protecting your privacy and maintaining the security of your information whenever you use our website and digital services.
Unlike many organizations in the rare disease community, DMDWarrior is not a charity, foundation, association, or fundraising organization. We do not solicit or accept donations, grants, sponsorships, or fundraising contributions from individuals, pharmaceutical companies, or other organizations.
Our mission is to provide independent, evidence-based information about Duchenne Muscular Dystrophy (DMD), clinical trials, research developments, and educational resources for patients, families, caregivers, researchers, and healthcare professionals worldwide.
This Privacy Policy explains what information we collect, how it is used, and your rights regarding your information.
Our General Privacy Principles
When you simply browse DMDWarrior.com, we do not require you to provide personally identifiable information.
We have intentionally designed our platform to minimize personal data collection.
In particular:
- We do not ask users to upload medical records.
- We do not request genetic reports.
- We do not request laboratory results.
- We do not request diagnosis documents.
- We do not request health records.
- We do not request government identification.
- We do not request payment information.
- We do not request any special category (sensitive) personal data as defined under applicable privacy laws.
If you voluntarily contact us by email, we will naturally receive the information you choose to include in your message.
We Do Not Collect Sensitive Personal Data
DMDWarrior does not directly request or intentionally collect sensitive personal information, including but not limited to:
- Medical records
- Health information
- Genetic test reports
- DNA sequencing results
- Biometric data
- Government identification numbers
- Financial information
- Religious beliefs
- Political opinions
- Ethnic origin
If a user voluntarily sends such information without being requested, it will only be used to respond to that specific inquiry and will not be incorporated into any database, profiling system, marketing system, or commercial activity unless legally required.
Information We May Collect
Depending on how you interact with our website, we may receive limited information such as:
- Your email address when you voluntarily contact us
- Technical information such as browser type
- Device information
- Operating system
- IP address
- Pages visited
- Date and time of access
- Referral source
This information is collected solely for security, website maintenance, troubleshooting, performance analysis, and improving user experience.
How We Use Information
Any limited information we receive may be used only to:
- Respond to inquiries you voluntarily send us
- Improve website performance
- Maintain website security
- Detect abuse or malicious activity
- Produce anonymous website analytics
- Improve educational content and user experience
We do not use personal information for commercial profiling.
No Marketing Use of Personal Data
DMDWarrior does not use personal information for:
- advertising profiling,
- behavioral marketing,
- personalized advertising,
- audience segmentation,
- look-alike audiences,
- remarketing campaigns,
- commercial analytics.
We do not sell user data.
We do not rent user data.
We do not trade user data.
We do not license user data.
We do not monetize user information in any way.
No Donations or Fundraising
DMDWarrior is an independent educational platform.
We do not accept:
- Donations
- Crowdfunding
- Grants
- Fundraising campaigns
- Charity contributions
Accordingly, we never collect payment information or donation-related personal information.
Cookies and Analytics
Like most modern websites, DMDWarrior may use cookies or similar technologies to:
- remember website preferences,
- improve performance,
- analyze anonymous website traffic,
- maintain website security.
Cookies used on our website are not intended to personally identify individual visitors.
You may disable cookies through your browser settings, although some website functionality may become unavailable.
Website Analytics
We may use privacy-conscious website analytics to understand:
- which pages are visited,
- how visitors navigate the website,
- browser compatibility,
- technical performance,
- anonymous traffic statistics.
Where possible, analytics are configured to minimize personal data collection.
Analytics information is not used for advertising purposes.
Data Security
We implement reasonable technical and organizational measures to protect our systems against:
- unauthorized access,
- misuse,
- alteration,
- accidental loss,
- malicious attacks.
Our website uses HTTPS encryption to protect communications between your browser and our servers.
While no Internet transmission can be guaranteed to be 100% secure, we continuously work to maintain appropriate security standards.
Third-Party Services
Our website may contain links to third-party websites, including:
- clinical trial registries,
- hospitals,
- universities,
- regulatory agencies,
- scientific journals,
- pharmaceutical companies,
- patient organizations.
Once you leave DMDWarrior.com, the privacy practices of those websites are governed by their own privacy policies.
We are not responsible for the privacy practices of external websites.
Android Application
This section applies to the DMDWarrior Android application.
The Android application does not require an account. We do not ask you to provide your name, email address, telephone number, payment details, or health information in order to use the app.
We do not use personal data from the Android application.
DMDWarrior does not use personal data collected through the Android application to identify you, to contact you, to build a profile about you, or for advertising, marketing, remarketing, or any commercial purpose.
We do not sell, rent, trade, license, or otherwise monetize personal data from the Android application.
We do not collect or use advertising identifiers.
Technical information that may be processed
When you use the Android application, limited technical information may be processed by the device and by infrastructure service providers that make the application work (for example, delivering content, sending notifications you have opted into, choosing a default language, and generating anonymous usage statistics). This information is not used by DMDWarrior to identify you as an individual.
This may include:
- Device type, operating system version, and application version
- A technical installation identifier generated on the device (this is not your name)
- IP address
- Approximate country or region derived from the IP address (we do not collect GPS or precise location)
- A push-notification token, only if you grant notification permission
- Anonymous app-usage events, such as screens opened, articles viewed, and search terms typed in the in-app search
- Language preference stored on your device
We do not collect through the Android application:
- Name, email address, telephone number, or postal address
- Account credentials (the application has no user accounts)
- Advertising identifiers
- Precise location
- Contacts, photos, camera, microphone, or files from your device
- Health, genetic, medical, or diagnostic information
- Payment information
If you contact us voluntarily (for example by email or through the website contact form), we will receive only the information you choose to send, as described elsewhere in this Privacy Policy.
Your Rights
Depending on your jurisdiction, you may have rights including:
- requesting access to your personal information,
- requesting correction of inaccurate information,
- requesting deletion where applicable,
- requesting restriction of processing,
- objecting to certain processing activities,
- requesting data portability where legally applicable.
If you wish to exercise any applicable privacy rights, you may contact us using the contact information provided on our website.
Children’s Privacy
DMDWarrior is intended to provide educational information for the Duchenne community.
We do not knowingly collect personal information directly from children.
Parents and legal guardians should supervise children’s use of online resources.
Changes to This Privacy Policy
This Privacy Policy may be updated periodically to reflect legal, technical, or operational changes.
Any updates will be published on this page together with the revised effective date.
Continued use of DMDWarrior following publication of an updated Privacy Policy constitutes acceptance of the revised policy.
Contact
If you have any questions regarding this Privacy Policy or our data practices, please contact us through the contact information available on DMDWarrior.com.