Father Joseph Jeon, who is trying to raise funds for his 3-year-old daughter with Duchenne muscular dystrophy and raise awareness for the disease, which has no definitive cure, in Korea, has become a trending topic in the country.
The story of Joseph Jeon, who walked 740 km from Busan to Seoul last November to raise money for his daughter Sarang’s Duchenne muscular dystrophy treatment, became a hot topic in Korean news.
According to the news published in Korea Health Log, there is still no drug that can treat Duchenne muscular dystrophy in Korea. Families do not have much information about Elevidys gene therapy. However, the cost of treatment is very high and families are following the situation with anxiety.
Sarang’s father, Joseph Jeon, is not the only one who has this concern. Parents who are members of the Korea Duchenne Muscular Dystrophy Patients Association feel the same way. They search the Internet to make sure they don’t miss any news about Duchenne muscular dystrophy treatment, and they knock on the doors of relevant pharmaceutical companies as well as overseas Duchenne muscular dystrophy patient associations to get more information.
Learn More: Frequently Asked Questions About Elevidys
Das ist aber selten das Mädchen an duchenne erkranken….