Is Elevidys Cost Worthy? Clinical Trials Review of Elevidys Gene Therapy

March 2, 2025 DMDWarrioR

Is Elevidys Effective and Cost Worthy Compared to Clinical Trials?

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Potential Upcoming New Gene Therapies for Duchenne Muscular Dystrophy

January 5, 2025 DMDWarrioR

The results of new gene therapy studies for Duchenne muscular dystrophy disease will be watched by curious eyes in 2025.

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Why Isn’t Roche Applying Marketing Authorization in Every Country for Elevidys Gene Therapy?

March 13, 2025 DMDWarrioR

If you are wondering when Elevidys gene therapy will come to your country, this article may help you get an idea.

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Next Generation Exon Skipping Therapies Developed for the Treatment of DMD

January 16, 2025 DMDWarrioR

Next generation exon skipping therapies for Duchenne Muscular Dystrophy (DMD) represent a promising area of research aimed at addressing the underlying genetic mutations that cause the disease.

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We Call on Health Ministries and Pharmaceutical Manufacturers to Take Action on DMD

February 16, 2025 DMDWarrioR

We call on all health ministries around the world and manufacturers of DMD treatments approved by the FDA and EMA to take action.

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What is Duchenne Muscular Dystrophy?

September 14, 2024 DMDWarrioR

Duchenne Muscular Dystrophy (DMD) is a genetic disorder that affects thousands of families worldwide. It primarily impacts boys, causing muscle degeneration and weakness over...

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Genetic Causes of Duchenne Muscular Dystrophy

October 4, 2024 DMDWarrioR

Duchenne muscular dystrophy (DMD) is rooted in the intricate world of genetics, specifically emanating from changes in a single gene known as the Dystrophin...

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Does My Child Have Duchenne Muscular Dystrophy (DMD)?

October 4, 2024 DMDWarrioR

When parents ponder the question, “Does My Child Have Duchenne Muscular Dystrophy (DMD)?” they often find themselves grappling with a whirlwind of emotions as...

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Is Elevidys Effective and Cost Worthy Compared to Clinical Trials? Roche Marketing Authorization Strategy in Every Country for Elevidys Gene Therapy.

About our Mission

Many people in the world do not know what Duchenne muscular dystrophy is. Because only one in every 5,000 boys gets this disease. However, families and their surroundings whose children struggle with this disease have to live with the stress of this disease every day. We call them DMD Warriors.

DMDWarrior.com was established to raise awareness of this disease worldwide, facilitate access to treatments, and ensure that treatment costs are affordable.

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What is our purpose?

One in every 5,000 children in the world is born with DMD, and many families only realize their child has the disease when they are 3-4 years old. FDA-approved treatments for DMD are too expensive for families to afford. Our goal is to reduce treatment costs and have the costs covered by the government.

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Ease of Access to Treatments

In many countries, DMD treatments are not available, and families incur huge costs for travel abroad.

Home

Reducing Treatment Costs

Treatments for DMD are very expensive, and it is nearly impossible for families to cover these costs themselves.

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Raising Awareness on Social Media

We do not want any child to die. If you also want to find a solution to this situation, follow us on social media.

News & Articles

Shanghai Jiao Tong University School of Medicine Begins Clinical Trials of LE051 Exon 51 Skipping Therapy

The purpose of LE051 study is to evaluate the safety, tolerability, and efficacy of LE051 intravenous therapy in DMD patients treated with exon 51...

Translarna (Ataluren) Rejected by EMA: Marketing Authorization Not Renewed

In May 2024, PTC Therapeutics had been announced that the European Commission (EC) has decided not to adopt the CHMP's negative opinion on the...

DMD WarrioR’s Turkish Representative Shares His Views on Elevidys Gene Therapy: Is It Effective and Why Is It Expensive?

The efficacy of Elevidys in treating Duchenne muscular dystrophy (DMD) has shown promising results in clinical studies, but are the results enough? The $3...

Fn14 Protein May Protect Muscle Stem Cells, Offering Promise for Development of Duchenne Treatments

For millions of people, losing muscle means losing their freedom as well as their strength. Muscle loss, whether from Duchenne muscular dystrophy, aging, or...

During Wave, Dyne, Regenxbio, Genethon and Others Plan to File FDA Application, Potential Safety Issues in Duchenne Worry Patients

Duchenne muscular dystrophy is one of the therapy areas that has advanced the most in the last ten years. However, advancement frequently consists of...