DMD WarrioR’s Turkish Representative Shares His Views on Elevidys Gene Therapy

March 28, 2025 DMDWarrioR

We spoke to DMDWarrioR's Turkiye Representative about his perspective and concerns regarding Elevidys gene therapy. We also received surprising information about DMD studies in Turkiye.

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Is Elevidys Cost Worthy? Clinical Trials Review of Elevidys Gene Therapy

March 2, 2025 DMDWarrioR

Is Elevidys Effective and Cost Worthy Compared to Clinical Trials?

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Potential Upcoming New Gene Therapies for Duchenne Muscular Dystrophy

January 5, 2025 DMDWarrioR

The results of new gene therapy studies for Duchenne muscular dystrophy disease will be watched by curious eyes in 2025.

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Why Isn’t Roche Applying Marketing Authorization in Every Country for Elevidys Gene Therapy?

March 13, 2025 DMDWarrioR

If you are wondering when Elevidys gene therapy will come to your country, this article may help you get an idea.

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Next Generation Exon Skipping Therapies Developed for the Treatment of DMD

January 16, 2025 DMDWarrioR

Next generation exon skipping therapies for Duchenne Muscular Dystrophy (DMD) represent a promising area of research aimed at addressing the underlying genetic mutations that cause the disease.

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We Call on Health Ministries and Pharmaceutical Manufacturers to Take Action on DMD

February 16, 2025 DMDWarrioR

We call on all health ministries around the world and manufacturers of DMD treatments approved by the FDA and EMA to take action.

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What is Duchenne Muscular Dystrophy?

September 14, 2024 DMDWarrioR

Duchenne Muscular Dystrophy (DMD) is a genetic disorder that affects thousands of families worldwide. It primarily impacts boys, causing muscle degeneration and weakness over...

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Genetic Causes of Duchenne Muscular Dystrophy

October 4, 2024 DMDWarrioR

Duchenne muscular dystrophy (DMD) is rooted in the intricate world of genetics, specifically emanating from changes in a single gene known as the Dystrophin...

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Does My Child Have Duchenne Muscular Dystrophy (DMD)?

October 4, 2024 DMDWarrioR

When parents ponder the question, “Does My Child Have Duchenne Muscular Dystrophy (DMD)?” they often find themselves grappling with a whirlwind of emotions as...

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Is Elevidys Effective and Cost Worthy Compared to Clinical Trials? Roche Marketing Authorization Strategy in Every Country for Elevidys Gene Therapy. We spoke to DMDWarrioR's Turkiye Representative about his perspective and concerns regarding Elevidys gene therapy. We also received surprising information about DMD studies in Turkiye.

About our Mission

Many people in the world do not know what Duchenne muscular dystrophy is. Because only one in every 5,000 boys gets this disease. However, families and their surroundings whose children struggle with this disease have to live with the stress of this disease every day. We call them DMD Warriors.

DMDWarrior.com was established to raise awareness of this disease worldwide, facilitate access to treatments, and ensure that treatment costs are affordable.

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What is our purpose?

One in every 5,000 children in the world is born with DMD, and many families only realize their child has the disease when they are 3-4 years old. FDA-approved treatments for DMD are too expensive for families to afford. Our goal is to reduce treatment costs and have the costs covered by the government.

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Ease of Access to Treatments

In many countries, DMD treatments are not available, and families incur huge costs for travel abroad.

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Reducing Treatment Costs

Treatments for DMD are very expensive, and it is nearly impossible for families to cover these costs themselves.

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Raising Awareness on Social Media

We do not want any child to die. If you also want to find a solution to this situation, follow us on social media.

News & Articles

Miraculous Steroid Vamorolone (Agamree) Could Offer Safer Treatment for DMD

A novel steroid medication that is used to treat Duchenne muscular dystrophy has showed great potential in treating inflammatory conditions including rheumatoid arthritis, according...

U.S. Department of Defense Announces Duchenne Muscular Dystrophy Research Programs and Funding Opportunities for Fiscal Year 2025

We extend our deepest gratitude to the Members of Congress who fought to preserve Duchenne funding and to the Department of Defense for recognizing...

Three Ongoing Clinical Trials of Elevidys Gene Therapy Temporarily Halted in Europe

Three ongoing clinical trials of ELEVIDYS (delandistrogene moxeparvovec-rokl), a gene therapy developed by Sarepta and marketed by Roche, have been temporarily halted by the...

Keros Therapeutics Announces Initial Topline Results from the Phase 1 Clinical Trial of KER-065 in Healthy Volunteers

Keros Therapeutics, a clinical-stage biopharmaceutical company focused on developing and commercializing novel therapeutics to treat a wide range of patients with disorders that are...

Duchenne Muscular Dystrophy (DMD) Exon 51 Skipping Therapies: A Promising Cures and Clinical Trials

Duchenne Exon 51 skipping therapies are innovative treatments aimed at addressing the genetic mutation responsible for Duchenne muscular dystrophy (DMD). By skipping exon 51...