We Call on Health Ministries and Pharmaceutical Manufacturers to Take Action on DMD

February 16, 2025 DMDWarrioR

We call on all health ministries around the world and manufacturers of DMD treatments approved by the FDA and EMA to take action.

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Three Ongoing Clinical Trials of Elevidys Gene Therapy Temporarily Halted in Europe

April 1, 2025 DMDWarrioR

Following the death of a 16-year-old child receiving an Elevidys infusion, 3 ongoing clinical trials in Europe (Study 104, Study 302 and Study 303) were temporarily halted.

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DMD WarrioR’s Turkish Representative Shares His Views on Elevidys Gene Therapy

March 28, 2025 DMDWarrioR

We spoke to DMDWarrioR's Turkiye Representative about his perspective and concerns regarding Elevidys gene therapy. We also received surprising information about DMD studies in Turkiye.

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Is Elevidys Cost Worthy? Clinical Trials Review of Elevidys Gene Therapy

March 2, 2025 DMDWarrioR

Is Elevidys Effective and Cost Worthy Compared to Clinical Trials?

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Potential Upcoming New Gene Therapies for Duchenne Muscular Dystrophy

January 5, 2025 DMDWarrioR

The results of new gene therapy studies for Duchenne muscular dystrophy disease will be watched by curious eyes in 2025.

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Why Isn’t Roche Applying Marketing Authorization in Every Country for Elevidys Gene Therapy?

March 13, 2025 DMDWarrioR

If you are wondering when Elevidys gene therapy will come to your country, this article may help you get an idea.

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Next Generation Exon Skipping Therapies Developed for the Treatment of DMD

January 16, 2025 DMDWarrioR

Next generation exon skipping therapies for Duchenne Muscular Dystrophy (DMD) represent a promising area of research aimed at addressing the underlying genetic mutations that cause the disease.

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What is Duchenne Muscular Dystrophy?

September 14, 2024 DMDWarrioR

Duchenne Muscular Dystrophy (DMD) is a genetic disorder that affects thousands of families worldwide. It primarily impacts boys, causing muscle degeneration and weakness over...

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Genetic Causes of Duchenne Muscular Dystrophy

October 4, 2024 DMDWarrioR

Duchenne muscular dystrophy (DMD) is rooted in the intricate world of genetics, specifically emanating from changes in a single gene known as the Dystrophin...

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Does My Child Have Duchenne Muscular Dystrophy (DMD)?

October 4, 2024 DMDWarrioR

When parents ponder the question, “Does My Child Have Duchenne Muscular Dystrophy (DMD)?” they often find themselves grappling with a whirlwind of emotions as...

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Is Elevidys Effective and Cost Worthy Compared to Clinical Trials? Roche Marketing Authorization Strategy in Every Country for Elevidys Gene Therapy. We spoke to DMDWarrioR's Turkiye Representative about his perspective and concerns regarding Elevidys gene therapy. We also received surprising information about DMD studies in Turkiye. Clinical Trials of Elevidys Gene Therapy Temporarily Halted in Europe by EMA

About our Mission

Many people in the world do not know what Duchenne muscular dystrophy is. Because only one in every 5,000 boys gets this disease. However, families and their surroundings whose children struggle with this disease have to live with the stress of this disease every day. We call them DMD Warriors.

DMDWarrior.com was established to raise awareness of this disease worldwide, facilitate access to treatments, and ensure that treatment costs are affordable.

dmd warrior dmdwarrior

What is our purpose?

One in every 5,000 children in the world is born with DMD, and many families only realize their child has the disease when they are 3-4 years old. FDA-approved treatments for DMD are too expensive for families to afford. Our goal is to reduce treatment costs and have the costs covered by the government.

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Ease of Access to Treatments

In many countries, DMD treatments are not available, and families incur huge costs for travel abroad.

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Reducing Treatment Costs

Treatments for DMD are very expensive, and it is nearly impossible for families to cover these costs themselves.

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Raising Awareness on Social Media

We do not want any child to die. If you also want to find a solution to this situation, follow us on social media.

News & Articles

EMA Recommends EU Approval for Duvyzat (givinostat) to Treat Duchenne Muscular Dystrophy

The European Medicines Agency (EMA) has suggested that Duvyzat (givinostat) be given a conditional marketing authorization in the EU to treat Duchenne muscular dystrophy...

Dyne Therapeutics Receives European Medicines Agency (EMA) Orphan Drug Designation for DYNE-251 in Duchenne Muscular Dystrophy

Today, Dyne Therapeutics, a clinical-stage company dedicated to developing life-changing treatments for individuals with genetically driven neuromuscular diseases, announced that DYNE-251 has been designated...

Agamree (vamorolone) will be Covered in Slovenia by the Slovenian Health Insurance Fund

The Slovenian Health Insurance Institute (ZZZS) today added Agamree (vamorolone) to the list of drugs for the treatment of Duchenne muscular dystrophy in patients...

Russia-Based Circle of Kindness Foundation Announces 18% Price Cut for Elevidys Gene Therapy

According to the Foundation's press office, "as a result of the negotiations, the price of one of the most expensive drugs (Elevidys) in the...

Satellos Prepares to Launch Phase 2 Clinical Study of SAT-3247 for the Treatment of Duchenne Muscular Dystrophy

Satellos Bioscience, a clinical-stage biotechnology company focused on developing regenerative therapies for muscle diseases, has announced at ClinicalTrials.Gov it is preparing to initiate a...