The World Duchenne Organization (WDO) launched the international Accredited Duchenne Centers (ADC) Program. The ADC Program’s goal is to provide all individuals with Duchenne Muscular Dystrophy (DMD) with worldwide, consistent, and modern care that complies with the most recent international care recommendations and considerations.
In order to improve care for DMD patients, the Accredited Duchenne Centers (ADC) Program will accredit Duchenne care facilities for adults and/or children that offer comprehensive care in accordance with the most recent care considerations. Additionally, care facilities that do not yet meet these accreditation requirements will be supported.
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What is Accredited Duchenne Centers (ADC) Program?
The Accredited Duchenne Centers (ADC) Program seeks to achieve optimal quality of life and life expectancy while standardizing care for all individuals with DMD. Eleven topics are covered in care considerations: diagnosis, neuromuscular rehabilitation, endocrine, gastrointestinal, respiratory, cardiac, bone health, orthopedic, emergency, psychosocial treatment, and care transitions throughout life.
Purpose of the ADC Program
There aren’t any international agreements in place at the moment regarding the application of DMD care considerations and guidelines. Care facilities are free to choose whether or not to adhere to the considerations, which raises the possibility of significant variations in the care given, along with all the hazards that go along with it.
In addition to frequently being dependent on their care provider, patients and their families might not be aware of variations in the quality of care. A certification or accreditation program can assist in resolving this issue. Recognizing the necessity for modern, consistent, and high-quality treatment, accredited Duchenne care facilities offer it.
The Certified Duchenne Care Center Program was created by Parent Project Muscular Dystrophy (PPMD) in the United States, but there was no globally applicable accreditation program. This is why the Accredited Duchenne Centers (ADC) Program was started globally by the World Duchenne Organization.
The ADC Program seeks to provide all individuals with DMD with universal, consistent, and modern care. Staying current also entails that the program includes ongoing education. If Duchenne care facilities follow consensus norms, international care considerations, and/or expert opinions, they can be accredited. The ADC Program is developed in collaboration with patients, families, and healthcare professionals.
How to Enroll Accredited Duchenne Centers (ADC) Program?
The accreditation procedure was developed by the ADC Program team and the Advisory Board. The process consists of five steps:
- Step 1: Registration
- Step 2: Screening
- Step 3: Visitation
- Step 4: Accreditation
- Step 5: Maintaining accreditation
Learn More: Apply to become an Accredited Duchenne Center
In order to apply for accreditation, centers must first register. The ADC website is the place to do this. On the ADC website, centers fill up and submit their registration form. Centers may submit applications for accreditation for adults, children, or both. – ADC website –
Accredited Duchenne Centers Around The World
Some of Hospitals and Care Centers have been granted accreditation as Accredited Duchenne Center for adults and youth with Duchenne muscular dystrophy.
- University Clinical Center in Gdansk – Poland
- Instituto Nacional de Rehabilitacion Luis Guillermo Ibarra – Mexico
- The Robert Jones and Agnes Hunt Orthopaedic Hospital – UK
- Antalya Neuromuscular Center – Turkiye
- Clinic for Neurology and Psychiatry for Children and Youth – Serbia
- Pediatric Center – Semmelweis University – Hungary
- Dr. Victor Gomoiu Children’s Hospital – Romania
- Neuromuscular Complex Care Center (NMCCC) – UK
Read More: Cures of Duchenne (List of All Researches)
Is There an Accredited Duchenne Muscle Center in My Country?
Muscle centers are of great importance in ensuring and monitoring the control of children and adults living with Duchenne muscular dystrophy in various branches.
Health Branches in Accredited Duchenne Centers
- Diagnosis
- Neuromuscular rehabilitation
- Endocrine
- Gastrointestinal
- Respiratory
- Cardiac
- Bone health
- Orthopedic
- Emergency
- Psychosocial treatment
- Care transitions throughout life
Apply pressure to health institutions in your country to expand and accredit muscle centers. Routine check-ups and monitoring processes will improve the quality of life of patients as much as the improved Duchenne cures.
