{"id":8211,"date":"2026-08-24T09:48:53","date_gmt":"2026-08-24T06:48:53","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=8211"},"modified":"2026-08-24T10:12:17","modified_gmt":"2026-08-24T07:12:17","slug":"gastrostomy-tubes-in-duchenne-muscular-dystrophy","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/zh\/gastrostomy-tubes-in-duchenne-muscular-dystrophy\/","title":{"rendered":"\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1\uff1a\u4f55\u65f6\u9700\u8981\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u7ba1 (PEG \u7ba1)\u3001\u76ca\u5904\u3001\u98ce\u9669\u548c\u8425\u517b\u6307\u5357"},"content":{"rendered":"<p class=\"wp-block-paragraph\"><strong>\u5bf9\u4e8e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u60a3\u8005\u800c\u8a00\uff0c\u80c3\u9020\u7618\u7ba1\u5df2\u6210\u4e3a\u591a\u5b66\u79d1\u62a4\u7406\u7684\u91cd\u8981\u7ec4\u6210\u90e8\u5206\uff0c\u8fd9\u4e9b\u60a3\u8005\u4f1a\u51fa\u73b0\u8fdb\u884c\u6027\u541e\u54bd\u56f0\u96be\u3001\u975e\u9884\u671f\u4f53\u91cd\u51cf\u8f7b\u6216\u5438\u5165\u98ce\u9669\u589e\u52a0\u7b49\u60c5\u51b5\u3002.<\/strong> DMD \u4e2d\u7684 PEG \u7ba1\uff08\u7ecf\u76ae\u5185\u955c\u80c3\u9020\u7618\u7ba1\uff09\u53ef\u76f4\u63a5\u8fdb\u5165\u80c3\u90e8\uff0c\u5f53\u7ecf\u53e3\u8fdb\u98df\u53d8\u5f97\u56f0\u96be\u6216\u4e0d\u5b89\u5168\u65f6\uff0c\u53ef\u4ee5\u8fdb\u884c\u5145\u5206\u7684\u8425\u517b\u3001\u6c34\u5206\u8f93\u9001\u548c\u836f\u7269\u7ed9\u836f\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u4e8e\u8bb8\u591a\u5bb6\u5ead\u6765\u8bf4\uff0c\u5f97\u77e5\u5b69\u5b50\u53ef\u80fd\u9700\u8981\u901a\u8fc7\u9f3b\u9972\u7ba1\u8fdb\u98df\u6765\u6cbb\u7597\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff0c\u65e0\u7591\u662f\u5de8\u5927\u7684\u60c5\u611f\u51b2\u51fb\u3002\u7236\u6bcd\u5e38\u5e38\u62c5\u5fc3\u8fd9\u4ee3\u8868\u7740\u75be\u75c5\u7684\u201c\u7ec8\u672b\u671f\u201d\uff0c\u6216\u8005\u62c5\u5fc3\u5b69\u5b50\u518d\u4e5f\u65e0\u6cd5\u6b63\u5e38\u8fdb\u98df\u3002\u5e78\u8fd0\u7684\u662f\uff0c\u8fd9\u4e24\u79cd\u60f3\u6cd5\u90fd\u662f\u9519\u8bef\u7684\u3002. <strong>\u73b0\u4ee3\u4e34\u5e8a\u6307\u5357\u5f3a\u8c03\uff0c\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1\u5e94\u88ab\u89c6\u4e3a\u652f\u6301\u6027\u8425\u517b\u6cbb\u7597\uff0c\u800c\u4e0d\u662f\u6cbb\u7597\u5931\u8d25\u6216\u75be\u75c5\u8fdb\u5c55\u7684\u6807\u5fd7\u3002.<\/strong> \u5728 DMD \u60a3\u8005\u4e2d\uff0c\u5982\u679c\u5728\u9002\u5f53\u7684\u65f6\u5019\u653e\u7f6e PEG \u7ba1\uff0c\u53ef\u4ee5\u6539\u5584\u8425\u517b\u72b6\u51b5\uff0c\u51cf\u5c11\u8fdb\u9910\u538b\u529b\uff0c\u964d\u4f4e\u8bef\u5438\u98ce\u9669\uff0c\u63d0\u9ad8\u6574\u4f53\u751f\u6d3b\u8d28\u91cf\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u968f\u7740\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u8fdb\u5c55\uff0c\u5168\u8eab\u9aa8\u9abc\u808c\u2014\u2014\u5305\u62ec\u5480\u56bc\u548c\u541e\u54bd\u808c\u2014\u2014\u4f1a\u9010\u6e10\u65e0\u529b\u3002\u547c\u5438\u808c\u65e0\u529b\u4e5f\u53ef\u80fd\u589e\u52a0\u98df\u7269\u8bef\u5165\u6c14\u9053\u800c\u975e\u80c3\u90e8\u7684\u98ce\u9669\u3002\u8fd9\u4e9b\u53d8\u5316\u4f1a\u4f7f\u8fdb\u98df\u53d8\u5f97\u5f02\u5e38\u8270\u96be\uff0c\u6709\u65f6\u751a\u81f3\u5371\u53ca\u751f\u547d\u3002. <strong>\u56e0\u6b64\uff0c\u8425\u517b\u4e13\u5bb6\u3001\u795e\u7ecf\u79d1\u533b\u751f\u3001\u80ba\u79d1\u533b\u751f\u3001\u8bed\u8a00\u75c5\u7406\u5b66\u5bb6\u548c\u80c3\u80a0\u75c5\u5b66\u5bb6\u7ecf\u5e38\u5171\u540c\u5408\u4f5c\uff0c\u4ee5\u786e\u5b9a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u662f\u5426\u9002\u5408\u8fdb\u884c\u80c3\u9020\u7618\u672f\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u91cd\u8981\u7684\u662f\uff0c\u8bb8\u591a\u63a5\u53d7\u80c3\u9020\u7618\u7ba1\u6cbb\u7597\u7684\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u4ecd\u7136\u80fd\u591f\u7ecf\u53e3\u8fdb\u98df\u3002.<\/strong> \u5582\u98df\u7ba1\u901a\u5e38\u4f5c\u4e3a\u6b63\u5e38\u996e\u98df\u7684\u8865\u5145\u800c\u975e\u66ff\u4ee3\u54c1\uff0c\u4f7f\u60a3\u8005\u80fd\u591f\u5b89\u5168\u5730\u98df\u7528\u81ea\u5df1\u559c\u6b22\u7684\u98df\u7269\uff0c\u5e76\u5728\u5fc5\u8981\u65f6\u901a\u8fc7\u5582\u98df\u7ba1\u83b7\u5f97\u989d\u5916\u7684\u5361\u8def\u91cc\u3001\u6db2\u4f53\u548c\u836f\u7269\u3002.<\/p>\n\n\n\n<div class=\"wp-block-rank-math-toc-block\" id=\"rank-math-toc\"><h2>\u76ee\u5f55<\/h2><nav><ul><li><a href=\"#why-do-some-people-with-dmd-need-a-peg-tube\">\u4e3a\u4ec0\u4e48\u6709\u4e9b\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u4eba\u9700\u8981\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\uff1f<\/a><\/li><li><a href=\"#how-do-you-know-if-a-child-with-dmd-needs-a-peg-tube\">\u5982\u4f55\u5224\u65ad\u60a3\u6709 DMD \u7684\u513f\u7ae5\u662f\u5426\u9700\u8981 PEG \u7ba1\uff1f<\/a><\/li><li><a href=\"#early-warning-signs-that-should-never-be-ignored\">\u4e0d\u5bb9\u5ffd\u89c6\u7684\u65e9\u671f\u9884\u8b66\u4fe1\u53f7<\/a><\/li><li><a href=\"#how-doctors-decide-whether-a-peg-tube-is-necessary\">\u533b\u751f\u5982\u4f55\u51b3\u5b9a\u662f\u5426\u9700\u8981\u8fdb\u884c\u80c3\u9020\u7618\u672f<\/a><\/li><li><a href=\"#is-peg-tube-placement-an-emergency-or-a-planned-procedure\">\u80c3\u9020\u7618\u7ba1\u7f6e\u5165\u672f\u662f\u7d27\u6025\u624b\u672f\u8fd8\u662f\u8ba1\u5212\u624b\u672f\uff1f<\/a><\/li><li><a href=\"#is-a-peg-tube-safe-for-duchenne-muscular-dystrophy\">PEG\u7ba1\u5bf9\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u5b89\u5168\u5417\uff1f<\/a><\/li><li><a href=\"#pre-procedure-evaluation\">\u672f\u524d\u8bc4\u4f30<\/a><\/li><li><a href=\"#how-is-a-peg-tube-inserted-in-dmd-patients\">\u5982\u4f55\u4e3aDMD\u60a3\u8005\u63d2\u5165PEG\u7ba1\uff1f<\/a><\/li><li><a href=\"#what-happens-during-the-hospital-stay\">\u4f4f\u9662\u671f\u95f4\u4f1a\u53d1\u751f\u4ec0\u4e48\uff1f<\/a><\/li><li><a href=\"#does-peg-placement-hurt\">PEG\u7f6e\u7ba1\u672f\u4f1a\u75db\u5417\uff1f<\/a><\/li><li><a href=\"#what-are-the-risks-of-peg-tube-placement-in-duchenne\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u884c\u80c3\u9020\u7618\u672f\u7684\u98ce\u9669\u6709\u54ea\u4e9b\uff1f<\/a><\/li><li><a href=\"#common-minor-complications\">\u5e38\u89c1\u8f7b\u5fae\u5e76\u53d1\u75c7<\/a><\/li><li><a href=\"#serious-complications\">\u4e25\u91cd\u5e76\u53d1\u75c7<\/a><\/li><li><a href=\"#can-people-with-dmd-still-eat-after-getting-a-gastrostomy-tube\">\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u7684\u4eba\u5728\u63a5\u53d7\u80c3\u9020\u7618\u7ba1\u624b\u672f\u540e\u8fd8\u80fd\u8fdb\u98df\u5417\uff1f<\/a><\/li><li><a href=\"#emotional-impact-on-families\">\u5bf9\u5bb6\u5ead\u7684\u60c5\u611f\u5f71\u54cd<\/a><\/li><li><a href=\"#nutrition-after-peg-placement-in-duchenne-muscular-dystrophy\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u884c\u80c3\u9020\u7618\u672f\u540e\u7684\u8425\u517b\u72b6\u51b5<\/a><\/li><li><a href=\"#what-foods-can-be-given-through-a-peg-tube\">\u54ea\u4e9b\u98df\u7269\u53ef\u4ee5\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u5582\u98df\uff1f<\/a><\/li><li><a href=\"#can-a-peg-tube-prevent-weight-loss-in-duchenne-muscular-dystrophy\">PEG\u7ba1\u80fd\u5426\u9884\u9632\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u4f53\u91cd\u4e0b\u964d\uff1f<\/a><\/li><li><a href=\"#daily-care-of-a-gastrostomy-tube-at-home\">\u5728\u5bb6\u8fdb\u884c\u80c3\u9020\u7618\u7ba1\u7684\u65e5\u5e38\u62a4\u7406<\/a><\/li><li><a href=\"#giving-medications-through-a-peg-tube\">\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u7ed9\u836f<\/a><\/li><li><a href=\"#can-a-person-still-enjoy-eating\">\u4eba\u8fd8\u80fd\u4eab\u53d7\u7f8e\u98df\u5417\uff1f<\/a><\/li><li><a href=\"#does-a-feeding-tube-improve-quality-of-life-in-duchenne\">\u5582\u98df\u7ba1\u80fd\u6539\u5584\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u751f\u6d3b\u8d28\u91cf\u5417\uff1f<\/a><\/li><li><a href=\"#practical-advice-for-families\">\u7ed9\u5bb6\u5ead\u7684\u5b9e\u7528\u5efa\u8bae<\/a><\/li><li><a href=\"#fa-qs-gastrostomy-tubes-in-duchenne-muscular-dystrophy\">\u5e38\u89c1\u95ee\u9898\u89e3\u7b54\uff1a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1<\/a><\/li><li><a href=\"#conclusion\">\u7ed3\u8bba<\/a><\/li><li><a href=\"#academic-sources-and-references\">\u5b66\u672f\u8d44\u6e90\u548c\u53c2\u8003\u6587\u732e<\/a><\/li><\/ul><\/nav><\/div>\n\n\n\n<h2 id=\"why-do-some-people-with-dmd-need-a-peg-tube\" class=\"wp-block-heading\">\u4e3a\u4ec0\u4e48\u6709\u4e9b\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u4eba\u9700\u8981\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u5e76\u975e\u4ec5\u4ec5\u5f71\u54cd\u884c\u52a8\u80fd\u529b\u3002\u968f\u7740\u808c\u8089\u65e0\u529b\u7684\u52a0\u91cd\uff0c\u8d1f\u8d23\u5480\u56bc\u3001\u541e\u54bd\u3001\u54b3\u55fd\u548c\u547c\u5438\u7684\u808c\u8089\u4e5f\u4f1a\u53d7\u5230\u5f71\u54cd\u3002\u8fd9\u4e9b\u53d8\u5316\u4f1a\u52a0\u5267\u8425\u517b\u65b9\u9762\u7684\u6311\u6218\uff0c\u800c\u8fd9\u4e9b\u6311\u6218\u53ef\u80fd\u4f1a\u5728\u6570\u6708\u6216\u6570\u5e74\u5185\u9010\u6e10\u663e\u73b0\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5bfc\u81f4\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u9700\u8981\u8fdb\u884c\u80c3\u9020\u7618\u672f\u7684\u56e0\u7d20\u6709\u5f88\u591a\uff1a<\/strong><\/p>\n\n\n\n<h3 id=\"progressive-swallowing-muscle-weakness\" class=\"wp-block-heading\">\u8fdb\u884c\u6027\u541e\u54bd\u808c\u65e0\u529b<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u53e3\u8154\u3001\u820c\u5934\u3001\u54bd\u5589\u548c\u98df\u9053\u7684\u808c\u8089\u4f1a\u9010\u6e10\u65e0\u529b\u3002\u867d\u7136\u5e7c\u513f\u65f6\u671f\u541e\u54bd\u529f\u80fd\u901a\u5e38\u770b\u8d77\u6765\u6b63\u5e38\uff0c\u4f46\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u9752\u5c11\u5e74\u548c\u6210\u5e74\u4eba\u53ef\u80fd\u4f1a\u51fa\u73b0\u4ee5\u4e0b\u60c5\u51b5\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5480\u56bc\u8f83\u786c\u98df\u7269\u6709\u56f0\u96be<\/li>\n\n\n\n<li>\u6162\u98df<\/li>\n\n\n\n<li>\u7528\u9910\u671f\u95f4\u611f\u5230\u75b2\u5026<\/li>\n\n\n\n<li>\u541e\u54bd\u65f6\u9891\u7e41\u54b3\u55fd<\/li>\n\n\n\n<li>\u611f\u89c9\u98df\u7269\u5361\u4f4f\u4e86<\/li>\n\n\n\n<li>\u7a92\u606f\u53d1\u4f5c<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u8fd9\u4e9b\u75c7\u72b6\u7efc\u5408\u8d77\u6765\u8868\u660e\u5b58\u5728\u541e\u54bd\u56f0\u96be\uff0c\u8fd9\u79cd\u60c5\u51b5\u9700\u8981\u53ca\u65f6\u5c31\u533b\u8bc4\u4f30\u3002.<\/strong> \u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/swallowing-difficulty-dysphagia-in-duchenne-muscular-dystrophy\/\" data-type=\"post\" data-id=\"6281\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u541e\u54bd\u56f0\u96be<\/a><\/p>\n\n\n\n<h3 id=\"increased-caloric-requirements\" class=\"wp-block-heading\">\u70ed\u91cf\u9700\u6c42\u589e\u52a0<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u60a3\u8005\u9700\u8981\u7cbe\u7ec6\u7684\u8425\u517b\u7ba1\u7406\u3002\u968f\u7740\u5e74\u9f84\u589e\u957f\uff0c\u60a3\u8005\u7684\u6d3b\u52a8\u80fd\u529b\u4f1a\u9010\u6e10\u4e0b\u964d\uff0c\u6162\u6027\u547c\u5438\u56f0\u96be\u3001\u611f\u67d3\u3001\u76ae\u8d28\u7c7b\u56fa\u9187\u6cbb\u7597\u4ee5\u53ca\u808c\u8089\u9000\u5316\u7b49\u56e0\u7d20\u90fd\u53ef\u80fd\u6539\u53d8\u5176\u80fd\u91cf\u9700\u6c42\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6709\u4e9b\u60a3\u8005\u4f1a\u56e0\u4e3a\u4ee5\u4e0b\u539f\u56e0\u800c\u65e0\u610f\u4e2d\u51cf\u8f7b\u4f53\u91cd\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5403\u996d\u65f6\u95f4\u592a\u957f\u3002.<\/li>\n\n\n\n<li>\u8fdb\u98df\u4f1a\u8ba9\u4eba\u611f\u5230\u8eab\u4f53\u75b2\u60eb\u3002.<\/li>\n\n\n\n<li>\u98df\u6b32\u4e0b\u964d\u3002.<\/li>\n\n\n\n<li>\u541e\u54bd\u4e0d\u9002\u4f1a\u5f71\u54cd\u8fdb\u98df\u610f\u613f\u3002.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5f53\u5361\u8def\u91cc\u6444\u5165\u91cf\u6301\u7eed\u4f4e\u4e8e\u8425\u517b\u9700\u6c42\u65f6\uff0c\u533b\u751f\u53ef\u80fd\u4f1a\u5efa\u8bae\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u60a3\u8005\u51fa\u73b0\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u4e4b\u524d\u8fdb\u884c PEG \u7ba1\u7f6e\u5165\u3002.<\/strong><\/p>\n\n\n\n<h3 id=\"safer-medication-administration\" class=\"wp-block-heading\">\u66f4\u5b89\u5168\u7684\u7528\u836f\u7ba1\u7406<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u901a\u5e38\u9700\u8981\u670d\u7528\u591a\u79cd\u836f\u7269\uff0c\u5305\u62ec\u76ae\u8d28\u7c7b\u56fa\u9187\u3001\u5fc3\u810f\u75c5\u836f\u7269\u3001\u9aa8\u9abc\u4fdd\u5065\u8865\u5145\u5242\u3001\u7ef4\u751f\u7d20D\u3001\u9499\u5242\u548c\u547c\u5438\u7cfb\u7edf\u6cbb\u7597\u836f\u7269\u3002\u6bcf\u5929\u541e\u54bd\u5927\u91cf\u836f\u7247\u4f1a\u53d8\u5f97\u8d8a\u6765\u8d8a\u56f0\u96be\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5728\u533b\u751f\u7684\u6307\u5bfc\u4e0b\uff0c\u80c3\u9020\u7618\u7ba1\u4e3a\u5b89\u5168\u53ef\u9760\u5730\u8f93\u6ce8\u591a\u79cd\u836f\u7269\u63d0\u4f9b\u4e86\u4e00\u6761\u9014\u5f84\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"how-do-you-know-if-a-child-with-dmd-needs-a-peg-tube\" class=\"wp-block-heading\">\u5982\u4f55\u5224\u65ad\u60a3\u6709 DMD \u7684\u513f\u7ae5\u662f\u5426\u9700\u8981 PEG \u7ba1\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bb6\u5c5e\u6700\u5e38\u95ee\u7684\u95ee\u9898\u4e4b\u4e00\u662f\uff1a<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\"><strong>\u201c\u5982\u4f55\u5224\u65ad\u4f55\u65f6\u9700\u8981\u8fdb\u884c\u80c3\u9020\u7618\u672f\uff1f\u201d<\/strong><\/p>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\">\u6ca1\u6709\u54ea\u4e2a\u5355\u4e00\u7684\u5e74\u9f84\u6216\u91cc\u7a0b\u7891\u53ef\u4ee5\u51b3\u5b9a\u7b54\u6848\u3002\u76f8\u53cd\uff0c\u4e34\u5e8a\u533b\u751f\u4f1a\u540c\u65f6\u8bc4\u4f30\u591a\u79cd\u56e0\u7d20\u3002.<\/p>\n\n\n\n<h3 id=\"weight-loss\" class=\"wp-block-heading\">\u51cf\u80a5<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6301\u7eed\u7684\u4f53\u91cd\u4e0b\u964d\u662f\u6700\u6709\u529b\u7684\u6307\u6807\u4e4b\u4e00\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5f53\u5b69\u5b50\u51fa\u73b0\u4ee5\u4e0b\u60c5\u51b5\u65f6\uff0c\u533b\u7597\u4fdd\u5065\u4eba\u5458\u4f1a\u611f\u5230\u62c5\u5fe7\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u8fdc\u4f4e\u4e8e\u9884\u671f\u589e\u957f\u66f2\u7ebf\u3002<\/li>\n\n\n\n<li>\u4f53\u91cd\u51cf\u8f7b\u8d85\u8fc7\u7ea610%\u3002<\/li>\n\n\n\n<li>\u5c3d\u7ba1\u63a5\u53d7\u4e86\u8425\u517b\u54a8\u8be2\uff0c\u4f46\u4ecd\u65e0\u6cd5\u7ef4\u6301\u8db3\u591f\u7684\u70ed\u91cf\u6444\u5165\u3002<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u65e9\u671f\u5e72\u9884\u901a\u5e38\u6bd4\u7b49\u5230\u51fa\u73b0\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u540e\u518d\u8fdb\u884c\u5e72\u9884\u6548\u679c\u66f4\u597d\u3002.<\/p>\n\n\n\n<h3 id=\"swallowing-evaluation\" class=\"wp-block-heading\">\u541e\u54bd\u8bc4\u4f30<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8a00\u8bed\u6cbb\u7597\u5e08\u53ef\u80fd\u4f1a\u8fdb\u884c\u4e13\u95e8\u7684\u541e\u54bd\u8bc4\u4f30\uff0c\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4e34\u5e8a\u541e\u54bd\u68c0\u67e5<\/li>\n\n\n\n<li>\u6539\u826f\u94a1\u9910\u541e\u54bd\u9020\u5f71\u68c0\u67e5\uff08VFSS\uff09<\/li>\n\n\n\n<li>\u7ea4\u7ef4\u5185\u955c\u541e\u54bd\u529f\u80fd\u8bc4\u4f30\uff08FEES\uff09<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e9b\u6d4b\u8bd5\u6709\u52a9\u4e8e\u786e\u5b9a\u98df\u7269\u6216\u6db2\u4f53\u662f\u5426\u8fdb\u5165\u4e86\u6c14\u9053\u800c\u4e0d\u662f\u98df\u9053\u3002.<\/p>\n\n\n\n<h3 id=\"mealtimes-become-extremely-long\" class=\"wp-block-heading\">\u7528\u9910\u65f6\u95f4\u53d8\u5f97\u5f02\u5e38\u6f2b\u957f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e00\u987f\u5065\u5eb7\u7684\u9910\u98df\u901a\u5e38\u9700\u898120-30\u5206\u949f\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u90e8\u5206\u665a\u671f\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u9700\u8981\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4e00\u5c0f\u65f6<\/li>\n\n\n\n<li>\u4e5d\u5341\u5206\u949f<\/li>\n\n\n\n<li>\u5373\u4f7f\u662f\u4e24\u4e2a\u5c0f\u65f6<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u6bcf\u9910\u90fd\u5982\u6b64\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fdb\u9910\u65f6\u95f4\u8fc7\u957f\u901a\u5e38\u8868\u660e\u541e\u54bd\u808c\u75b2\u52b3\u52a0\u5267\u3002.<\/p>\n\n\n\n<h3 id=\"frequent-chest-infections\" class=\"wp-block-heading\">\u9891\u7e41\u7684\u80f8\u90e8\u611f\u67d3<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u53cd\u590d\u53d1\u751f\u80ba\u708e\u6216\u547c\u5438\u9053\u611f\u67d3\u53ef\u80fd\u63d0\u793a\u5438\u5165\u6027\u80ba\u708e\u3002.<\/strong> \u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/respiratory-health-care-in-duchenne-muscular-dystrophy\/\" data-type=\"post\" data-id=\"6477\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u547c\u5438\u62a4\u7406<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bef\u5438\u662f\u6307\u98df\u7269\u3001\u6db2\u4f53\u6216\u553e\u6db2\u8fdb\u5165\u80ba\u90e8\u800c\u975e\u80c3\u90e8\u3002\u5373\u4f7f\u662f\u201c\u65e0\u75c7\u72b6\u8bef\u5438\u201d\uff08\u53ef\u80fd\u6ca1\u6709\u660e\u663e\u7684\u7a92\u606f\u75c7\u72b6\uff09\uff0c\u4e5f\u53ef\u80fd\u5bfc\u81f4\u547c\u5438\u7cfb\u7edf\u75be\u75c5\u53cd\u590d\u53d1\u4f5c\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"early-warning-signs-that-should-never-be-ignored\" class=\"wp-block-heading\">\u4e0d\u5bb9\u5ffd\u89c6\u7684\u65e9\u671f\u9884\u8b66\u4fe1\u53f7<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bb6\u4eba\u5f80\u5f80\u5728\u6b63\u5f0f\u786e\u8bca\u541e\u54bd\u56f0\u96be\u4e4b\u524d\u51e0\u4e2a\u6708\u5c31\u6ce8\u610f\u5230\u4e00\u4e9b\u7ec6\u5fae\u7684\u53d8\u5316\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8b66\u544a\u4fe1\u53f7\u5305\u62ec\uff1a<\/p>\n\n\n\n<h3 id=\"eating-much-more-slowly\" class=\"wp-block-heading\">\u653e\u6162\u8fdb\u98df\u901f\u5ea6<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u4ee5\u524d20\u5206\u949f\u5c31\u80fd\u5403\u5b8c\u996d\u7684\u5b69\u5b50\uff0c\u7a81\u7136\u53ef\u80fd\u8981\u82b1\u4e00\u4e2a\u591a\u5c0f\u65f6\u624d\u80fd\u5403\u5b8c\u3002.<\/p>\n\n\n\n<h3 id=\"avoiding-certain-foods\" class=\"wp-block-heading\">\u907f\u514d\u98df\u7528\u67d0\u4e9b\u98df\u7269<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5e38\u88ab\u907f\u514d\u98df\u7528\u7684\u98df\u7269\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u725b\u6392<\/li>\n\n\n\n<li>\u9762\u5305<\/li>\n\n\n\n<li>\u7c73<\/li>\n\n\n\n<li>\u5e72\u9e21<\/li>\n\n\n\n<li>\u997c\u5e72<\/li>\n\n\n\n<li>\u751f\u852c\u83dc<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e9b\u98df\u7269\u9700\u8981\u66f4\u5f3a\u7684\u5480\u56bc\u808c\u3002.<\/p>\n\n\n\n<h3 id=\"drinking-excess-water-during-meals\" class=\"wp-block-heading\">\u7528\u9910\u65f6\u996e\u7528\u8fc7\u91cf\u6c34<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6709\u4e9b\u4eba\u56e0\u4e3a\u541e\u54bd\u56f0\u96be\uff0c\u6bcf\u5403\u4e00\u53e3\u4e1c\u897f\u540e\u90fd\u8981\u53cd\u590d\u559d\u6c34\u3002.<\/p>\n\n\n\n<h3 id=\"coughing-while-eating\" class=\"wp-block-heading\">\u8fdb\u98df\u65f6\u54b3\u55fd<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fdb\u9910\u671f\u95f4\u6301\u7eed\u54b3\u55fd\u5e94\u53ca\u65f6\u4e0e\u533b\u7597\u56e2\u961f\u6c9f\u901a\u3002.<\/p>\n\n\n\n<h3 id=\"wet-or-gurgly-voice\" class=\"wp-block-heading\">\u6e7f\u6da6\u6216\u5495\u565c\u4f5c\u54cd\u7684\u58f0\u97f3<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u541e\u54bd\u540e\u7acb\u5373\u51fa\u73b0\u6e7f\u6da6\u7684\u58f0\u97f3\u53ef\u80fd\u63d0\u793a\u6c14\u9053\u9644\u8fd1\u6709\u98df\u7269\u6216\u6db2\u4f53\u6b8b\u7559\u3002.<\/p>\n\n\n\n<h3 id=\"weight-plateau\" class=\"wp-block-heading\">\u4f53\u91cd\u5e73\u53f0\u671f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u513f\u7ae5\u8eab\u9ad8\u589e\u957f\u6b63\u5e38\u4f46\u4f53\u91cd\u505c\u6b62\u589e\u957f\uff0c\u5e94\u8fdb\u884c\u8425\u517b\u8bc4\u4f30\u3002.<\/p>\n\n\n\n<h3 id=\"fatigue-after-meals\" class=\"wp-block-heading\">\u996d\u540e\u75b2\u52b3<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u60a3\u8005\u90fd\u8868\u793a\u5403\u996d\u8ba9\u4ed6\u4eec\u611f\u5230\u8eab\u5fc3\u4ff1\u75b2\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e0e\u5176\u4eab\u53d7\u5bb6\u5ead\u665a\u9910\uff0c\u5403\u996d\u53d8\u6210\u4e86\u4e00\u9879\u8270\u5de8\u7684\u65e5\u5e38\u4efb\u52a1\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"how-doctors-decide-whether-a-peg-tube-is-necessary\" class=\"wp-block-heading\">\u533b\u751f\u5982\u4f55\u51b3\u5b9a\u662f\u5426\u9700\u8981\u8fdb\u884c\u80c3\u9020\u7618\u672f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u4efb\u4f55\u533b\u751f\u90fd\u65e0\u6cd5\u5355\u72ec\u505a\u51fa\u8fd9\u6837\u7684\u51b3\u5b9a\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u76f8\u53cd\uff0c\u591a\u5b66\u79d1DMD\u8bca\u7597\u4e2d\u5fc3\u901a\u5e38\u5305\u62ec\uff1a<\/p>\n\n\n\n<h3 id=\"neurologist\" class=\"wp-block-heading\">\u795e\u7ecf\u79d1\u533b\u751f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bc4\u4f30\u75be\u75c5\u7684\u6574\u4f53\u8fdb\u5c55\u60c5\u51b5\u3002.<\/p>\n\n\n\n<h3 id=\"pulmonologist\" class=\"wp-block-heading\">\u80ba\u79d1\u533b\u751f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bc4\u4f30\u547c\u5438\u808c\u529b\u91cf\uff0c\u56e0\u4e3a\u80ba\u529f\u80fd\u4e0b\u964d\u4f1a\u589e\u52a0\u9ebb\u9189\u98ce\u9669\u3002.<\/p>\n\n\n\n<h3 id=\"gastroenterologist\" class=\"wp-block-heading\">\u80a0\u80c3\u79d1\u533b\u751f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fdb\u884c\u5185\u955c\u68c0\u67e5\u548c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u3002.<\/p>\n\n\n\n<h3 id=\"speech-language-pathologist\" class=\"wp-block-heading\">\u8a00\u8bed\u6cbb\u7597\u5e08<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bc4\u4f30\u541e\u54bd\u5b89\u5168\u6027\u548c\u8bef\u5438\u98ce\u9669\u3002.<\/p>\n\n\n\n<h3 id=\"registered-dietitian\" class=\"wp-block-heading\">\u6ce8\u518c\u8425\u517b\u5e08<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8ba1\u7b97\u5361\u8def\u91cc\u9700\u6c42\uff0c\u76d1\u6d4b\u8425\u517b\u7f3a\u4e4f\u60c5\u51b5\uff0c\u5e76\u5728\u9700\u8981\u65f6\u63a8\u8350\u8425\u517b\u914d\u65b9\u3002.<\/p>\n\n\n\n<h3 id=\"anesthesiologist\" class=\"wp-block-heading\">\u9ebb\u9189\u5e08<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5236\u5b9a\u9547\u9759\u65b9\u6848\u65f6\u8981\u683c\u5916\u8c28\u614e\uff0c\u56e0\u4e3a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u6709\u7279\u6b8a\u7684\u9ebb\u9189\u6ce8\u610f\u4e8b\u9879\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u76ee\u524d\u56fd\u9645\u4e0a\u5bf9 DMD \u7684\u62a4\u7406\u5efa\u8bae\u5f3a\u8c03\uff0c\u7406\u60f3\u60c5\u51b5\u4e0b\uff0cPEG \u7f6e\u5165\u672f\u5e94\u5728\u51fa\u73b0\u4e25\u91cd\u547c\u5438\u529f\u80fd\u969c\u788d\u6216\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u4e4b\u524d\u8fdb\u884c\uff0c\u56e0\u4e3a\u65e9\u671f\u5e72\u9884\u901a\u5e38\u4e0e\u8f83\u5c11\u7684\u624b\u672f\u98ce\u9669\u548c\u66f4\u597d\u7684\u6062\u590d\u76f8\u5173\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"is-peg-tube-placement-an-emergency-or-a-planned-procedure\" class=\"wp-block-heading\">\u80c3\u9020\u7618\u7ba1\u7f6e\u5165\u672f\u662f\u7d27\u6025\u624b\u672f\u8fd8\u662f\u8ba1\u5212\u624b\u672f\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5927\u591a\u6570\u60c5\u51b5\u4e0b\uff0cDMD \u60a3\u8005\u7684 PEG \u7ba1\u7f6e\u5165\u672f\u662f\u8ba1\u5212\u597d\u7684\u62e9\u671f\u624b\u672f\uff0c\u800c\u4e0d\u662f\u7d27\u6025\u5e72\u9884\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u7b49\u5230\u60a3\u8005\u4e25\u91cd\u4f53\u91cd\u8fc7\u8f7b\u3001\u8131\u6c34\u6216\u53cd\u590d\u53d1\u751f\u5438\u5165\u6027\u80ba\u708e\u65f6\u518d\u8fdb\u884c\u80c3\u9020\u7618\u672f\u53ef\u80fd\u4f1a\u589e\u52a0\u624b\u672f\u98ce\u9669\u3002\u56e0\u6b64\uff0c\u8bb8\u591a\u795e\u7ecf\u808c\u8089\u4e13\u5bb6\u5efa\u8bae\u5c3d\u65e9\u8ba8\u8bba\u80c3\u9020\u7618\u672f\uff0c\u5373\u4f7f\u76ee\u524d\u5e76\u4e0d\u9700\u8981\u7acb\u5373\u63d2\u7ba1\u3002\u53ca\u65e9\u6c9f\u901a\u53ef\u4ee5\u8ba9\u5bb6\u5c5e\u4e86\u89e3\u624b\u672f\u8fc7\u7a0b\uff0c\u63d0\u51fa\u95ee\u9898\uff0c\u5e76\u5728\u6ca1\u6709\u7d27\u6025\u533b\u7597\u5371\u673a\u538b\u529b\u7684\u60c5\u51b5\u4e0b\u505a\u51fa\u77e5\u60c5\u51b3\u5b9a\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u800c\u8a00\uff0c\u672f\u524d\u5468\u5bc6\u8ba1\u5212\u5c24\u4e3a\u91cd\u8981\uff0c\u56e0\u4e3a\u547c\u5438\u808c\u65e0\u529b\u548c\u5fc3\u808c\u75c5\u4f1a\u589e\u52a0\u9ebb\u9189\u76f8\u5173\u98ce\u9669\u3002\u5728\u5b89\u6392\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u4e4b\u524d\uff0c\u4e34\u5e8a\u533b\u751f\u901a\u5e38\u4f1a\u8bc4\u4f30\u4ee5\u4e0b\u65b9\u9762\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u80ba\u529f\u80fd\uff08\u4f8b\u5982\u7528\u529b\u80ba\u6d3b\u91cf\uff09<\/li>\n\n\n\n<li>\u901a\u8fc7\u8d85\u58f0\u5fc3\u52a8\u56fe\u548c\/\u6216\u5fc3\u7535\u56fe\u68c0\u67e5\u5fc3\u810f\u529f\u80fd<\/li>\n\n\n\n<li>\u8425\u517b\u72b6\u51b5<\/li>\n\n\n\n<li>\u5f53\u524d\u836f\u7269<\/li>\n\n\n\n<li>\u6c14\u9053\u7ba1\u7406\u6ce8\u610f\u4e8b\u9879<\/li>\n\n\n\n<li>\u56f4\u624b\u672f\u671f\u65e0\u521b\u901a\u6c14\u652f\u6301\u7684\u9700\u6c42<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u76ee\u6807\u662f\u5728\u60a3\u8005\u75c5\u60c5\u7a33\u5b9a\u65f6\u8fdb\u884c\u624b\u672f\uff0c\u800c\u4e0d\u662f\u7b49\u5230\u8425\u517b\u6216\u547c\u5438\u529f\u80fd\u663e\u8457\u6076\u5316\u540e\u518d\u8fdb\u884c\u3002\u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/heart-health-in-duchenne-muscular-dystrophy\/\" data-type=\"post\" data-id=\"6816\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u5fc3\u808c\u75c5<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"key-takeaways\" class=\"wp-block-heading\">\u8981\u70b9\u603b\u7ed3<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\uff0cPEG \u7ba1\u662f\u4e00\u79cd\u8f85\u52a9\u6cbb\u7597\u624b\u6bb5\uff0c\u6709\u52a9\u4e8e\u7ef4\u6301\u8425\u517b\u3001\u6c34\u5206\u548c\u836f\u7269\u8f93\u9001\u3002.<\/li>\n\n\n\n<li><strong>\u8bb8\u591a\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u5e76\u690d\u5165\u80c3\u9020\u7618\u7ba1\u7684\u4eba\u4ecd\u7136\u80fd\u591f\u7ecf\u53e3\u8fdb\u98df\u3002.<\/strong><\/li>\n\n\n\n<li>\u8fdb\u884c\u6027\u541e\u54bd\u56f0\u96be\u3001\u4f53\u91cd\u51cf\u8f7b\u3001\u8fdb\u9910\u65f6\u95f4\u5ef6\u957f\u4ee5\u53ca\u5438\u5165\u98ce\u9669\u662f\u8003\u8651\u8fdb\u884c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f (PEG) \u7684\u5e38\u89c1\u539f\u56e0\u3002.<\/li>\n\n\n\n<li><strong>\u51b3\u7b56\u5e94\u7531\u591a\u5b66\u79d1\u795e\u7ecf\u808c\u8089\u56e2\u961f\u505a\u51fa\uff0c\u7406\u60f3\u60c5\u51b5\u4e0b\u5e94\u5728\u51fa\u73b0\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u6216\u547c\u5438\u529f\u80fd\u8870\u9000\u4e4b\u524d\u505a\u51fa\u3002.<\/strong><\/li>\n\n\n\n<li>\u53ca\u65e9\u8ba8\u8bba\u80c3\u9020\u7618\u672f\u53ef\u4ee5\u51cf\u8f7b\u538b\u529b\uff0c\u8ba9\u5bb6\u5ead\u505a\u51fa\u660e\u667a\u7684\u51b3\u5b9a\u3002.<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"is-a-peg-tube-safe-for-duchenne-muscular-dystrophy\" class=\"wp-block-heading\">PEG\u7ba1\u5bf9\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u5b89\u5168\u5417\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5728\u8ba8\u8bba\u80c3\u9020\u7618\u672f\u65f6\uff0c\u5b89\u5168\u5f80\u5f80\u662f\u5bb6\u5c5e\u9996\u5148\u5173\u6ce8\u7684\u95ee\u9898\u3002\u7236\u6bcd\u4eec\u62c5\u5fc3\u9ebb\u9189\u3001\u624b\u672f\u672c\u8eab\u4ee5\u53ca\u5b69\u5b50\u80fd\u5426\u987a\u5229\u5eb7\u590d\uff0c\u8fd9\u4e9b\u62c5\u5fe7\u662f\u53ef\u4ee5\u7406\u89e3\u7684\u3002. <strong>\u4ee4\u4eba\u6b23\u6170\u7684\u662f\uff0c\u5bf9\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u6765\u8bf4\uff0c\u80c3\u9020\u7618\u7ba1\u624b\u672f\u88ab\u8ba4\u4e3a\u662f\u4e00\u79cd\u6210\u719f\u4e14\u901a\u5e38\u5b89\u5168\u7684\u5e72\u9884\u63aa\u65bd\uff0c\u524d\u63d0\u662f\u7531\u719f\u6089\u795e\u7ecf\u808c\u8089\u75be\u75c5\u7684\u7ecf\u9a8c\u4e30\u5bcc\u7684\u591a\u5b66\u79d1\u56e2\u961f\u8fdb\u884c\u64cd\u4f5c\u3002.<\/strong> \u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/multidisciplinary-neuromuscular-team-duchenne-muscular-dystrophy\/\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u591a\u5b66\u79d1\u795e\u7ecf\u808c\u8089\u56e2\u961f<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u6700\u5927\u7684\u98ce\u9669\u901a\u5e38\u4e0e PEG \u7ba1\u672c\u8eab\u65e0\u5173\uff0c\u800c\u662f\u4e0e\u665a\u671f DMD \u53ef\u80fd\u4f34\u968f\u7684\u547c\u5438\u7cfb\u7edf\u548c\u5fc3\u810f\u5e76\u53d1\u75c7\u6709\u5173\u3002.<\/strong> \u56e0\u6b64\uff0c\u56fd\u9645\u62a4\u7406\u6307\u5357\u5efa\u8bae\u5728\u51fa\u73b0\u4e25\u91cd\u547c\u5438\u8870\u7aed\u6216\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u4e4b\u524d\u5bf9\u60a3\u8005\u8fdb\u884c\u8bc4\u4f30\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u62a4\u7406\u8003\u8651\u5de5\u4f5c\u7ec4\u53d1\u8868\u7684\u7814\u7a76\u8868\u660e\uff0c\u5728\u8425\u517b\u548c\u547c\u5438\u72b6\u51b5\u76f8\u5bf9\u7a33\u5b9a\u7684\u60c5\u51b5\u4e0b\u63a5\u53d7 DMD \u80c3\u9020\u7618\u672f\u7684\u60a3\u8005\uff0c\u5176\u9884\u540e\u901a\u5e38\u6bd4\u5728\u4f53\u91cd\u663e\u8457\u4e0b\u964d\u6216\u53cd\u590d\u5438\u5165\u6027\u80ba\u708e\u540e\u63a5\u53d7\u7d27\u6025\u80c3\u9020\u7618\u672f\u7684\u60a3\u8005\u66f4\u597d\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u91cd\u8981\u7684\u662f\u8981\u8bb0\u4f4f\uff0c\u6bcf\u4e2a\u60a3\u8005\u7684\u60c5\u51b5\u90fd\u4e0d\u540c\u3002\u80ba\u529f\u80fd\u6b63\u5e38\u7684\u513f\u7ae5\u5bf9\u8be5\u624b\u672f\u7684\u8010\u53d7\u7a0b\u5ea6\u53ef\u80fd\u4e0e\u9700\u8981\u65e0\u521b\u901a\u6c14\u7684\u4e25\u91cd\u547c\u5438\u808c\u65e0\u529b\u6210\u4eba\u622a\u7136\u4e0d\u540c\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"why-timing-matters\" class=\"wp-block-heading\">\u4e3a\u4ec0\u4e48\u65f6\u673a\u5f88\u91cd\u8981<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6700\u5e38\u89c1\u7684\u8bef\u89e3\u4e4b\u4e00\u662f\uff0c\u53ea\u6709\u5f53\u8fdb\u98df\u53d8\u5f97\u4e0d\u53ef\u80fd\u65f6\u624d\u5e94\u8be5\u8003\u8651\u4f7f\u7528\u5582\u98df\u7ba1\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u4e8b\u5b9e\u4e0a\uff0c\u4e13\u5bb6\u4eec\u8d8a\u6765\u8d8a\u5efa\u8bae\u5c3d\u65e9\u8ba8\u8bba\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1\u95ee\u9898\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u65e9\u671f\u690d\u5165\u53ef\u80fd\u6709\u52a9\u4e8e\u9884\u9632\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4e25\u91cd\u8425\u517b\u4e0d\u826f<\/li>\n\n\n\n<li>\u6162\u6027\u8131\u6c34<\/li>\n\n\n\n<li>\u590d\u53d1\u6027\u5438\u5165\u6027\u80ba\u708e<\/li>\n\n\n\n<li>\u4f53\u91cd\u663e\u8457\u4e0b\u964d<\/li>\n\n\n\n<li><a href=\"https:\/\/dmdwarrior.com\/zh\/emergency-care-in-duchenne-muscular-dystrophy\/\" data-type=\"post\" data-id=\"6956\">\u7d27\u6025\u4f4f\u9662<\/a><\/li>\n\n\n\n<li>\u547c\u5438\u529f\u80fd\u4e25\u91cd\u8870\u9000\u4f1a\u589e\u52a0\u9ebb\u9189\u98ce\u9669\u3002<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u7b49\u5230\u8425\u517b\u72b6\u51b5\u4e25\u91cd\u6076\u5316\u540e\u518d\u8fdb\u884c\u6cbb\u7597\uff0c\u53ef\u80fd\u4f1a\u4f7f\u5eb7\u590d\u66f4\u52a0\u56f0\u96be\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"pre-procedure-evaluation\" class=\"wp-block-heading\">\u672f\u524d\u8bc4\u4f30<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5728\u5efa\u8bae DMD \u60a3\u8005\u4f7f\u7528 PEG \u7ba1\u4e4b\u524d\uff0c\u4e34\u5e8a\u533b\u751f\u901a\u5e38\u4f1a\u8fdb\u884c\u5168\u9762\u7684\u8bc4\u4f30\u3002.<\/strong><\/p>\n\n\n\n<h3 id=\"cardiac-assessment\" class=\"wp-block-heading\">\u5fc3\u810f\u8bc4\u4f30<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u7531\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u901a\u5e38\u4f1a\u5f71\u54cd\u5fc3\u808c\uff0c\u60a3\u8005\u901a\u5e38\u9700\u8981\u63a5\u53d7\u4ee5\u4e0b\u6cbb\u7597\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5fc3\u7535\u56fe\uff08ECG\uff09<\/li>\n\n\n\n<li>\u8d85\u58f0\u5fc3\u52a8\u56fe<\/li>\n\n\n\n<li>\u5fc3\u810f\u75c5\u54a8\u8be2<\/li>\n\n\n\n<li>\u836f\u7269\u5ba1\u67e5<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u60a3\u6709\u5fc3\u808c\u75c5\u7684\u60a3\u8005\u53ef\u80fd\u9700\u8981\u8c03\u6574\u9ebb\u9189\u65b9\u6848\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"respiratory-assessment\" class=\"wp-block-heading\">\u547c\u5438\u7cfb\u7edf\u8bc4\u4f30<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u80ba\u529f\u80fd\u8bc4\u4f30\u901a\u5e38\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u7528\u529b\u80ba\u6d3b\u91cf\uff08FVC\uff09<\/li>\n\n\n\n<li>\u54b3\u55fd\u5cf0\u503c\u6d41\u901f<\/li>\n\n\n\n<li>\u6c27\u9971\u548c\u5ea6<\/li>\n\n\n\n<li>\u5982\u6709\u5fc5\u8981\uff0c\u53ef\u8fdb\u884c\u7761\u7720\u68c0\u67e5\u3002<\/li>\n\n\n\n<li>\u65e0\u521b\u901a\u6c14\u4f7f\u7528\u60c5\u51b5\u56de\u987e<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u547c\u5438\u6cbb\u7597\u5e08\u53ef\u80fd\u4f1a\u5efa\u8bae\u60a3\u8005\u5728\u624b\u672f\u524d\u540e\u4f7f\u7528\u54b3\u55fd\u8f85\u52a9\u88c5\u7f6e\uff0c\u4ee5\u51cf\u5c11\u80ba\u90e8\u5e76\u53d1\u75c7\u3002\u4e86\u89e3\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/respiratory-devices-for-duchenne-muscular-dystrophy\/\">\u7528\u4e8eDMD\u7684\u547c\u5438\u8bbe\u5907<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"nutritional-assessment\" class=\"wp-block-heading\">\u8425\u517b\u8bc4\u4f30<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8425\u517b\u5e08\u8bc4\u4f30\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5f53\u524d\u91cd\u91cf<\/li>\n\n\n\n<li>\u4f53\u91cd\u6307\u6570<\/li>\n\n\n\n<li>\u589e\u957f\u56fe\u8868<\/li>\n\n\n\n<li>\u6bcf\u65e5\u5361\u8def\u91cc\u6444\u5165\u91cf<\/li>\n\n\n\n<li>\u7ef4\u751f\u7d20\u7f3a\u4e4f\u75c7<\/li>\n\n\n\n<li>\u6c34\u5408\u72b6\u6001<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e9b\u6d4b\u91cf\u7ed3\u679c\u6709\u52a9\u4e8e\u786e\u5b9a\u63d2\u7ba1\u540e\u662f\u5426\u5e94\u7acb\u5373\u5f00\u59cb\u8865\u5145\u5582\u517b\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"how-is-a-peg-tube-inserted-in-dmd-patients\" class=\"wp-block-heading\">\u5982\u4f55\u4e3aDMD\u60a3\u8005\u63d2\u5165PEG\u7ba1\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>DMD \u4e2d\u7684 PEG \u7ba1\u901a\u5e38\u4f7f\u7528\u7ecf\u76ae\u5185\u955c\u80c3\u9020\u7618\u672f (PEG) \u653e\u7f6e\uff0c\u8be5\u6280\u672f\u5df2\u6210\u4e3a\u5168\u7403\u6700\u5e38\u7528\u7684\u6280\u672f\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8be5\u624b\u672f\u5c5e\u4e8e\u5fae\u521b\u624b\u672f\uff0c\u4e00\u822c\u9700\u8981 20 \u5230 40 \u5206\u949f\uff0c\u4f46\u51c6\u5907\u548c\u6062\u590d\u9700\u8981\u989d\u5916\u65f6\u95f4\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"step-1-sedation-or-general-anesthesia\" class=\"wp-block-heading\">\u7b2c\u4e00\u6b65\uff1a\u9547\u9759\u6216\u5168\u8eab\u9ebb\u9189<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6839\u636e\u5e74\u9f84\u3001\u547c\u5438\u72b6\u51b5\u548c\u533b\u7597\u673a\u6784\u7684\u60ef\u4f8b\uff0c\u60a3\u8005\u63a5\u53d7\u4ee5\u4e0b\u6cbb\u7597\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u610f\u8bc6\u9547\u9759<\/li>\n\n\n\n<li>\u6df1\u5ea6\u9547\u9759<\/li>\n\n\n\n<li>\u5168\u8eab\u9ebb\u9189<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u7531\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u6709\u7279\u6b8a\u7684\u9ebb\u9189\u6ce8\u610f\u4e8b\u9879\uff0c\u56e0\u6b64\u7406\u60f3\u60c5\u51b5\u4e0b\uff0c\u9ebb\u9189\u5e94\u8be5\u7531\u6709\u795e\u7ecf\u808c\u8089\u75be\u75c5\u7ecf\u9a8c\u7684\u4e34\u5e8a\u533b\u751f\u8fdb\u884c\u7ba1\u7406\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u67d0\u4e9b\u9ebb\u9189\u5242\uff0c\u7279\u522b\u662f\u7425\u73c0\u9170\u80c6\u78b1\uff0c\u901a\u5e38\u5e94\u907f\u514d\u4f7f\u7528\uff0c\u56e0\u4e3a\u5b83\u4eec\u53ef\u80fd\u4f1a\u5f15\u53d1 DMD \u60a3\u8005\u51fa\u73b0\u4e25\u91cd\u7684\u9ad8\u94be\u8840\u75c7\u548c\u5371\u53ca\u751f\u547d\u7684\u5fc3\u810f\u5e76\u53d1\u75c7\u3002.<\/strong> \u7531\u4e8e\u5b58\u5728\u9ebb\u9189\u8bf1\u53d1\u6a2a\u7eb9\u808c\u6eb6\u89e3\u7684\u98ce\u9669\uff0c\u6325\u53d1\u6027\u5438\u5165\u9ebb\u9189\u5242\u7684\u4f7f\u7528\u4e5f\u9700\u8c28\u614e\u3002\u76ee\u524d\u7684\u9ebb\u9189\u6307\u5357\u5efa\u8bae\u5728\u9002\u5f53\u60c5\u51b5\u4e0b\u91c7\u7528\u5168\u9759\u8109\u9ebb\u9189\uff08TIVA\uff09\u3002\u4e86\u89e3\u66f4\u591a\uff1a&nbsp;<a href=\"https:\/\/dmdwarrior.com\/zh\/dmd-surgery-anesthesia\/\" target=\"_blank\" rel=\"noreferrer noopener\">DMD\u60a3\u8005\u9ebb\u9189\u4e0b\u624b\u672f<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"step-2-endoscopic-examination\" class=\"wp-block-heading\">\u7b2c\u4e8c\u6b65\uff1a\u5185\u955c\u68c0\u67e5<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5c06\u4e00\u6839\u8f6f\u5f0f\u5185\u7aa5\u955c\u8f7b\u8f7b\u5730\u4ece\u53e3\u8154\u63d2\u5165\u80c3\u90e8\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u533b\u751f\u68c0\u67e5\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u98df\u7ba1<\/li>\n\n\n\n<li>\u80c3<\/li>\n\n\n\n<li>\u80c3\u58c1<\/li>\n\n\n\n<li>\u5408\u9002\u7684\u63d2\u5165\u90e8\u4f4d<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5185\u7aa5\u955c\u8fd8\u53ef\u4ee5\u4f7f\u80c3\u90e8\u81a8\u80c0\uff0c\u4f7f\u5176\u7d27\u8d34\u8179\u58c1\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"step-3-tube-placement\" class=\"wp-block-heading\">\u6b65\u9aa4\u4e09\uff1a\u5bfc\u7ba1\u653e\u7f6e<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5728\u76ae\u80a4\u4e0a\u505a\u4e00\u4e2a\u5c0f\u5207\u53e3\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5728\u5185\u7aa5\u955c\u7684\u5f15\u5bfc\u4e0b\uff0c\u5582\u98df\u7ba1\u76f4\u63a5\u8fdb\u5165\u80c3\u90e8\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5927\u591a\u6570 PEG \u7ba1\u90fd\u6709\u4e00\u4e2a\u5185\u90e8\u56fa\u5b9a\u7f13\u51b2\u57ab\uff0c\u6709\u52a9\u4e8e\u5c06\u7ba1\u5b50\u56fa\u5b9a\u5230\u4f4d\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"step-4-recovery\" class=\"wp-block-heading\">\u7b2c\u56db\u6b65\uff1a\u6062\u590d<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u60a3\u8005\u9700\u63a5\u53d7\u4e25\u5bc6\u76d1\u6d4b\uff0c\u76d1\u6d4b\u9879\u76ee\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u547c\u5438\u7a33\u5b9a\u6027<\/li>\n\n\n\n<li>\u5fc3\u5f8b<\/li>\n\n\n\n<li>\u75bc\u75db\u63a7\u5236<\/li>\n\n\n\n<li>\u51fa\u8840<\/li>\n\n\n\n<li>\u611f\u67d3<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u513f\u7ae5\u5728\u51e0\u4e2a\u5c0f\u65f6\u5185\u5f00\u59cb\u63a5\u53d7\u6c34\u5582\u517b\uff0c\u7136\u540e\u6839\u636e\u673a\u6784\u89c4\u5b9a\u8fdb\u884c\u7ba1\u9972\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"what-happens-during-the-hospital-stay\" class=\"wp-block-heading\">\u4f4f\u9662\u671f\u95f4\u4f1a\u53d1\u751f\u4ec0\u4e48\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5927\u591a\u6570\u60a3\u8005\u4f1a\u5728\u533b\u9662\u505c\u7559\u4e00\u5230\u4e09\u5929\uff0c\u4f46\u8fd9\u53d6\u51b3\u4e8e\u547c\u5438\u529f\u80fd\u548c\u5f53\u5730\u7684\u533b\u7597\u5b9e\u8df5\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f4f\u9662\u671f\u95f4\uff0c\u5bb6\u5c5e\u4f1a\u4e86\u89e3\u5230\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u7ba1\u9053\u6e05\u6d17<\/li>\n\n\n\n<li>\u5582\u517b\u6280\u5de7<\/li>\n\n\n\n<li>\u836f\u7269\u7ba1\u7406<\/li>\n\n\n\n<li>\u51b2\u6d17\u7a0b\u5e8f<\/li>\n\n\n\n<li>\u8bc6\u522b\u5e76\u53d1\u75c7<\/li>\n\n\n\n<li>\u7d27\u6025\u8054\u7cfb\u7a0b\u5e8f<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u6559\u80b2\u662f\u6210\u529f\u8fdb\u884cPEG\u7ba1\u7406\u7684\u6700\u91cd\u8981\u65b9\u9762\u4e4b\u4e00\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"does-peg-placement-hurt\" class=\"wp-block-heading\">PEG\u7f6e\u7ba1\u672f\u4f1a\u75db\u5417\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>DMD\u60a3\u8005\u884cPEG\u7ba1\u7f6e\u5165\u672f\u540e\u75bc\u75db\u901a\u5e38\u4e3a\u8f7b\u5ea6\u81f3\u4e2d\u5ea6\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5927\u591a\u6570\u4e0d\u9002\u75c7\u72b6\u4f1a\u5728\u6700\u521d\u51e0\u5929\u51fa\u73b0\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5e38\u89c1\u75c7\u72b6\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u8f7b\u5fae\u8179\u90e8\u75bc\u75db<\/li>\n\n\n\n<li>\u63d2\u5165\u90e8\u4f4d\u5468\u56f4\u6709\u538b\u75db<\/li>\n\n\n\n<li>\u6682\u65f6\u6027\u8179\u80c0<\/li>\n\n\n\n<li>\u53d8\u6362\u59ff\u52bf\u65f6\u808c\u8089\u4e0d\u9002<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u75bc\u75db\u901a\u5e38\u4f1a\u5728\u7b2c\u4e00\u5468\u5185\u663e\u8457\u51cf\u8f7b\u3002\u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/pain-management-in-duchenne-muscular-dystrophy\/\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u75bc\u75db\u7ba1\u7406<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u533b\u751f\u901a\u5e38\u5efa\u8bae\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5730\u897f\u6cee\u3001\u4f9d\u6258\u54aa\u916f\u3001\u6c2f\u80fa\u916e\u3001\u7532\u5df1\u59a5\u3001\u54aa\u8fbe\u5511\u4ed1\u3001\u4e19\u6cca\u915a\u3001\u786b\u55b7\u59a5\u94a0<\/li>\n\n\n\n<li>\u5982\u6709\u9700\u8981\uff0c\u53ef\u4f7f\u7528\u9002\u5f53\u7684\u5904\u65b9\u6b62\u75db\u836f\u3002<\/li>\n\n\n\n<li>\u8f7b\u67d4\u7684\u52a8\u4f5c<\/li>\n\n\n\n<li>\u4ed4\u7ec6\u6e05\u6d01\u4f24\u53e3<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u6301\u7eed\u6027\u6216\u52a0\u5267\u7684\u75bc\u75db\u5e94\u53ca\u65f6\u5c31\u533b\u8bc4\u4f30\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"what-are-the-risks-of-peg-tube-placement-in-duchenne\" class=\"wp-block-heading\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u884c\u80c3\u9020\u7618\u672f\u7684\u98ce\u9669\u6709\u54ea\u4e9b\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u4efb\u4f55\u533b\u7597\u7a0b\u5e8f\u90fd\u5b58\u5728\u6f5c\u5728\u98ce\u9669\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5e78\u8fd0\u7684\u662f\uff0c\u7531\u7ecf\u9a8c\u4e30\u5bcc\u7684\u56e2\u961f\u4e3a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u653e\u7f6e\u80c3\u9020\u7618\u7ba1\u65f6\uff0c\u4e25\u91cd\u5e76\u53d1\u75c7\u4ecd\u7136\u76f8\u5bf9\u5c11\u89c1\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"common-minor-complications\" class=\"wp-block-heading\">\u5e38\u89c1\u8f7b\u5fae\u5e76\u53d1\u75c7<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5c0f\u95ee\u9898\u6bd4\u5927\u5e76\u53d1\u75c7\u8981\u5e38\u89c1\u5f97\u591a\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f8b\u5982\uff1a<\/p>\n\n\n\n<h3 id=\"skin-irritation\" class=\"wp-block-heading\">\u76ae\u80a4\u523a\u6fc0<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8f93\u6db2\u7ba1\u5468\u56f4\u5728\u6108\u5408\u8fc7\u7a0b\u4e2d\u53ef\u80fd\u4f1a\u51fa\u73b0\u53d1\u7ea2\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u9002\u5f53\u7684\u6e05\u6d01\u901a\u5e38\u53ef\u4ee5\u6d88\u9664\u8f7b\u5fae\u7684\u523a\u6fc0\u75c7\u72b6\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"leakage\" class=\"wp-block-heading\">\u6cc4\u6f0f<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5c11\u91cf\u80c3\u6db2\u5076\u5c14\u4f1a\u4ece\u5bfc\u7ba1\u5468\u56f4\u6e17\u6f0f\u51fa\u6765\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8c03\u6574\u5bfc\u7ba1\u4f4d\u7f6e\u6216\u6577\u6599\u901a\u5e38\u53ef\u4ee5\u89e3\u51b3\u95ee\u9898\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"granulation-tissue\" class=\"wp-block-heading\">\u8089\u82bd\u7ec4\u7ec7<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f24\u53e3\u5468\u56f4\u53ef\u80fd\u4f1a\u5f62\u6210\u8fc7\u591a\u7684\u6108\u5408\u7ec4\u7ec7\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u867d\u7136\u770b\u8d77\u6765\u5f88\u5413\u4eba\uff0c\u4f46\u8089\u82bd\u7ec4\u7ec7\u901a\u5e38\u662f\u826f\u6027\u7684\uff0c\u5fc5\u8981\u65f6\u901a\u5e38\u53ef\u4ee5\u7528\u5c40\u90e8\u7597\u6cd5\u6216\u70e7\u707c\u6cd5\u8fdb\u884c\u6cbb\u7597\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"tube-blockage\" class=\"wp-block-heading\">\u7ba1\u9053\u5835\u585e<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u836f\u7269\u6b8b\u7559\u6216\u6d53\u7a20\u7684\u8425\u517b\u6db2\u53ef\u80fd\u4f1a\u5835\u585e\u5bfc\u7ba1\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5582\u98df\u524d\u540e\u8fdb\u884c\u5e38\u89c4\u51b2\u6d17\u53ef\u663e\u8457\u964d\u4f4e\u5835\u585e\u98ce\u9669\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"serious-complications\" class=\"wp-block-heading\">\u4e25\u91cd\u5e76\u53d1\u75c7<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u867d\u7136\u4e0d\u5e38\u89c1\uff0c\u4f46\u4e34\u5e8a\u533b\u751f\u4f1a\u5bc6\u5207\u76d1\u6d4b\u4ee5\u4e0b\u60c5\u51b5\uff1a<\/p>\n\n\n\n<h3 id=\"infection\" class=\"wp-block-heading\">\u611f\u67d3<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6807\u5fd7\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u53d1\u70e7<\/li>\n\n\n\n<li>\u7ea2\u80bf\u52a0\u5267<\/li>\n\n\n\n<li>\u80bf\u80c0<\/li>\n\n\n\n<li>\u8113<\/li>\n\n\n\n<li>\u4e25\u91cd\u538b\u75db<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u65e9\u671f\u4f7f\u7528\u6297\u751f\u7d20\u6cbb\u7597\u901a\u5e38\u6709\u6548\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"peritonitis\" class=\"wp-block-heading\">\u8179\u819c\u708e<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u80c3\u5185\u5bb9\u7269\u6f0f\u5165\u8179\u8154\u7684\u60c5\u51b5\u867d\u7136\u7f55\u89c1\uff0c\u4f46\u9700\u8981\u7acb\u5373\u5c31\u533b\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u75c7\u72b6\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5267\u70c8\u8179\u75db<\/li>\n\n\n\n<li>\u53d1\u70e7<\/li>\n\n\n\n<li>\u8179\u90e8\u50f5\u786c<\/li>\n\n\n\n<li>\u5455\u5410<\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"bleeding\" class=\"wp-block-heading\">\u51fa\u8840<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u690d\u5165\u540e\u7acb\u5373\u51fa\u73b0\u5c11\u91cf\u51fa\u8840\u8f83\u4e3a\u5e38\u89c1\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6301\u7eed\u6216\u5927\u91cf\u51fa\u8840\u5c5e\u4e8e\u4e0d\u5bfb\u5e38\u60c5\u51b5\uff0c\u9700\u8981\u7d27\u6025\u8bc4\u4f30\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"respiratory-complications\" class=\"wp-block-heading\">\u547c\u5438\u7cfb\u7edf\u5e76\u53d1\u75c7<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u7531\u4e8e\u547c\u5438\u808c\u65e0\u529b\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\u5f88\u5e38\u89c1\uff0c\u533b\u751f\u4f1a\u5bc6\u5207\u76d1\u6d4b\u4ee5\u4e0b\u60c5\u51b5\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u80ba\u4e0d\u5f20<\/li>\n\n\n\n<li>\u80ba\u708e<\/li>\n\n\n\n<li>\u56f0\u96be\u6c14\u9053\u7ba1\u7406<\/li>\n\n\n\n<li>\u9ebb\u9189\u540e\u901a\u6c14\u91cf\u51cf\u5c11<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5fc5\u8981\u65f6\u4f7f\u7528\u54b3\u55fd\u8f85\u52a9\u88c5\u7f6e\u548c\u65e0\u521b\u901a\u6c14\uff0c\u5927\u5927\u63d0\u9ad8\u4e86\u672f\u540e\u5b89\u5168\u6027\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"can-people-with-dmd-still-eat-after-getting-a-gastrostomy-tube\" class=\"wp-block-heading\">\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u7684\u4eba\u5728\u63a5\u53d7\u80c3\u9020\u7618\u7ba1\u624b\u672f\u540e\u8fd8\u80fd\u8fdb\u98df\u5417\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5173\u4e8e DMD \u60a3\u8005\u4f7f\u7528 PEG \u7ba1\u7684\u6700\u5927\u8bef\u89e3\u4e4b\u4e00\u662f\uff0c\u7ecf\u53e3\u8fdb\u98df\u4f1a\u7acb\u5373\u505c\u6b62\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e8b\u5b9e\u4e0a\uff0c\u8bb8\u591a\u60a3\u8005\u5728\u63a5\u53d7 PEG \u624b\u672f\u540e\u6570\u6708\u751a\u81f3\u6570\u5e74\u5185\u4ecd\u80fd\u6b63\u5e38\u8fdb\u98df\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u53e3\u670d\u5582\u517b\u662f\u5426\u5b89\u5168\u53d6\u51b3\u4e8e\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u541e\u54bd\u529f\u80fd<\/li>\n\n\n\n<li>\u5438\u5165\u98ce\u9669<\/li>\n\n\n\n<li>\u8425\u517b\u9700\u6c42<\/li>\n\n\n\n<li>\u8a00\u8bed\u6cbb\u7597\u5e08\u7684\u5efa\u8bae<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u4eba\u4f7f\u7528\u7ba1\u5b50\u6765\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u63a5\u53d7\u591c\u95f4\u8425\u517b<\/li>\n\n\n\n<li>\u670d\u7528\u836f\u7269<\/li>\n\n\n\n<li>\u4fdd\u6301\u6c34\u5206\u5145\u8db3<\/li>\n\n\n\n<li>\u8865\u5145\u5361\u8def\u91cc<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u540c\u65f6\u8fd8\u80fd\u548c\u5bb6\u4eba\u4e00\u8d77\u4eab\u7528\u4ed6\u4eec\u6700\u559c\u6b22\u7684\u98df\u7269\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u79cd\u65b9\u6cd5\u901a\u5e38\u53ef\u4ee5\u51cf\u8f7b\u538b\u529b\uff0c\u56e0\u4e3a\u60a3\u8005\u4e0d\u518d\u611f\u5230\u6bcf\u9910\u90fd\u5fc5\u987b\u6444\u5165\u8db3\u591f\u7684\u70ed\u91cf\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"emotional-impact-on-families\" class=\"wp-block-heading\">\u5bf9\u5bb6\u5ead\u7684\u60c5\u611f\u5f71\u54cd<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5bf9\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\uff0c\u662f\u5426\u8fdb\u884c\u80c3\u9020\u7618\u672f\u7684\u51b3\u5b9a\u5f88\u5c11\u4ec5\u4ec5\u57fa\u4e8e\u533b\u5b66\u8bc1\u636e\u3002\u8fd9\u5bf9\u60a3\u8005\u5bb6\u5ead\u6765\u8bf4\u4e5f\u662f\u4e00\u4e2a\u60c5\u611f\u4e0a\u7684\u91cd\u8981\u91cc\u7a0b\u7891\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bb6\u957f\u7ecf\u5e38\u8868\u8fbe\u7684\u62c5\u5fe7\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u201c\u6211\u7684\u5b69\u5b50\u4f1a\u89c9\u5f97\u81ea\u5df1\u548c\u540c\u9f84\u4eba\u4e0d\u4e00\u6837\u5417\uff1f\u201d<\/li>\n\n\n\n<li>\u201c\u4ed6\u4eec\u8fd8\u80fd\u518d\u6b21\u4eab\u53d7\u7f8e\u98df\u5417\uff1f\u201d<\/li>\n\n\n\n<li>\u201c\u6211\u4eec\u662f\u4e0d\u662f\u7b49\u5f97\u592a\u4e45\u4e86\uff1f\u201d<\/li>\n\n\n\n<li>\u201c\u6211\u4eec\u8981\u653e\u5f03\u5417\uff1f\u201d<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e9b\u611f\u53d7\u5b8c\u5168\u53ef\u4ee5\u7406\u89e3\u3002\u7136\u800c\uff0c\u8bb8\u591a\u5bb6\u5ead\u53cd\u6620\uff0c\u7ecf\u8fc7\u6700\u521d\u7684\u9002\u5e94\u671f\u540e\uff0c\u80c3\u9020\u7618\u7ba1\u80fd\u663e\u8457\u51cf\u8f7b\u5b69\u5b50\u5728\u7528\u9910\u65f6\u7684\u7126\u8651\u3002\u5b69\u5b50\u4eec\u901a\u5e38\u7cbe\u529b\u66f4\u5145\u6c9b\uff0c\u4f53\u91cd\u589e\u957f\u4e5f\u66f4\u6b63\u5e38\uff0c\u800c\u4e14\u5403\u5b8c\u996d\u6240\u9700\u7684\u65f6\u95f4\u4e5f\u66f4\u5c11\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u533b\u7597\u56e2\u961f\u4e0d\u4ec5\u5e94\u8be5\u63d0\u4f9b\u533b\u7597\u6307\u5bfc\uff0c\u8fd8\u5e94\u8be5\u63d0\u4f9b\u5fc3\u7406\u652f\u6301\uff0c\u786e\u4fdd\u5bb6\u5c5e\u7406\u89e3 PEG \u7ba1\u662f\u6539\u5584\u8212\u9002\u5ea6\u3001\u8425\u517b\u548c\u751f\u6d3b\u8d28\u91cf\u7684\u5de5\u5177\uff0c\u800c\u4e0d\u662f\u5931\u8d25\u7684\u6807\u5fd7\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"key-takeaways-1\" class=\"wp-block-heading\">\u8981\u70b9\u603b\u7ed3<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u7531\u719f\u6089 DMD \u7684\u7ecf\u9a8c\u4e30\u5bcc\u7684\u56e2\u961f\u8fdb\u884c PEG \u7ba1\u7f6e\u5165\u672f\u901a\u5e38\u662f\u5b89\u5168\u7684\u3002.<\/strong><\/li>\n\n\n\n<li>\u4e0e\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u540e\u7684\u7d27\u6025\u5b89\u7f6e\u76f8\u6bd4\uff0c\u65e9\u671f\u5b89\u7f6e\u901a\u5e38\u80fd\u5e26\u6765\u66f4\u597d\u7684\u7ed3\u679c\u3002.<\/li>\n\n\n\n<li><strong>\u624b\u672f\u524d\u5fc5\u987b\u8fdb\u884c\u5168\u9762\u7684\u5fc3\u810f\u3001\u547c\u5438\u548c\u8425\u517b\u8bc4\u4f30\u3002.<\/strong><\/li>\n\n\n\n<li>\u5927\u591a\u6570\u60a3\u8005\u672f\u540e\u4ec5\u4f1a\u611f\u5230\u8f7b\u5fae\u4e0d\u9002\uff0c\u4f4f\u9662\u65f6\u95f4\u4e3a\u4e00\u81f3\u4e09\u5929\u3002.<\/li>\n\n\n\n<li><strong>\u8bb8\u591a\u60a3\u8005\u5728\u63a5\u53d7 PEG \u7ba1\u6cbb\u7597\u540e\u4ecd\u7ee7\u7eed\u7ecf\u53e3\u8fdb\u98df\uff0c\u4e3b\u8981\u76ee\u7684\u662f\u8865\u5145\u8425\u517b\u3001\u6c34\u5206\u548c\u836f\u7269\u3002.<\/strong><\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"nutrition-after-peg-placement-in-duchenne-muscular-dystrophy\" class=\"wp-block-heading\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u884c\u80c3\u9020\u7618\u672f\u540e\u7684\u8425\u517b\u72b6\u51b5<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u7684\u6700\u5927\u4f18\u52bf\u4e4b\u4e00\u662f\uff0c\u5373\u4f7f\u541e\u54bd\u53d8\u5f97\u8d8a\u6765\u8d8a\u56f0\u96be\uff0c\u4e5f\u80fd\u7ef4\u6301\u7a33\u5b9a\u7684\u8425\u517b\u6444\u5165\u3002.<\/strong> \u826f\u597d\u7684\u8425\u517b\u4e0d\u4ec5\u4ec5\u5173\u4e4e\u7ef4\u6301\u4f53\u91cd\uff1b\u5b83\u5728\u7ef4\u6301\u808c\u8089\u529f\u80fd\u3001\u652f\u6301\u514d\u75ab\u7cfb\u7edf\u3001\u4fc3\u8fdb\u4f24\u53e3\u6108\u5408\u3001\u7ef4\u62a4\u9aa8\u9abc\u5065\u5eb7\u4ee5\u53ca\u5e2e\u52a9\u4eba\u4eec\u66f4\u6709\u6548\u5730\u62b5\u6297\u547c\u5438\u9053\u611f\u67d3\u65b9\u9762\u90fd\u53d1\u6325\u7740\u81f3\u5173\u91cd\u8981\u7684\u4f5c\u7528\u3002\u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/nutrition-in-duchenne\/\" target=\"_blank\" data-type=\"post\" data-id=\"2393\" rel=\"noreferrer noopener\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u8425\u517b<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u5728\u6574\u4e2a\u75c5\u7a0b\u4e2d\u90fd\u5b58\u5728\u72ec\u7279\u7684\u8425\u517b\u6311\u6218\u3002\u513f\u7ae5\u65f6\u671f\uff0c\u957f\u671f\u4f7f\u7528\u76ae\u8d28\u7c7b\u56fa\u9187\u6cbb\u7597\u53ef\u80fd\u5bfc\u81f4\u4f53\u91cd\u8fc7\u5ea6\u589e\u52a0\uff0c\u800c\u9752\u5c11\u5e74\u548c\u6210\u5e74\u60a3\u8005\u5219\u5e38\u5e38\u9762\u4e34\u76f8\u53cd\u7684\u95ee\u9898\u2014\u2014\u7531\u4e8e\u541e\u54bd\u56f0\u96be\u3001\u8fdb\u98df\u65f6\u75b2\u52b3\u548c\u547c\u5438\u8d39\u529b\u7b49\u539f\u56e0\u5bfc\u81f4\u8fdb\u884c\u6027\u4f53\u91cd\u4e0b\u964d\u3002. <strong>\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\uff0c\u5f53\u4ec5\u9760\u53e3\u670d\u6444\u5165\u4e0d\u518d\u8db3\u591f\u65f6\uff0cPEG \u7ba1\u63d0\u4f9b\u4e86\u4e00\u79cd\u53ef\u9760\u7684\u8f93\u9001\u5361\u8def\u91cc\u3001\u6db2\u4f53\u3001\u7ef4\u751f\u7d20\u3001\u77ff\u7269\u8d28\u548c\u836f\u7269\u7684\u65b9\u6cd5\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8425\u517b\u65b9\u6848\u5e94\u59cb\u7ec8\u4e2a\u4f53\u5316\u3002\u6ca1\u6709\u4e00\u79cd\u901a\u7528\u7684\u5582\u517b\u65b9\u6848\u9002\u7528\u4e8e\u6240\u6709\u60a3\u8005\u3002\u4e00\u4f4d\u719f\u6089\u795e\u7ecf\u808c\u8089\u75be\u75c5\u7684\u6ce8\u518c\u8425\u517b\u5e08\u5e94\u6839\u636e\u60a3\u8005\u7684\u5e74\u9f84\u3001\u8eab\u4f53\u6210\u5206\u3001\u6d3b\u52a8\u6c34\u5e73\u3001\u76ae\u8d28\u7c7b\u56fa\u9187\u4f7f\u7528\u60c5\u51b5\u3001\u5fc3\u810f\u529f\u80fd\u3001\u547c\u5438\u72b6\u51b5\u548c\u80c3\u80a0\u9053\u75c7\u72b6\uff0c\u8ba1\u7b97\u5176\u6bcf\u65e5\u6240\u9700\u7684\u70ed\u91cf\u3001\u86cb\u767d\u8d28\u3001\u6db2\u4f53\u548c\u5fae\u91cf\u8425\u517b\u7d20\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"what-foods-can-be-given-through-a-peg-tube\" class=\"wp-block-heading\">\u54ea\u4e9b\u98df\u7269\u53ef\u4ee5\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u5582\u98df\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u5bb6\u5ead\u60f3\u77e5\u9053\uff0c\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u60a3\u8005\u662f\u5426\u53ea\u80fd\u901a\u8fc7\u80c3\u9020\u7618\u7ba1 (PEG) \u4f7f\u7528\u7279\u5236\u7684\u8425\u517b\u914d\u65b9\u3002\u5b9e\u9645\u4e0a\uff0c\u8425\u517b\u65b9\u6848\u4f1a\u6839\u636e\u60a3\u8005\u7684\u5177\u4f53\u75c5\u60c5\u3001\u541e\u54bd\u80fd\u529b\u3001\u6d88\u5316\u8010\u53d7\u7a0b\u5ea6\u4ee5\u53ca\u533b\u7597\u56e2\u961f\u7684\u6307\u5bfc\u800c\u6709\u6240\u4e0d\u540c\u3002.<\/p>\n\n\n\n<h3 id=\"commercial-enteral-nutrition-formulas\" class=\"wp-block-heading\">\u5546\u4e1a\u80a0\u5185\u8425\u517b\u914d\u65b9<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5927\u591a\u6570\u60a3\u8005\u6700\u521d\u63a5\u53d7\u7684\u662f\u5e02\u552e\u7684\u80a0\u5185\u8425\u517b\u914d\u65b9\uff0c\u56e0\u4e3a\u8fd9\u4e9b\u914d\u65b9\u80fd\u591f\u63d0\u4f9b\u5168\u9762\u5747\u8861\u7684\u8425\u517b\uff0c\u5e76\u964d\u4f4e\u6c61\u67d3\u98ce\u9669\u3002\u8fd9\u4e9b\u914d\u65b9\u65e8\u5728\u63d0\u4f9b\u9002\u91cf\u7684\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u86cb\u767d\u8d28<\/li>\n\n\n\n<li>\u78b3\u6c34\u5316\u5408\u7269<\/li>\n\n\n\n<li>\u5065\u5eb7\u8102\u80aa<\/li>\n\n\n\n<li>\u7ef4\u751f\u7d20<\/li>\n\n\n\n<li>\u77ff\u7269<\/li>\n\n\n\n<li>\u7535\u89e3\u8d28<\/li>\n\n\n\n<li>\u7ea4\u7ef4\uff08\u5982\u9002\u7528\uff09<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e5f\u4e3a\u7cd6\u5c3f\u75c5\u60a3\u8005\u3001\u4fbf\u79d8\u60a3\u8005\u3001\u98df\u7269\u8fc7\u654f\u60a3\u8005\u6216\u9ad8\u70ed\u91cf\u9700\u6c42\u4eba\u7fa4\u63d0\u4f9b\u7279\u6b8a\u914d\u65b9\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"homemade-blenderized-tube-feeding\" class=\"wp-block-heading\">\u81ea\u5236\u6405\u62cc\u673a\u7ba1\u9972<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6709\u4e9b\u5bb6\u5ead\u9009\u62e9\u7528\u5168\u98df\u7269\u5236\u4f5c\u7684\u6405\u62cc\u673a\u6599\u7406\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f8b\u5982\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u719f\u852c\u83dc<\/li>\n\n\n\n<li>\u6c34\u679c<\/li>\n\n\n\n<li>\u7626\u8089\u5bb6\u79bd<\/li>\n\n\n\n<li>\u9c7c<\/li>\n\n\n\n<li>\u7c73<\/li>\n\n\n\n<li>\u9ea6\u7247<\/li>\n\n\n\n<li>\u9178\u5976<\/li>\n\n\n\n<li>\u5065\u5eb7\u6cb9\u8102<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u7136\u800c\uff0c\u81ea\u5236\u9972\u6599\u9700\u8981\u7cbe\u5fc3\u51c6\u5907\uff0c\u4ee5\u786e\u4fdd\u8425\u517b\u5168\u9762\u3001\u7a20\u5ea6\u9002\u5b9c\u4e14\u5b89\u5168\u3002\u6405\u62cc\u4e0d\u5747\u5300\u7684\u98df\u7269\u53ef\u80fd\u4f1a\u5835\u585e\u9972\u7ba1\uff0c\u800c\u50a8\u5b58\u4e0d\u5f53\u5219\u4f1a\u589e\u52a0\u7ec6\u83cc\u6c61\u67d3\u7684\u98ce\u9669\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u56e0\u6b64\uff0c\u6405\u62cc\u5f0f\u5582\u517b\u53ea\u80fd\u5728\u5408\u683c\u8425\u517b\u5e08\u7684\u76d1\u7763\u4e0b\u8fdb\u884c\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"hydration\" class=\"wp-block-heading\">\u8865\u6c34<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5145\u8db3\u7684\u6c34\u5206\u6444\u5165\u540c\u6837\u91cd\u8981\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7531\u4e8e\u541e\u54bd\u56f0\u96be\u800c\u96be\u4ee5\u6444\u5165\u8db3\u591f\u7684\u6db2\u4f53\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u80c3\u9020\u7618\u7ba1\u4f7f\u62a4\u7406\u4eba\u5458\u80fd\u591f\u63d0\u4f9b\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u6c34<\/li>\n\n\n\n<li>\u5fc5\u8981\u65f6\u53ef\u4f7f\u7528\u53e3\u670d\u8865\u6db2\u76d0<\/li>\n\n\n\n<li>\u708e\u70ed\u5929\u6c14\u9700\u8865\u5145\u6c34\u5206<\/li>\n\n\n\n<li>\u751f\u75c5\u671f\u95f4\u7684\u8865\u6c34<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u4fdd\u6301\u6c34\u5206\u5145\u8db3\u6709\u52a9\u4e8e\u7f13\u89e3\u4fbf\u79d8\u3001\u652f\u6301\u80be\u810f\u529f\u80fd\u5e76\u6539\u5584\u6574\u4f53\u5065\u5eb7\u72b6\u51b5\u3002\u4e86\u89e3\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/constipation-in-duchenne-muscular-dystrophy\/\" data-type=\"post\" data-id=\"7703\">DMD\u60a3\u8005\u7684\u4fbf\u79d8<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"can-a-peg-tube-prevent-weight-loss-in-duchenne-muscular-dystrophy\" class=\"wp-block-heading\">PEG\u7ba1\u80fd\u5426\u9884\u9632\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u4f53\u91cd\u4e0b\u964d\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u80c3\u9020\u7618\u7ba1\u7684\u4e3b\u8981\u76ee\u6807\u4e4b\u4e00\u662f\u9632\u6b62\u8fdb\u884c\u6027\u8425\u517b\u4e0d\u826f\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u591a\u9879\u89c2\u5bdf\u6027\u7814\u7a76\u8868\u660e\uff0c\u4ee5\u4e0b\u65b9\u9762\u6709\u6240\u6539\u5584\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4f53\u91cd<\/li>\n\n\n\n<li>\u4f53\u91cd\u6307\u6570\uff08BMI\uff09<\/li>\n\n\n\n<li>\u8425\u517b\u72b6\u51b5<\/li>\n\n\n\n<li>\u8865\u6c34<\/li>\n\n\n\n<li>\u836f\u7269\u4f9d\u4ece\u6027<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u80c3\u9020\u7618\u672f\u540e\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u91cd\u8981\u7684\u662f\uff0c\u4e34\u5e8a\u533b\u751f\u7684\u76ee\u6807\u662f\u5728\u51fa\u73b0\u4e25\u91cd\u4f53\u91cd\u4e0b\u964d\u4e4b\u524d\u8fdb\u884c\u5e72\u9884\u3002.<\/strong> \u4e00\u65e6\u51fa\u73b0\u4e25\u91cd\u7684\u8425\u517b\u4e0d\u826f\uff0c\u91cd\u5efa\u808c\u8089\u8d28\u91cf\u548c\u7ea0\u6b63\u8425\u517b\u4e0d\u8db3\u5c31\u4f1a\u53d8\u5f97\u66f4\u52a0\u56f0\u96be\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8425\u517b\u72b6\u51b5\u8f83\u597d\u7684\u60a3\u8005\u901a\u5e38\u4f1a\u7ecf\u5386\u4ee5\u4e0b\u60c5\u51b5\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4f24\u53e3\u6108\u5408\u6539\u5584<\/li>\n\n\n\n<li>\u66f4\u597d\u7684\u514d\u75ab\u529f\u80fd<\/li>\n\n\n\n<li>\u66f4\u9ad8\u7684\u80fd\u91cf\u6c34\u5e73<\/li>\n\n\n\n<li>\u51cf\u8f7b\u75b2\u52b3<\/li>\n\n\n\n<li>\u547c\u5438\u529f\u80fd\u66f4\u52a0\u7a33\u5b9a<\/li>\n\n\n\n<li>\u5bf9\u611f\u67d3\u7684\u8010\u53d7\u6027\u63d0\u9ad8<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u867d\u7136\u5728 DMD \u4e2d\u4f7f\u7528 PEG \u7ba1\u4e0d\u80fd\u963b\u6b62\u75be\u75c5\u8fdb\u5c55\uff0c\u4f46\u53ef\u4ee5\u5e2e\u52a9\u51cf\u5c11\u4e0e\u8425\u517b\u4e0d\u826f\u76f8\u5173\u7684\u5e76\u53d1\u75c7\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"daily-care-of-a-gastrostomy-tube-at-home\" class=\"wp-block-heading\">\u5728\u5bb6\u8fdb\u884c\u80c3\u9020\u7618\u7ba1\u7684\u65e5\u5e38\u62a4\u7406<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u63d2\u7ba1\u90e8\u4f4d\u6108\u5408\u540e\uff0c\u62a4\u7406\u80c3\u9020\u7618\u7ba1\u901a\u5e38\u4f1a\u6210\u4e3a\u5bb6\u5ead\u65e5\u5e38\u751f\u6d3b\u7684\u4e00\u90e8\u5206\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6b63\u786e\u7684\u62a4\u7406\u6709\u52a9\u4e8e\u6700\u5927\u9650\u5ea6\u5730\u51cf\u5c11\u611f\u67d3\u3001\u6e17\u6f0f\u3001\u76ae\u80a4\u523a\u6fc0\u548c\u5bfc\u7ba1\u5835\u585e\u3002.<\/p>\n\n\n\n<h3 id=\"cleaning-the-site\" class=\"wp-block-heading\">\u573a\u5730\u6e05\u7406<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e00\u822c\u60c5\u51b5\u4e0b\uff0c\u5e94\u6bcf\u5929\u4f7f\u7528\u4ee5\u4e0b\u65b9\u6cd5\u6e05\u6d01\u5bfc\u7ba1\u5468\u56f4\u7684\u76ae\u80a4\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u6e29\u548c\u7684\u80a5\u7682<\/li>\n\n\n\n<li>\u6e29\u6c34<\/li>\n\n\n\n<li>\u5e72\u51c0\u67d4\u8f6f\u7684\u5e03\u6216\u7eb1\u5e03<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u9664\u975e\u533b\u7597\u4fdd\u5065\u63d0\u4f9b\u8005\u7279\u522b\u5efa\u8bae\uff0c\u5426\u5219\u901a\u5e38\u6ca1\u6709\u5fc5\u8981\u4f7f\u7528\u523a\u6fc0\u6027\u5f3a\u7684\u6d88\u6bd2\u5242\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6e05\u6d01\u540e\u5e94\u5c06\u8be5\u533a\u57df\u5f7b\u5e95\u64e6\u5e72\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"rotating-the-tube\" class=\"wp-block-heading\">\u65cb\u8f6c\u7ba1\u5b50<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u6108\u5408\u5b8c\u6210\u540e\uff0c\u5e94\u8f7b\u8f7b\u65cb\u8f6c\u4e00\u4e9b PEG \u7ba1\uff0c\u4ee5\u5e2e\u52a9\u9632\u6b62\u7ec4\u7ec7\u7c98\u8fde\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f46\u662f\uff0c\u6839\u636e\u7ba1\u6750\u8bbe\u8ba1\u7684\u4e0d\u540c\uff0c\u5efa\u8bae\u4e5f\u4f1a\u6709\u6240\u4e0d\u540c\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bb6\u5c5e\u5e94\u59cb\u7ec8\u9075\u5faa\u5236\u9020\u5546\u7684\u8bf4\u660e\u548c\u533b\u7597\u56e2\u961f\u7684\u6307\u5bfc\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"flushing-the-tube\" class=\"wp-block-heading\">\u51b2\u6d17\u7ba1\u5b50<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u5b9a\u671f\u51b2\u6d17\u81f3\u5173\u91cd\u8981\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e00\u822c\u60c5\u51b5\u4e0b\uff0c\u5e94\u8be5\u51b2\u6d17\u7ba1\u9053\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u5582\u98df<\/li>\n\n\n\n<li>\u5582\u98df\u540e<\/li>\n\n\n\n<li>\u7528\u836f\u524d<\/li>\n\n\n\n<li>\u836f\u7269\u670d\u7528\u95f4\u9699<\/li>\n\n\n\n<li>\u670d\u836f\u540e<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u7528\u6c34\u51b2\u6d17\u6709\u52a9\u4e8e\u9632\u6b62\u80a0\u6897\u963b\uff0c\u5e76\u786e\u4fdd\u836f\u7269\u6709\u6548\u5230\u8fbe\u80c3\u90e8\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"monitoring-the-skin\" class=\"wp-block-heading\">\u76ae\u80a4\u76d1\u6d4b<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u7167\u62a4\u8005\u5e94\u6ce8\u610f\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u53d1\u7ea2<\/li>\n\n\n\n<li>\u80bf\u80c0<\/li>\n\n\n\n<li>\u5f15\u6d41<\/li>\n\n\n\n<li>\u96be\u95fb\u7684\u6c14\u5473<\/li>\n\n\n\n<li>\u75bc\u75db<\/li>\n\n\n\n<li>\u51fa\u8840<\/li>\n\n\n\n<li>\u8089\u82bd\u7ec4\u7ec7\u8fc7\u591a<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u53ca\u65e9\u53d1\u73b0\u8fd9\u4e9b\u95ee\u9898\u901a\u5e38\u53ef\u4ee5\u8fdb\u884c\u7b80\u5355\u7684\u6cbb\u7597\uff0c\u907f\u514d\u5e76\u53d1\u75c7\u53d8\u5f97\u66f4\u52a0\u4e25\u91cd\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"giving-medications-through-a-peg-tube\" class=\"wp-block-heading\">\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u7ed9\u836f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\uff0cPEG \u7ba1\u7684\u4e00\u5927\u597d\u5904\u662f\u7b80\u5316\u4e86\u836f\u7269\u7ed9\u836f\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8bb8\u591a\u60a3\u8005\u6bcf\u5929\u670d\u7528\u591a\u79cd\u836f\u7269\uff0c\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u76ae\u8d28\u7c7b\u56fa\u9187<\/li>\n\n\n\n<li>ACE\u6291\u5236\u5242<\/li>\n\n\n\n<li>\u03b2\u53d7\u4f53\u963b\u6ede\u5242<\/li>\n\n\n\n<li>\u7ef4\u751f\u7d20D<\/li>\n\n\n\n<li>\u9499<\/li>\n\n\n\n<li>\u9aa8\u9abc\u5065\u5eb7\u836f\u7269<\/li>\n\n\n\n<li>\u80c3\u80a0\u9053\u836f\u7269<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5982\u679c\u6761\u4ef6\u5141\u8bb8\uff0c\u6700\u597d\u9009\u62e9\u6db2\u4f53\u914d\u65b9\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5982\u679c\u5fc5\u987b\u538b\u788e\u836f\u7247\uff0c\u62a4\u7406\u4eba\u5458\u5e94\u9996\u5148\u786e\u8ba4\u836f\u7269\u53ef\u4ee5\u5b89\u5168\u5730\u8fdb\u884c\u8fd9\u79cd\u6539\u53d8\u3002\u67d0\u4e9b\u7f13\u91ca\u7247\u6216\u80a0\u6eb6\u7247\u7edd\u5bf9\u4e0d\u80fd\u538b\u788e\uff0c\u56e0\u4e3a\u8fd9\u6837\u505a\u4f1a\u6539\u53d8\u836f\u7269\u7684\u5438\u6536\u65b9\u5f0f\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e00\u822c\u800c\u8a00\uff0c\u6bcf\u79cd\u836f\u7269\u5e94\u5206\u5f00\u670d\u7528\uff0c\u5e76\u5728\u4e24\u6b21\u670d\u836f\u4e4b\u95f4\u7528\u6c34\u51b2\u6d17\uff0c\u4ee5\u964d\u4f4e\u5bfc\u7ba1\u5835\u585e\u7684\u98ce\u9669\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"can-a-person-still-enjoy-eating\" class=\"wp-block-heading\">\u4eba\u8fd8\u80fd\u4eab\u53d7\u7f8e\u98df\u5417\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u5728\u63a5\u53d7\u80c3\u9020\u7618\u7ba1\u6cbb\u7597\u540e\uff0c\u6700\u5927\u7684\u60c5\u611f\u62c5\u5fe7\u4e4b\u4e00\u662f\u5bb3\u6015\u5931\u53bb\u8fdb\u98df\u7684\u4e50\u8da3\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5e78\u8fd0\u7684\u662f\uff0c\u8bb8\u591a\u4eba\u4ecd\u7136\u80fd\u591f\u4eab\u53d7\u7ecf\u53e3\u8fdb\u98df\u7684\u4e50\u8da3\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6839\u636e\u541e\u54bd\u5b89\u5168\u6027\uff0c\u60a3\u8005\u4ecd\u7136\u53ef\u4ee5\u8fdb\u98df\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u51b0\u6dc7\u6dcb<\/li>\n\n\n\n<li>\u571f\u8c46\u6ce5<\/li>\n\n\n\n<li>\u8f6f\u610f\u9762<\/li>\n\n\n\n<li>\u9178\u5976<\/li>\n\n\n\n<li>\u5e03\u4e01<\/li>\n\n\n\n<li>\u716e\u719f\u7684\u852c\u83dc<\/li>\n\n\n\n<li>\u8f6f\u679c<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u6709\u4e9b\u60a3\u8005\u5728\u591c\u95f4\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u63a5\u53d7\u989d\u5916\u8425\u517b\u7684\u540c\u65f6\uff0c\u8fd8\u80fd\u5c11\u91cf\u8fdb\u98df\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u8be5\u7b56\u7565\u51cf\u8f7b\u4e86\u60a3\u8005\u5728\u767d\u5929\u7528\u9910\u65f6\u6444\u5165\u8db3\u591f\u70ed\u91cf\u7684\u538b\u529b\uff0c\u540c\u65f6\u5141\u8bb8\u60a3\u8005\u7ee7\u7eed\u53c2\u4e0e\u5bb6\u5ead\u7528\u9910\u548c\u793e\u4ea4\u6d3b\u52a8\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"does-a-feeding-tube-improve-quality-of-life-in-duchenne\" class=\"wp-block-heading\">\u5582\u98df\u7ba1\u80fd\u6539\u5584\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u751f\u6d3b\u8d28\u91cf\u5417\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u8bb8\u591a\u5bb6\u5ead\u6765\u8bf4\uff0c\u7b54\u6848\u662f\u80af\u5b9a\u7684\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u591a\u9879\u89c2\u5bdf\u6027\u7814\u7a76\u62a5\u544a\u663e\u793a\uff0c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u540e\uff0c\u60a3\u8005\u548c\u62a4\u7406\u4eba\u5458\u7684\u751f\u6d3b\u8d28\u91cf\u5747\u6709\u6240\u6539\u5584\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5e38\u89c1\u7684\u76ca\u5904\u5305\u62ec\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u51cf\u5c11\u7528\u9910\u538b\u529b<\/li>\n\n\n\n<li>\u8425\u517b\u72b6\u51b5\u66f4\u4f73<\/li>\n\n\n\n<li>\u51cf\u5c11\u5bf9\u7a92\u606f\u7684\u7126\u8651<\/li>\n\n\n\n<li>\u66f4\u4fbf\u6377\u7684\u7ed9\u836f\u65b9\u5f0f<\/li>\n\n\n\n<li>\u6539\u5584\u8865\u6c34\u6548\u679c<\/li>\n\n\n\n<li>\u51cf\u5c11\u8fdb\u98df\u65f6\u95f4<\/li>\n\n\n\n<li>\u66f4\u591a\u5730\u53c2\u4e0e\u5bb6\u5ead\u6d3b\u52a8<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bb6\u957f\u4eec\u7ecf\u5e38\u53cd\u6620\uff0c\u56e0\u4e3a\u4e0d\u518d\u4ec5\u4ec5\u5173\u6ce8\u5982\u4f55\u8ba9\u5b69\u5b50\u6444\u5165\u8db3\u591f\u7684\u70ed\u91cf\uff0c\u5403\u996d\u53c8\u53d8\u5f97\u6709\u8da3\u8d77\u6765\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u4e8e\u60a3\u8005\u800c\u8a00\uff0c\u6539\u5584\u8425\u517b\u72b6\u51b5\u53ef\u80fd\u6709\u52a9\u4e8e\u63d0\u9ad8\u80fd\u91cf\u6c34\u5e73\u548c\u51cf\u5c11\u75b2\u52b3\uff0c\u5373\u4f7f\u5582\u98df\u7ba1\u4e0d\u4f1a\u6539\u53d8\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u6839\u672c\u8fdb\u5c55\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"practical-advice-for-families\" class=\"wp-block-heading\">\u7ed9\u5bb6\u5ead\u7684\u5b9e\u7528\u5efa\u8bae<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5bf9\u4e8e DMD \u60a3\u8005\uff0c\u662f\u5426\u8fdb\u884c PEG \u7ba1\u690d\u5165\u7684\u51b3\u5b9a\u7edd\u4e0d\u5e94\u8be5\u4ed3\u4fc3\u505a\u51fa\uff0c\u4f46\u4e5f\u4e0d\u5e94\u8be5\u7b49\u5230\u51fa\u73b0\u5371\u673a\u624d\u8fdb\u884c\u3002.<\/strong> \u5373\u4f7f\u76ee\u524d\u5e76\u4e0d\u9700\u8981\u7acb\u5373\u8fdb\u884c\u63d2\u7ba1\uff0c\u5c3d\u65e9\u4e0e\u591a\u5b66\u79d1\u62a4\u7406\u56e2\u961f\u8ba8\u8bba\u8fd9\u4e00\u9009\u62e9\u5bf9\u5bb6\u5ead\u4e5f\u6709\u597d\u5904\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e0e\u5176\u4ed6\u7ecf\u5386\u8fc7\u80c3\u9020\u7618\u672f\u7684\u5bb6\u5ead\u89c1\u9762\uff0c\u4e0e\u8425\u517b\u5e08\u548c\u8bed\u8a00\u6cbb\u7597\u5e08\u4ea4\u8c08\uff0c\u5b66\u4e60\u5982\u4f55\u5728\u5bb6\u91cc\u7ba1\u7406 PEG \u7ba1\uff0c\u53ef\u4ee5\u4f7f\u8fd9\u4e2a\u51b3\u5b9a\u4e0d\u90a3\u4e48\u4ee4\u4eba\u4e0d\u77e5\u6240\u63aa\u3002. <strong>\u4e86\u89e3\u76ca\u5904\u3001\u5c40\u9650\u6027\u548c\u5408\u7406\u9884\u671f\uff0c\u53ef\u4ee5\u8ba9\u5bb6\u5c5e\u9009\u62e9\u6700\u6709\u5229\u4e8e\u60a3\u8005\u5065\u5eb7\u548c\u751f\u6d3b\u8d28\u91cf\u7684\u65f6\u673a\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"864\" height=\"1821\" src=\"https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic.jpg\" alt=\"\u8be6\u7ec6\u7684\u4fe1\u606f\u56fe\u89e3\u91ca\u4e86\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\u7684\u80c3\u9020\u7618\u7ba1\uff0c\u5305\u62ec PEG \u7ba1\u653e\u7f6e\u3001\u8425\u517b\u652f\u6301\u3001\u76ca\u5904\u3001\u98ce\u9669\u3001\u5bb6\u5ead\u62a4\u7406\u548c\u5eb7\u590d\u3002.\" class=\"wp-image-8217\" title=\"\" srcset=\"https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic.jpg 864w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-142x300.jpg 142w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-486x1024.jpg 486w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-768x1619.jpg 768w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-729x1536.jpg 729w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-6x12.jpg 6w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-199x420.jpg 199w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-150x316.jpg 150w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-300x632.jpg 300w, https:\/\/dmdwarrior.com\/wp-content\/uploads\/2026\/07\/gastrostomy-tubes-duchenne-muscular-dystrophy-infographic-696x1467.jpg 696w\" sizes=\"(max-width: 864px) 100vw, 864px\" \/><figcaption class=\"wp-element-caption\">\u4e00\u4efd\u7efc\u5408\u4fe1\u606f\u56fe\uff0c\u89e3\u91ca\u4e86\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u4f55\u65f6\u5efa\u8bae\u4f7f\u7528 PEG \u7ba1\u3001\u5176\u5de5\u4f5c\u539f\u7406\u3001\u76ca\u5904\u3001\u6f5c\u5728\u98ce\u9669\u548c\u65e5\u5e38\u62a4\u7406\u3002.<\/figcaption><\/figure>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"fa-qs-gastrostomy-tubes-in-duchenne-muscular-dystrophy\" class=\"wp-block-heading\">\u5e38\u89c1\u95ee\u9898\u89e3\u7b54\uff1a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1<\/h2>\n\n\n<div id=\"rank-math-faq\" class=\"rank-math-block\">\n<div class=\"rank-math-list\">\n<div id=\"faq-question-1783673887687\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u513f\u7ae5\u4f55\u65f6\u9700\u8981\u8fdb\u884c\u80c3\u9020\u7618\u672f\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u513f\u7ae5\uff0c\u5982\u679c\u65e0\u6cd5\u5b89\u5168\u5730\u7ecf\u53e3\u6444\u5165\u8db3\u591f\u7684\u98df\u7269\u6216\u6db2\u4f53\uff0c\u53ef\u80fd\u9700\u8981\u8fdb\u884c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u3002\u5e38\u89c1\u75c7\u72b6\u5305\u62ec\u4f53\u91cd\u663e\u8457\u4e0b\u964d\u3001\u8fdb\u9910\u65f6\u95f4\u5ef6\u957f\u3001\u541e\u54bd\u56f0\u96be\uff08\u541e\u54bd\u969c\u788d\uff09\u3001\u9891\u7e41\u545b\u54b3\u3001\u8131\u6c34\u6216\u53cd\u590d\u5438\u5165\u6027\u80ba\u708e\u3002\u56fd\u9645\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u62a4\u7406\u6307\u5357\u5efa\u8bae\uff0c\u5728\u51fa\u73b0\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u6216\u547c\u5438\u529f\u80fd\u4e25\u91cd\u8870\u9000\u4e4b\u524d\uff0c\u5e94\u4e0e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u8ba8\u8bba\u80c3\u9020\u7618\u672f\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673895264\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u7684\u4eba\u5728\u63a5\u53d7\u80c3\u9020\u7618\u672f\uff08PEG\u7ba1\uff09\u540e\u8fd8\u80fd\u6b63\u5e38\u8fdb\u98df\u5417\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u662f\u7684\u3002\u5f88\u591a\u60c5\u51b5\u4e0b\uff0c\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u60a3\u8005\u5728\u63a5\u53d7\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u7ba1 (PEG) \u540e\u4ecd\u80fd\u7ee7\u7eed\u7ecf\u53e3\u8fdb\u98df\u3002\u8be5\u7ba1\u901a\u5e38\u4f5c\u4e3a\u8425\u517b\u8865\u5145\uff0c\u800c\u975e\u53d6\u4ee3\u7ecf\u53e3\u8fdb\u98df\u3002\u5982\u679c\u541e\u54bd\u529f\u80fd\u4ecd\u7136\u5b89\u5168\uff0c\u60a3\u8005\u53ef\u4ee5\u5728\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u8865\u5145\u989d\u5916\u70ed\u91cf\u3001\u6db2\u4f53\u6216\u836f\u7269\u7684\u540c\u65f6\uff0c\u7ee7\u7eed\u4eab\u7528\u81ea\u5df1\u559c\u7231\u7684\u98df\u7269\u3002\u8a00\u8bed\u6cbb\u7597\u5e08\u4f1a\u8bc4\u4f30\u60a3\u8005\u662f\u5426\u4ecd\u9002\u5408\u7ecf\u53e3\u8fdb\u98df\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673904879\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u5bf9\u4e8e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u4eba\u6765\u8bf4\uff0c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u7ba1\u7f6e\u5165\u672f\u5b89\u5168\u5417\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u662f\u7684\uff0c\u7531\u7ecf\u9a8c\u4e30\u5bcc\u7684\u3001\u719f\u6089\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u591a\u5b66\u79d1\u56e2\u961f\u8fdb\u884c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u901a\u5e38\u88ab\u8ba4\u4e3a\u662f\u5b89\u5168\u7684\u3002\u672f\u524d\uff0c\u533b\u751f\u4f1a\u4ed4\u7ec6\u8bc4\u4f30\u60a3\u8005\u7684\u5fc3\u810f\u529f\u80fd\u3001\u80ba\u529f\u80fd\u3001\u8425\u517b\u72b6\u51b5\u548c\u9ebb\u9189\u98ce\u9669\u3002\u5728\u51fa\u73b0\u4e25\u91cd\u547c\u5438\u529f\u80fd\u969c\u788d\u4e4b\u524d\u5c3d\u65e9\u8fdb\u884cPEG\u7f6e\u7ba1\uff0c\u901a\u5e38\u9884\u540e\u66f4\u597d\uff0c\u5e76\u53d1\u75c7\u66f4\u5c11\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673950179\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">PEG\u7ba1\u80fd\u5426\u6539\u5584DMD\u60a3\u8005\u7684\u751f\u6d3b\u8d28\u91cf\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u5bf9\u8bb8\u591a\u5bb6\u5ead\u6765\u8bf4\uff0c\u7b54\u6848\u662f\u80af\u5b9a\u7684\u3002\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u60a3\u8005\u4e2d\u4f7f\u7528\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u7ba1\uff08PEG\u7ba1\uff09\u53ef\u4ee5\u51cf\u5c11\u8fdb\u9910\u65f6\u7684\u538b\u529b\uff0c\u6539\u5584\u8425\u517b\u72b6\u51b5\uff0c\u7b80\u5316\u7528\u836f\u6d41\u7a0b\uff0c\u51cf\u5c11\u8131\u6c34\uff0c\u5e76\u964d\u4f4e\u8bef\u5438\u98ce\u9669\u3002\u8bb8\u591a\u7167\u62a4\u8005\u53cd\u6620\uff0c\u4ed6\u4eec\u7684\u5b69\u5b50\u7cbe\u529b\u66f4\u5145\u6c9b\uff0c\u8fdb\u9910\u4e5f\u66f4\u8f7b\u677e\uff0c\u4ece\u800c\u6574\u4f53\u751f\u6d3b\u8d28\u91cf\u5f97\u5230\u63d0\u5347\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673956688\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">PEG\u7ba1\u7f6e\u5165\u672f\u540e\u9700\u8981\u591a\u4e45\u624d\u80fd\u6062\u590d\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u5927\u591a\u6570\u60a3\u8005\u5728\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u7f6e\u7ba1\u540e\u4e00\u5230\u4e24\u5468\u5185\u5373\u53ef\u5eb7\u590d\u3002\u672f\u540e\u6700\u521d\u51e0\u5929\uff0c\u7f6e\u7ba1\u90e8\u4f4d\u5468\u56f4\u51fa\u73b0\u8f7b\u5fae\u75bc\u75db\u662f\u5e38\u89c1\u73b0\u8c61\uff0c\u901a\u5e38\u53ef\u901a\u8fc7\u7b80\u5355\u7684\u75bc\u75db\u7ba1\u7406\u7f13\u89e3\u3002\u8bb8\u591a\u60a3\u8005\u5728\u672f\u540e\u6570\u5c0f\u65f6\u6216\u4e00\u5929\u5185\u5373\u53ef\u5f00\u59cb\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\uff0c\u5177\u4f53\u65f6\u95f4\u53d6\u51b3\u4e8e\u533b\u751f\u7684\u5efa\u8bae\u3002\u9020\u53e3\u5b8c\u5168\u6108\u5408\u901a\u5e38\u9700\u8981\u6570\u5468\u65f6\u95f4\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673966048\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">DMD\u60a3\u8005\u884cPEG\u7ba1\u690d\u5165\u672f\u6700\u5e38\u89c1\u7684\u5e76\u53d1\u75c7\u6709\u54ea\u4e9b\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u6700\u5e38\u89c1\u7684\u5e76\u53d1\u75c7\u5305\u62ec\u8f7b\u5fae\u7684\u76ae\u80a4\u523a\u6fc0\u3001\u8089\u82bd\u7ec4\u7ec7\u589e\u751f\u3001\u5bfc\u7ba1\u5835\u585e\u4ee5\u53ca\u63d2\u7ba1\u90e8\u4f4d\u5468\u56f4\u6e17\u6f0f\u3002\u611f\u67d3\u3001\u51fa\u8840\u6216\u8179\u819c\u708e\u7b49\u4e25\u91cd\u5e76\u53d1\u75c7\u867d\u7136\u4e0d\u5e38\u89c1\uff0c\u4f46\u9700\u8981\u7acb\u5373\u5c31\u533b\u3002\u6bcf\u65e5\u6e05\u6d01\u3001\u6b63\u786e\u51b2\u6d17\u5bfc\u7ba1\u4ee5\u53ca\u5b9a\u671f\u968f\u8bbf\u533b\u7597\u56e2\u961f\u53ef\u663e\u8457\u964d\u4f4e\u5e76\u53d1\u75c7\u7684\u98ce\u9669\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673983152\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">PEG\u7ba1\u80fd\u5426\u9884\u9632\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u4f53\u91cd\u4e0b\u964d\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u662f\u7684\u3002\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u7684\u4e3b\u8981\u76ca\u5904\u4e4b\u4e00\u662f\u5e2e\u52a9\u9884\u9632\u975e\u9884\u671f\u4f53\u91cd\u4e0b\u964d\u3002\u901a\u8fc7\u76f4\u63a5\u5411\u80c3\u90e8\u8f93\u9001\u53ef\u9760\u7684\u8425\u517b\u3001\u6c34\u5206\u548c\u836f\u7269\uff0c\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u7ba1\uff08PEG\u7ba1\uff09\u6709\u52a9\u4e8e\u7ef4\u6301\u4f53\u91cd\uff0c\u5e76\u964d\u4f4e\u8425\u517b\u4e0d\u826f\u7684\u98ce\u9669\uff0c\u5c24\u5176\u9002\u7528\u4e8e\u541e\u54bd\u56f0\u96be\u6216\u98df\u6b32\u4e0d\u632f\u7684\u60a3\u8005\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783673990980\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u54ea\u4e9b\u98df\u7269\u53ef\u4ee5\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u5582\u98df\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u5927\u591a\u6570\u4eba\u63a5\u53d7\u5e02\u552e\u7684\u80a0\u5185\u8425\u517b\u914d\u65b9\uff0c\u56e0\u4e3a\u8fd9\u4e9b\u914d\u65b9\u80fd\u63d0\u4f9b\u5747\u8861\u7684\u70ed\u91cf\u3001\u86cb\u767d\u8d28\u3001\u7ef4\u751f\u7d20\u548c\u77ff\u7269\u8d28\u3002\u5728\u67d0\u4e9b\u60c5\u51b5\u4e0b\uff0c\u4e5f\u53ef\u4ee5\u5728\u6ce8\u518c\u8425\u517b\u5e08\u7684\u6307\u5bfc\u4e0b\u4f7f\u7528\u7cbe\u5fc3\u914d\u5236\u7684\u6405\u62cc\u5f0f\u8425\u517b\u9910\u3002\u5582\u517b\u65b9\u6848\u5e94\u59cb\u7ec8\u6839\u636e\u60a3\u8005\u7684\u5e74\u9f84\u3001\u8425\u517b\u9700\u6c42\u3001\u6d88\u5316\u8010\u53d7\u6027\u548c\u6574\u4f53\u5065\u5eb7\u72b6\u51b5\u8fdb\u884c\u4e2a\u6027\u5316\u5b9a\u5236\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783674000698\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u5982\u4f55\u5728\u5bb6\u91cc\u62a4\u7406\u80c3\u9020\u7618\u7ba1\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u6bcf\u65e5PEG\u7ba1\u62a4\u7406\u5305\u62ec\u7528\u6e29\u548c\u7684\u80a5\u7682\u548c\u6c34\u6e05\u6d01\u7ba1\u5468\u76ae\u80a4\uff0c\u4fdd\u6301\u8be5\u533a\u57df\u5e72\u71e5\uff0c\u5728\u5582\u98df\u6216\u7528\u836f\u524d\u540e\u51b2\u6d17\u5bfc\u7ba1\uff0c\u5e76\u89c2\u5bdf\u662f\u5426\u6709\u53d1\u7ea2\u3001\u80bf\u80c0\u3001\u6e17\u6f0f\u6216\u611f\u67d3\u8ff9\u8c61\u3002\u62a4\u7406\u4eba\u5458\u8fd8\u5e94\u9075\u5faa\u533b\u7597\u56e2\u961f\u5173\u4e8e\u5bfc\u7ba1\u8f6e\u6362\u3001\u6577\u6599\u66f4\u6362\u4ee5\u53ca\u4f55\u65f6\u5c31\u533b\u7684\u6307\u5bfc\u3002.<\/p>\n\n<\/div>\n<\/div>\n<div id=\"faq-question-1783674008955\" class=\"rank-math-list-item\">\n<h3 class=\"rank-math-question\">\u5982\u679c\u4e0d\u518d\u9700\u8981\uff0c\u53ef\u4ee5\u79fb\u9664PEG\u7ba1\u5417\uff1f<\/h3>\n<div class=\"rank-math-answer\">\n\n<p>\u662f\u7684\u3002\u5982\u679c\u541e\u54bd\u529f\u80fd\u6539\u5584\u6216\u4e0d\u518d\u9700\u8981\u8425\u517b\u652f\u6301\uff0c\u533b\u62a4\u4eba\u5458\u901a\u5e38\u53ef\u4ee5\u79fb\u9664\u80c3\u9020\u7618\u7ba1\u3002\u5177\u4f53\u51b3\u5b9a\u53d6\u51b3\u4e8e\u60a3\u8005\u80fd\u5426\u901a\u8fc7\u53e3\u670d\u7ef4\u6301\u8db3\u591f\u7684\u8425\u517b\u548c\u6c34\u5206\uff0c\u4ee5\u53ca\u591a\u5b66\u79d1\u533b\u7597\u56e2\u961f\u7684\u5efa\u8bae\u3002\u5bb6\u5c5e\u5207\u52ff\u5c1d\u8bd5\u81ea\u884c\u79fb\u9664\u80c3\u9020\u7618\u7ba1\u3002.<\/p>\n\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"conclusion\" class=\"wp-block-heading\">\u7ed3\u8bba<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5bf9\u4e8e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u4eba\u6765\u8bf4\uff0c\u51b3\u5b9a\u662f\u5426\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u5f88\u5c11\u662f\u4ef6\u5bb9\u6613\u7684\u4e8b\uff0c\u4f46\u5bf9\u4e8e\u51fa\u73b0\u8fdb\u884c\u6027\u541e\u54bd\u56f0\u96be\u3001\u4f53\u91cd\u51cf\u8f7b\u6216\u5438\u5165\u98ce\u9669\u589e\u52a0\u7684\u60a3\u8005\u6765\u8bf4\uff0c\u8fd9\u662f\u6700\u6709\u6548\u7684\u8f85\u52a9\u6cbb\u7597\u63aa\u65bd\u4e4b\u4e00\u3002.<\/strong> \u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u4e2d\uff0cPEG \u7ba1\u672c\u8eab\u5e76\u4e0d\u662f\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u6cbb\u7597\u65b9\u6cd5\uff1b\u800c\u662f\u4e00\u79cd\u5e2e\u52a9\u7ef4\u6301\u5145\u8db3\u8425\u517b\u3001\u6c34\u5206\u3001\u836f\u7269\u8f93\u9001\u548c\u6574\u4f53\u5065\u5eb7\u7684\u5de5\u5177\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u4e8e\u5bb6\u5c5e\u800c\u8a00\uff0c\u6700\u91cd\u8981\u7684\u4fe1\u606f\u4e4b\u4e00\u662f\u65f6\u673a\u81f3\u5173\u91cd\u8981\u3002\u7b49\u5230\u51fa\u73b0\u4e25\u91cd\u8425\u517b\u4e0d\u826f\u6216\u547c\u5438\u529f\u80fd\u4e25\u91cd\u53d7\u635f\u624d\u8fdb\u884c\u624b\u672f\u53ef\u80fd\u4f1a\u589e\u52a0\u624b\u672f\u98ce\u9669\u5e76\u5ef6\u7f13\u5eb7\u590d\u3002\u56fd\u9645\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u62a4\u7406\u6307\u5357\u59cb\u7ec8\u5efa\u8bae\u5728\u8425\u517b\u5371\u673a\u53d1\u751f\u4e4b\u524d\u8ba8\u8bba\u80c3\u9020\u7618\u672f\uff0c\u4ee5\u4fbf\u60a3\u8005\u548c\u7167\u62a4\u8005\u80fd\u591f\u51b7\u9759\u3001\u6709\u8ba1\u5212\u5730\u505a\u51fa\u77e5\u60c5\u51b3\u5b9a\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u591a\u5b66\u79d1\u534f\u4f5c\u4ecd\u7136\u81f3\u5173\u91cd\u8981\u3002\u795e\u7ecf\u79d1\u533b\u751f\u3001\u80ba\u79d1\u533b\u751f\u3001\u5fc3\u810f\u79d1\u533b\u751f\u3001\u80c3\u80a0\u79d1\u533b\u751f\u3001\u8425\u517b\u5e08\u3001\u8bed\u8a00\u6cbb\u7597\u5e08\u3001\u9ebb\u9189\u5e08\u3001\u62a4\u58eb\u548c\u62a4\u7406\u4eba\u5458\u5728\u786e\u4fdd\u957f\u671f\u7597\u6548\u65b9\u9762\u90fd\u53d1\u6325\u7740\u91cd\u8981\u4f5c\u7528\u3002.<\/strong> \u901a\u8fc7\u9002\u5f53\u7684\u533b\u7597\u540e\u7eed\u6cbb\u7597\uff0c\u8bb8\u591a\u60a3\u8005\u53ef\u4ee5\u7ee7\u7eed\u4eab\u53d7\u7ecf\u53e3\u8fdb\u98df\u7684\u4e50\u8da3\uff0c\u540c\u65f6\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u8865\u5145\u70ed\u91cf\u3001\u6c34\u5206\u6216\u836f\u7269\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u540c\u6837\u91cd\u8981\u7684\u662f\u62a4\u7406\u4e2d\u7684\u60c5\u611f\u56e0\u7d20\u3002\u5bb6\u5c5e\u5e38\u5e38\u5c06\u9f3b\u9972\u7ba1\u4e0e\u75be\u75c5\u8fdb\u5c55\u8054\u7cfb\u8d77\u6765\uff0c\u4f46\u8bb8\u591a\u5bb6\u5c5e\u540e\u6765\u5374\u5c06\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u63cf\u8ff0\u4e3a\u4e00\u4e2a\u8f6c\u6298\u70b9\uff0c\u5b83\u51cf\u8f7b\u4e86\u538b\u529b\uff0c\u7f29\u77ed\u4e86\u4ee4\u4eba\u75b2\u60eb\u7684\u8fdb\u9910\u65f6\u95f4\uff0c\u6539\u5584\u4e86\u4f53\u91cd\u7ef4\u6301\uff0c\u5e76\u63d0\u9ad8\u4e86\u751f\u6d3b\u8d28\u91cf\u3002\u901a\u8fc7\u652f\u6301\u826f\u597d\u7684\u8425\u517b\u3001\u964d\u4f4e\u8bef\u5438\u98ce\u9669\u548c\u7b80\u5316\u836f\u7269\u7ba1\u7406\uff0c\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u7684\u80c3\u9020\u7618\u7ba1\u53ef\u4ee5\u5e2e\u52a9\u4ed6\u4eec\u5728\u6574\u4e2a\u75c5\u7a0b\u4e2d\u4fdd\u6301\u66f4\u5065\u5eb7\u3001\u66f4\u8212\u9002\u7684\u72b6\u6001\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5c3d\u7ba1\u6bcf\u4f4dDMD\u60a3\u8005\u7684\u4e34\u5e8a\u75c5\u7a0b\u5404\u4e0d\u76f8\u540c\uff0c\u4f46\u73b0\u6709\u8bc1\u636e\u5f3a\u70c8\u652f\u6301\u5bf9DMD\u60a3\u8005\u8fdb\u884c\u65e9\u671f\u8425\u517b\u8bc4\u4f30\u3001\u5e38\u89c4\u541e\u54bd\u529f\u80fd\u8bc4\u4f30\uff0c\u5e76\u5728\u533b\u5b66\u6761\u4ef6\u5141\u8bb8\u7684\u60c5\u51b5\u4e0b\u53ca\u65f6\u8003\u8651\u7ecf\u76ae\u5185\u955c\u4e0b\u80c3\u9020\u7618\u672f\uff08PEG\uff09\u3002\u5bb6\u5c5e\u4e0e\u7ecf\u9a8c\u4e30\u5bcc\u7684\u795e\u7ecf\u808c\u8089\u56e2\u961f\u4e4b\u95f4\u7684\u516c\u5f00\u6c9f\u901a\u662f\u786e\u5b9a\u6700\u4f73\u65f6\u673a\u548c\u6700\u9002\u5b9c\u8425\u517b\u7b56\u7565\u7684\u6839\u672c\u9014\u5f84\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"academic-sources-and-references\" class=\"wp-block-heading\">\u5b66\u672f\u8d44\u6e90\u548c\u53c2\u8003\u6587\u732e<\/h2>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Birnkrant DJ \u7b49\u3002\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u8bca\u65ad\u548c\u6cbb\u7597\uff0c\u7b2c 2 \u90e8\u5206\uff1a\u547c\u5438\u3001\u5fc3\u810f\u3001\u9aa8\u9abc\u5065\u5eb7\u548c\u9aa8\u79d1\u6cbb\u7597\u3002. <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/29395990\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u300a\u67f3\u53f6\u5200\u795e\u7ecf\u75c5\u5b66\u300b<\/a>. 2018.<\/li>\n\n\n\n<li>Birnkrant DJ \u7b49\u3002\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u8bca\u65ad\u548c\u6cbb\u7597\uff0c\u7b2c\u4e00\u90e8\u5206\uff1a\u8bca\u65ad\u3001\u795e\u7ecf\u808c\u8089\u3001\u5eb7\u590d\u3001\u5185\u5206\u6ccc\u548c\u80c3\u80a0\u9053\u7ba1\u7406\u3002\u300a\u67f3\u53f6\u5200\u795e\u7ecf\u75c5\u5b66\u300b\u30022018 \u5e74\u3002.<\/li>\n\n\n\n<li>Birnkrant DJ \u7b49\u3002\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u62a4\u7406\u8003\u8651\u5de5\u4f5c\u7ec4\u3002\u300a\u67f3\u53f6\u5200\u795e\u7ecf\u75c5\u5b66\u300b\u30022018 \u5e74\u3002.<\/li>\n\n\n\n<li>Romano C \u7b49\u3002\u6b27\u6d32\u513f\u79d1\u80c3\u80a0\u75c5\u5b66\u3001\u809d\u75c5\u5b66\u548c\u8425\u517b\u5b66\u4f1a (ESPGHAN) \u5173\u4e8e\u513f\u7ae5\u7ecf\u76ae\u5185\u955c\u80c3\u9020\u7618\u672f\u7684\u7acb\u573a\u6587\u4ef6\u3002. <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/34155150\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u300a\u513f\u79d1\u80c3\u80a0\u75c5\u5b66\u4e0e\u8425\u517b\u5b66\u6742\u5fd7\u300b<\/a>. 2021.<\/li>\n\n\n\n<li>\u7f8e\u56fd\u513f\u79d1\u5b66\u4f1a\u3002\u300a\u795e\u7ecf\u808c\u8089\u75be\u75c5\u60a3\u513f\u7684\u8425\u517b\u548c\u80c3\u80a0\u9053\u7ba1\u7406\u300b\u3002.<\/li>\n\n\n\n<li>\u6b27\u6d32\u4e34\u5e8a\u8425\u517b\u4e0e\u4ee3\u8c22\u5b66\u4f1a\uff08ESPEN\uff09\u3002. <a href=\"https:\/\/www.espen.org\/files\/ESPEN-Guidelines\/ESPEN-guideline_clinical_nutrition_in_neurology.pdf\" target=\"_blank\" rel=\"noreferrer noopener\">\u795e\u7ecf\u79d1\u4e34\u5e8a\u8425\u517b\u6307\u5357<\/a>.<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>Gastrostomy tubes in Duchenne Muscular Dystrophy (DMD) have become an important component of multidisciplinary care for individuals who experience progressive swallowing difficulties, unintended weight loss, or an increased risk of aspiration. A PEG tube in DMD (Percutaneous Endoscopic Gastrostomy tube) provides direct access to the stomach, allowing adequate nutrition, hydration, and medication administration when eating [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":8220,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[563],"tags":[379,492,833,832,836,835,831,146,830,834],"class_list":["post-8211","post","type-post","status-publish","format-standard","has-post-thumbnail","category-care-guidelines","tag-dmd-care","tag-dysphagia","tag-enteral-nutrition","tag-feeding-tube","tag-g-tube-feedings","tag-g-tubes","tag-gastrostomy","tag-nutrition","tag-peg-tube","tag-weight-loss"],"subtitle":"\u5f53\u8fdb\u98df\u53d8\u5f97\u56f0\u96be\u65f6\uff0c\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u53ef\u4ee5\u901a\u8fc7\u80c3\u9020\u7618\u7ba1\u7ef4\u6301\u8425\u517b\u6444\u5165\u548c\u751f\u6d3b\u8d28\u91cf\u3002\u672c\u6307\u5357\u5c06\u89e3\u91ca\u4f55\u65f6\u5efa\u8bae\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u8005\u4e2d\u4f7f\u7528\u80c3\u9020\u7618\u7ba1\u3001\u5176\u5de5\u4f5c\u539f\u7406\u4ee5\u53ca\u60a3\u8005\u5bb6\u5c5e\u5e94\u6ce8\u610f\u7684\u4e8b\u9879\u3002.","_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/8211","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/comments?post=8211"}],"version-history":[{"count":3,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/8211\/revisions"}],"predecessor-version":[{"id":8563,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/8211\/revisions\/8563"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media\/8220"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media?parent=8211"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/categories?post=8211"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/tags?post=8211"}],"curies":[{"name":"\u53ef\u6e7f\u6027\u7c89\u5242","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}