{"id":7765,"date":"2026-04-30T08:56:04","date_gmt":"2026-04-30T05:56:04","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=7765"},"modified":"2026-04-30T08:58:30","modified_gmt":"2026-04-30T05:58:30","slug":"inesss-rejects-vamorolone-agamree-reimbursement","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/zh\/inesss-rejects-vamorolone-agamree-reimbursement\/","title":{"rendered":"Vamorolone\uff08Agamree\uff09\u88abINESSS\u62d2\u7edd\uff1a\u5f53\u6210\u672c\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u62a4\u7406\u4e2d\u51cc\u9a7e\u4e8e\u4eba\u6587\u5173\u6000\u4e4b\u4e0a\u65f6"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u52a0\u62ff\u5927\u56fd\u5bb6\u5353\u8d8a\u5065\u5eb7\u4e0e\u793e\u4f1a\u670d\u52a1\u7814\u7a76\u6240 (INESSS) \u6700\u8fd1\u51b3\u5b9a\u62d2\u7edd\u62a5\u9500 Agamree\uff08vamorolone\uff09\uff0c\u8fd9\u4e0d\u4ec5\u4ec5\u662f\u4e00\u4e2a\u5b98\u50da\u4e3b\u4e49\u7684\u7ed3\u679c\uff0c\u5b83\u66b4\u9732\u4e86\u5728\u5e73\u8861\u7ecf\u6d4e\u6a21\u5f0f\u4e0e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u513f\u7ae5\u7684\u8feb\u5207\u9700\u6c42\u65b9\u9762\u5b58\u5728\u7684\u7cfb\u7edf\u6027\u5931\u8d25\u3002.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">\u4e00\u79cd\u5df2\u77e5\u7684\u75be\u75c5\uff0c\u4e00\u79cd\u5df2\u77e5\u7684\u9700\u6c42<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">DMD\u5e76\u975e\u4e00\u79cd\u8fb9\u7f18\u6027\u75be\u75c5\u3002\u5b83\u662f\u4e00\u79cd\u7f55\u89c1\u7684\u3001\u8fdb\u884c\u6027\u7684\u3001\u81f4\u547d\u7684\u795e\u7ecf\u808c\u8089\u75be\u75c5\uff0c\u5927\u7ea6\u6bcf4700\u540d\u7537\u5b69\u4e2d\u5c31\u67091\u540d\u60a3\u75c5\uff0c\u5927\u591a\u6570\u60a3\u8005\u5728\u9752\u6625\u671f\u4e27\u5931\u884c\u8d70\u80fd\u529b\uff0c\u5e76\u572820\u591a\u5c81\u621630\u5c81\u51fa\u5934\u65f6\u6b7b\u4ea1\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u6807\u51c6\u6cbb\u7597\u65b9\u6cd5\u2014\u2014\u4e3b\u8981\u662f\u6cfc\u5c3c\u677e\u548c\u5730\u592b\u53ef\u7279\u7b49\u76ae\u8d28\u7c7b\u56fa\u9187\u2014\u2014\u867d\u7136\u6709\u6548\uff0c\u4f46\u4ee3\u4ef7\u4e0d\u83f2\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u751f\u957f\u6291\u5236<\/li>\n\n\n\n<li>\u884c\u4e3a\u969c\u788d<\/li>\n\n\n\n<li>\u9aa8\u8d28\u758f\u677e\u75c7\u548c\u9aa8\u6298<\/li>\n\n\n\n<li>\u4ee3\u8c22\u5e76\u53d1\u75c7<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5bf9\u66f4\u5b89\u5168\u66ff\u4ee3\u65b9\u6848\u7684\u9700\u6c42\u5e76\u975e\u5047\u8bbe\u2014\u2014\u800c\u662f\u8feb\u5207\u9700\u8981\u4e14\u6709\u636e\u53ef\u67e5\u7684\u3002\u4e86\u89e3\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/pros-and-cons-of-steroids-for-duchenne-muscular-dystrophy\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u4f7f\u7528\u7c7b\u56fa\u9187\uff08\u53ef\u7684\u677e\uff09\u7684\u5229\u5f0a<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Agamree \u5b9e\u9645\u63d0\u4f9b\u7684\u670d\u52a1<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>INESSS \u672c\u8eab\u4e5f\u627f\u8ba4 vamorolone \u5177\u6709\u6cbb\u7597\u4ef7\u503c\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e34\u5e8a\u68c0\u67e5\u7ed3\u679c\u663e\u793a\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4e0e\u5b89\u6170\u5242\u76f8\u6bd4\uff0c\u8fd0\u52a8\u529f\u80fd\u65b9\u9762\u6709\u7edf\u8ba1\u5b66\u610f\u4e49\u4e0a\u7684\u663e\u8457\u6539\u5584\uff08\u4f8b\u5982\uff0c6\u5206\u949f\u6b65\u884c\u8bd5\u9a8c\u3001\u7ad9\u7acb\u65f6\u95f4\u6d4b\u8bd5\uff09<\/li>\n\n\n\n<li>\u4e0e\u6cfc\u5c3c\u677e\u7597\u6548\u76f8\u5f53<\/li>\n\n\n\n<li>\u6f5c\u5728\u7684\u5b89\u5168\u4f18\u52bf\uff1a\n<ul class=\"wp-block-list\">\n<li>\u884c\u4e3a\u526f\u4f5c\u7528\u66f4\u5c11\uff0820% \u4e0e 32% \u76f8\u6bd4\uff09<\/li>\n\n\n\n<li>\u66f4\u597d\u7684\u589e\u957f\u6210\u679c<\/li>\n\n\n\n<li>\u964d\u4f4e\u9aa8\u6298\u98ce\u9669\u4fe1\u53f7<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e0d\u662f\u4e00\u79cd\u5931\u8d25\u7684\u836f\u7269\u3002.<br><strong>\u8fd9\u662f\u4e00\u4e2a\u7ecf\u8fc7\u4e34\u5e8a\u9a8c\u8bc1\u7684\u66ff\u4ee3\u65b9\u6848\uff0c\u5177\u6709\u663e\u8457\u7684\u5b89\u5168\u6539\u8fdb\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u88ab\u62d2\u7684\u771f\u6b63\u539f\u56e0\uff1a\u6210\u672c<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">INESSS \u62d2\u7edd Agamree \u5e76\u4e0d\u662f\u56e0\u4e3a\u5b83\u884c\u4e0d\u901a\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4ed6\u4eec\u62d2\u7edd\u4e86\uff0c\u56e0\u4e3a\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u6bcf\u4f4d\u60a3\u8005\u7684\u5e74\u5ea6\u8d39\u7528\uff1a <strong>~$65,000 \u81f3 $125,000<\/strong><\/li>\n\n\n\n<li>\u6210\u672c\u6548\u76ca\u6bd4\uff1a<br><strong>\u6bcf\u8d28\u91cf\u8c03\u6574\u751f\u547d\u5e74 (QALY) $2,217,370<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fbe\u5230\u53ef\u63a5\u53d7\u7684\u9608\u503c\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4ef7\u683c\u9700\u8981\u4e0b\u964d <strong>96\u201398%<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u5373\u4f7f\u5728\u4e50\u89c2\u7684\u5047\u8bbe\u4e0b\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u4ecd\u7136 <strong>\u6bcf\u8d28\u91cf\u8c03\u6574\u751f\u547d\u5e74$312,142<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u7ed3\u8bba\uff1a<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u201c\u6210\u672c\u6548\u76ca\u6bd4\u4e0d\u5408\u7406\u3002\u201d<\/p>\n<\/blockquote>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">INESSS\u7684\u4e0d\u8db3\u4e4b\u5904<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u867d\u7136\u4ece\u7ecf\u6d4e\u89d2\u5ea6\u6765\u770b\uff0c\u8fd9\u4e00\u51b3\u5b9a\u662f\u5408\u7406\u7684\uff0c\u4f46\u5b83\u4e5f\u66b4\u9732\u4e86\u4e25\u91cd\u7684\u9053\u5fb7\u76f2\u70b9\u3002.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">1. \u8fc7\u5ea6\u4f9d\u8d56\u6210\u672c\u6548\u76ca\u6a21\u578b<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u57fa\u4e8e\u8d28\u91cf\u8c03\u6574\u751f\u547d\u5e74\uff08QALY\uff09\u7684\u6846\u67b6\u7cfb\u7edf\u6027\u5730\u4e0d\u5229\u4e8e\uff1a<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u7f55\u89c1\u75c5<\/li>\n\n\n\n<li>\u513f\u79d1\u4eba\u7fa4<\/li>\n\n\n\n<li>\u975e\u6cbb\u6108\u6027\u7597\u6cd5<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e9b\u6a21\u578b\u65e0\u6cd5\u6355\u6349\u5230\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u51cf\u8f7b\u7167\u62a4\u8005\u8d1f\u62c5<\/li>\n\n\n\n<li>\u957f\u671f\u6b8b\u75be\u6210\u672c\u62b5\u6d88<\/li>\n\n\n\n<li>\u513f\u7ae5\u751f\u6d3b\u8d28\u91cf\u7684\u7ec6\u5fae\u5dee\u522b<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">2. \u5ffd\u7565\u6e10\u8fdb\u5f0f\u5b89\u5168\u6539\u8fdb<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5728\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u4e2d\uff0c\u5373\u4f7f\u662f\u5b89\u5168\u6027\u65b9\u9762\u7684\u5fae\u5c0f\u6539\u8fdb\u4e5f\u610f\u4e49\u91cd\u5927\uff1a<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u9aa8\u6298\u51cf\u5c11\u2192\u4f4f\u9662\u6b21\u6570\u51cf\u5c11<\/li>\n\n\n\n<li>\u66f4\u597d\u7684\u589e\u957f \u2192 \u957f\u671f\u53d1\u5c55\u5f71\u54cd<\/li>\n\n\n\n<li>\u884c\u4e3a\u6bd2\u6027\u964d\u4f4e\u2192\u5bb6\u5ead\u7a33\u5b9a<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">INESSS \u627f\u8ba4\u8fd9\u4e9b\u2014\u2014\u4f46\u5728\u7ecf\u6d4e\u4e0a\u5ffd\u7565\u4e86\u5b83\u4eec\u3002.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">3. \u516c\u5e73\u4e0e\u6548\u7387\u7684\u51b2\u7a81<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u8be5\u51b3\u5b9a\u5b9e\u9645\u4e0a\u8868\u660e\uff1a<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u201c\u8fd9\u79cd\u836f\u786e\u5b9e\u6709\u6548\uff0c\u4f46\u6548\u679c\u4e0d\u8db3\u4ee5\u8bc1\u660e\u5176\u4ef7\u683c\u5408\u7406\u3002\u201d<\/p>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5bf9\u4e8e\u8eab\u60a3\u7edd\u75c7\u7684\u513f\u7ae5\u6765\u8bf4\uff0c\u8fd9\u4e0d\u662f\u4e00\u53e5\u4e2d\u7acb\u7684\u8bdd\u2014\u2014\u8fd9\u662f\u5265\u593a\u4ed6\u4eec\u516c\u5e73\u83b7\u5f97\u521b\u65b0\u6210\u679c\u7684\u673a\u4f1a\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">Santhera \u4e5f\u5e94\u53d7\u5230\u540c\u7b49\u5ba1\u67e5<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u6279\u8bc4\u4e0d\u5e94\u6b62\u6b65\u4e8e INESSS\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u5236\u9020\u5546 Santhera \u8d1f\u6709\u91cd\u5927\u8d23\u4efb\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Agamree \u5b9a\u4ef7\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u6bcf\u4e2a\u5b69\u5b50\u6bcf\u5e74\u6700\u591a\u53ef\u83b7\u5f97 $125,000 \u5143<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u2026\u60a3\u6709\u4ee5\u4e0b\u75be\u75c5\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u65e0\u836f\u53ef\u6cbb<\/li>\n\n\n\n<li>\u6709\u9650\u7684\u9009\u62e9<\/li>\n\n\n\n<li>\u672a\u6ee1\u8db3\u7684\u9700\u6c42\u5f88\u9ad8<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u2026\u2026\u5f15\u53d1\u4e86\u4e25\u91cd\u7684\u4f26\u7406\u95ee\u9898\u3002.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">\u5b9a\u4ef7\u95ee\u9898<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e3a\u4e86\u8fbe\u5230\u53ef\u63a5\u53d7\u7684\u9608\u503c\uff0cINESSS \u4f30\u8ba1\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u6240\u9700\u964d\u4ef7\u5e45\u5ea6\uff1a <strong>85%\u201398%<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u5e76\u975e\u8f7b\u5fae\u7684\u5b9a\u4ef7\u504f\u5dee\u3002.<br><strong>\u8fd9\u662f\u7cfb\u7edf\u6027\u5b9a\u4ef7\u8fc7\u9ad8\u3002.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u5168\u7403\u8d23\u4efb<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>DMD\u662f\u4e00\u79cd\u5168\u7403\u6027\u75be\u75c5\u3002.<br><\/strong>\u83b7\u53d6\u8d44\u6e90\u7684\u673a\u4f1a\u4e0d\u5747\u4e0d\u4ec5\u5173\u4e4e\u7ecf\u6d4e\uff0c\u66f4\u5173\u4e4e\u9053\u5fb7\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5982\u679c\u4ef7\u683c\u4fdd\u6301\u4e0d\u53d8\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u9ad8\u6536\u5165\u56fd\u5bb6\u4f1a\u72b9\u8c6b\u4e0d\u51b3<\/li>\n\n\n\n<li>\u4e2d\u4f4e\u6536\u5165\u56fd\u5bb6\u5c06\u88ab\u5b8c\u5168\u6392\u9664\u5728\u5916\u3002<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u5c31\u5f62\u6210\u4e86\u4e00\u4e2a\u53cc\u5c42\u7cfb\u7edf\uff1a<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u6709\u4e9b\u513f\u7ae5\u80fd\u591f\u83b7\u5f97\u66f4\u5b89\u5168\u7684\u6cbb\u7597<\/li>\n\n\n\n<li><strong>\u8fd8\u6709\u4e00\u4e9b\u4eba\u7ee7\u7eed\u670d\u7528\u8f83\u8001\u3001\u6bd2\u6027\u66f4\u5927\u7684\u836f\u7269\u3002<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u8fd9\u4e2a\u7ed3\u679c\u662f\u7ad9\u4e0d\u4f4f\u811a\u7684\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u5fc5\u987b\u6539\u53d8\u4ec0\u4e48<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">\u81f4 INESSS \u548c\u76d1\u7ba1\u673a\u6784\uff1a<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u7eb3\u5165\u7f55\u89c1\u75c5\u7279\u5f02\u6027\u8bc4\u4f30\u6846\u67b6<\/strong><\/li>\n\n\n\n<li>\u8c03\u6574\u513f\u7ae5\u81f4\u547d\u75be\u75c5\u7684\u6210\u672c\u6548\u76ca\u9608\u503c<\/li>\n\n\n\n<li><strong>\u8ba4\u8bc6\u5230\u6e10\u8fdb\u5f0f\u5b89\u5168\u5177\u6709\u5f88\u9ad8\u7684\u4ef7\u503c<\/strong><\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">\u5bf9\u4e8e Santhera\uff1a<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u5b9e\u65bd\u5927\u5e45\u5168\u7403\u964d\u4ef7<\/strong><\/li>\n\n\n\n<li>\u91c7\u7528\u5206\u7ea7\u5b9a\u4ef7\u6a21\u5f0f<\/li>\n\n\n\n<li><strong>\u5b9a\u4ef7\u5e94\u4e0e\u5b9e\u9645\u4ef7\u503c\u76f8\u7b26\uff0c\u800c\u975e\u7406\u8bba\u4e0a\u7684\u6700\u9ad8\u4ef7\u503c\u3002<\/strong><\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u6700\u540e\u7684\u60f3\u6cd5<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>INESSS\u62d2\u7eddAgamree\uff0c\u51f8\u663e\u4e86\u6210\u672c\u63a7\u5236\u4e0e\u60a3\u8005\u9700\u6c42\u4e4b\u95f4\u66f4\u6df1\u5c42\u6b21\u7684\u51b2\u7a81\u3002.<\/strong> Vamorolone \u5177\u6709\u663e\u8457\u7684\u76ca\u5904\uff0c\u5373\u4f7f\u6548\u679c\u662f\u6e10\u8fdb\u5f0f\u7684\u3002\u5bf9\u4e8e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7 (DMD) \u7684\u513f\u7ae5\u6765\u8bf4\uff0c\u66f4\u5b89\u5168\u7684\u6cbb\u7597\u65b9\u6848\u81f3\u5173\u91cd\u8981\u3002\u7ecf\u6d4e\u6a21\u578b\u4e0d\u5e94\u63a9\u76d6\u5176\u5728\u73b0\u5b9e\u4e16\u754c\u4e2d\u7684\u5f71\u54cd\u3002\u540c\u65f6\uff0c\u5b9a\u4ef7\u5fc5\u987b\u4f53\u73b0\u5176\u4e34\u5e8a\u4ef7\u503c\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Santhera\u6709\u8d23\u4efb\u63d0\u9ad8\u5168\u7403\u533b\u7597\u670d\u52a1\u7684\u53ef\u8d1f\u62c5\u6027\u3002\u5982\u679c\u4e0d\u8c03\u6574\u4ef7\u683c\uff0c\u533b\u7597\u670d\u52a1\u7684\u53ef\u53ca\u6027\u5c06\u7ee7\u7eed\u53d7\u5230\u9650\u5236\u3002.<\/strong> \u76d1\u7ba1\u673a\u6784\u5fc5\u987b\u8c03\u6574\u7f55\u89c1\u75c5\u76d1\u7ba1\u6846\u67b6\u3002\u5408\u4f5c\u5bf9\u4e8e\u5e73\u8861\u6210\u672c\u548c\u533b\u7597\u8d28\u91cf\u81f3\u5173\u91cd\u8981\u3002\u5f52\u6839\u7ed3\u5e95\uff0c\u60a3\u8005\u4e0d\u5e94\u627f\u62c5\u7cfb\u7edf\u6545\u969c\u7684\u540e\u679c\u3002.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u7ed3\u8bba<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u963f\u52a0\u59c6\u745e\u5e76\u975e\u5b8c\u7f8e\u836f\u7269\u3002.<br><strong>\u4f46\u8fd9\u5bf9\u4e8e\u60a3\u6709\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u513f\u7ae5\u6765\u8bf4\uff0c\u662f\u4e00\u4e2a\u610f\u4e49\u91cd\u5927\u7684\u8fdb\u6b65\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4f46\u5b8c\u5168\u62d2\u7edd\u63d0\u4f9b\u533b\u7597\u670d\u52a1\u4f1a\u5c06\u8d1f\u62c5\u8f6c\u79fb\u5230\u60a3\u8005\u8eab\u4e0a\u2014\u2014\u800c\u8fd9\u6070\u6070\u662f\u533b\u7597\u7cfb\u7edf\u65e8\u5728\u4fdd\u62a4\u7684\u4eba\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u5728\u5b9a\u4ef7\u5f97\u5230\u7ea0\u6b63\u3001\u8bc4\u4f30\u6846\u67b6\u5f97\u5230\u6539\u8fdb\u4e4b\u524d\uff0c\u60a3\u6709 DMD \u7684\u513f\u7ae5\u5c06\u7ee7\u7eed\u4e3a\u90a3\u4e9b\u8131\u79bb\u4ed6\u4eec\u5b9e\u9645\u60c5\u51b5\u7684\u51b3\u5b9a\u4ed8\u51fa\u4ee3\u4ef7\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u9605\u8bfb\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/duchenne-muscular-dystrophy-treatment-cost\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u6b8b\u9177\u7684\u771f\u76f8\uff1a\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u7684\u6cbb\u7597\u8d39\u7528\u4e3a\u4f55\u5931\u63a7<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>The recent decision by INESSS (Institut national d&#8217;excellence en sant\u00e9 et en services sociaux) in Canada to refuse reimbursement for Agamree (vamorolone) represents more than a bureaucratic outcome\u2014it exposes a systemic failure in balancing economic models with the urgent needs of children living with Duchenne muscular dystrophy (DMD). A Known Disease, A Known Need DMD [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":7766,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[282],"tags":[42,171,727,728,41,43],"class_list":["post-7765","post","type-post","status-publish","format-standard","has-post-thumbnail","category-editorials","tag-agamree","tag-canada","tag-inesss","tag-quebec","tag-santhera","tag-vamorolone"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/7765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/comments?post=7765"}],"version-history":[{"count":2,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/7765\/revisions"}],"predecessor-version":[{"id":7768,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/7765\/revisions\/7768"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media\/7766"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media?parent=7765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/categories?post=7765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/tags?post=7765"}],"curies":[{"name":"\u53ef\u6e7f\u6027\u7c89\u5242","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}