{"id":5375,"date":"2025-12-17T13:43:10","date_gmt":"2025-12-17T10:43:10","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=5375"},"modified":"2025-12-17T13:43:11","modified_gmt":"2025-12-17T10:43:11","slug":"secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/zh\/secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa\/","title":{"rendered":"\u7f8e\u56fd\u56fd\u52a1\u537f\u80af\u5c3c\u8fea\u5ba3\u5e03\u5c06\u65b0\u751f\u513f\u7b5b\u67e5\u8303\u56f4\u6269\u5927\u81f3\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u3002"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff09\u5df2\u88ab\u7f8e\u56fd\u536b\u751f\u4e0e\u516c\u4f17\u670d\u52a1\u90e8 (HHS) \u6b63\u5f0f\u7eb3\u5165\u63a8\u8350\u7edf\u4e00\u7b5b\u67e5\u9879\u76ee (RUSP)\uff0c\u6269\u5927\u4e86\u5168\u56fd\u8303\u56f4\u5185\u63a8\u8350\u65b0\u751f\u513f\u7b5b\u67e5\u7684\u75be\u75c5\u6e05\u5355\u3002. <strong>\u8fd9\u9879\u5177\u6709\u91cc\u7a0b\u7891\u610f\u4e49\u7684\u4e3e\u63aa\u663e\u8457\u6539\u5584\u4e86\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u60a3\u513f\u65e9\u671f\u8bca\u65ad\u548c\u6cbb\u7597\u7684\u673a\u4f1a\u3002.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u7f8e\u56fd\u536b\u751f\u4e0e\u516c\u4f17\u670d\u52a1\u90e8\u90e8\u957f\u5c0f\u7f57\u4f2f\u7279\u00b7F\u00b7\u80af\u5c3c\u8fea\u4eca\u65e5\u6279\u51c6\u5c06\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u548c\u5f02\u67d3\u6027\u8111\u767d\u8d28\u8425\u517b\u4e0d\u826f\u75c7\uff08MLD\uff09\u7eb3\u5165\u63a8\u8350\u7edf\u4e00\u7b5b\u67e5\u9879\u76ee\uff08RUSP\uff09\uff0c\u6b64\u4e3e\u662f\u7ecf\u8fc7\u79d1\u5b66\u5ba1\u67e5\u548c\u516c\u4f17\u610f\u89c1\u5f81\u8be2\u540e\u505a\u51fa\u7684\u3002\u65e9\u671f\u53d1\u73b0\u8fd9\u4e24\u79cd\u75be\u75c5\u80fd\u591f\u8ba9\u60a3\u513f\u5728\u6700\u6709\u6548\u7684\u65f6\u5019\u63a5\u53d7FDA\u6279\u51c6\u7684\u7597\u6cd5\uff0c\u4ece\u800c\u5ef6\u7f13\u75be\u75c5\u8fdb\u5c55\uff0c\u5e76\u5c3d\u53ef\u80fd\u5730\u63d0\u9ad8\u4ed6\u4eec\u7684\u751f\u6d3b\u8d28\u91cf\u3002.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c\u6b63\u5982\u6211\u53d4\u53d4\u6240\u8bf4\uff0c\u2018\u867d\u7136\u5b69\u5b50\u4eec\u53ef\u80fd\u662f\u547d\u8fd0\u7684\u53d7\u5bb3\u8005\uff0c\u4f46\u4ed6\u4eec\u7edd\u4e0d\u4f1a\u6210\u4e3a\u6211\u4eec\u758f\u5ffd\u7684\u53d7\u5bb3\u8005\u2019\uff0c\u201d\u80af\u5c3c\u8fea\u90e8\u957f\u8bf4\u3002\u201c\u8fd9\u9879\u4e3e\u63aa\u6b63\u662f\u79c9\u627f\u4e86\u8fd9\u4e00\u539f\u5219\u3002\u65e9\u671f\u7b5b\u67e5\u8ba9\u6bcf\u4e2a\u5b69\u5b50\u90fd\u6709\u516c\u5e73\u7684\u673a\u4f1a\u83b7\u5f97\u53ca\u65f6\u6709\u6548\u7684\u62a4\u7406\uff0c\u4e5f\u8ba9\u5bb6\u5ead\u5728\u6700\u9700\u8981\u7684\u65f6\u5019\u83b7\u5f97\u4ed6\u4eec\u5e94\u5f97\u7684\u7b54\u6848\u548c\u6cbb\u7597\u65b9\u6848\u3002\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u9605\u8bfb\u66f4\u591a<\/strong>:&nbsp;<a href=\"https:\/\/dmdwarrior.com\/zh\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u4e34\u5e8a\u8bd5\u9a8c\uff08\u6240\u6709\u7814\u7a76\u5217\u8868\uff09<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Duchenne muscular dystrophy (Duchenne) has been officially added to the Recommended Uniform Screening Panel (RUSP) by the U.S. Department of Health and Human Services (HHS), expanding the list of conditions recommended for newborn screening nationwide. This landmark action significantly improves opportunities for early diagnosis and care for children with Duchenne. The U.S. Department of Health [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5376,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[469,79],"class_list":["post-5375","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-robert-f-kennedy","tag-usa"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/5375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/comments?post=5375"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/5375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media\/5376"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media?parent=5375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/categories?post=5375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/tags?post=5375"}],"curies":[{"name":"\u53ef\u6e7f\u6027\u7c89\u5242","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}