{"id":3743,"date":"2025-04-23T13:50:45","date_gmt":"2025-04-23T10:50:45","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=3743"},"modified":"2025-04-23T14:02:04","modified_gmt":"2025-04-23T11:02:04","slug":"elevidys-gene-therapy-price-cut-in-russia-by-circle-of-kindness-foundation","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/zh\/elevidys-gene-therapy-price-cut-in-russia-by-circle-of-kindness-foundation\/","title":{"rendered":"\u4fc4\u7f57\u65afCircle of Kindness\u57fa\u91d1\u4f1a\u5ba3\u5e0318%\u57fa\u56e0\u7597\u6cd5\u964d\u4ef7\uff0cElevidys\u57fa\u56e0\u7597\u6cd5\u964d\u4ef7"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u636e\u8be5\u57fa\u91d1\u4f1a\u65b0\u95fb\u529e\u516c\u5ba4\u79f0\uff0c\u201c\u7ecf\u8fc7\u8c08\u5224\uff0c\u4e16\u754c\u4e0a\u6700\u6602\u8d35\u7684\u836f\u7269\u4e4b\u4e00\uff08Elevidys\uff09\u7684\u4ef7\u683c\u964d\u4f4e\u4e8618%\uff0c\u5373\u964d\u4f4e\u4e8640\u4e07\u6b27\u5143\uff0c\u964d\u81f3220\u4e07\u6b27\u5143\u3002\u201d<a href=\"https:\/\/dmdwarrior.com\/zh\/frequently-asked-questions-about-elevidys-used-for-duchenne-muscular-dystrophy\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u5e38\u89c1\u95ee\u9898\u89e3\u7b54 Elevidys<\/a>)<\/p>\n\n\n\n<div class=\"wp-block-rank-math-toc-block\" id=\"rank-math-toc\"><h2>\u76ee\u5f55<\/h2><nav><ul><li><a href=\"#what-is-circle-of-kindness-foundation\">\u4ec0\u4e48\u662f Circle of Kindness \u57fa\u91d1\u4f1a\uff1f<\/a><\/li><li><a href=\"#why-was-circle-of-kindness-foundation-established\">\u4e3a\u4ec0\u4e48\u8981\u6210\u7acbCircle of Kindness\u57fa\u91d1\u4f1a\uff1f<\/a><\/li><li><a href=\"#take-from-the-rich-give-to-the-poor\">\u52ab\u5bcc\u6d4e\u8d2b<\/a><\/li><li><a href=\"#fas-and-circle-of-kindness-have-achieved-a-price-reduction-for-the-first-gene-therapy-elevidys\">\u4fc4\u7f57\u65af\u9996\u4e2a\u57fa\u56e0\u7597\u6cd5Elevidys\u964d\u4ef7<\/a><\/li><li><a href=\"#69-children-in-russia-receive-elevidys-gene-therapy\">\u4fc4\u7f57\u65af69\u540d\u513f\u7ae5\u63a5\u53d7Elevidys\u57fa\u56e0\u6cbb\u7597<\/a><\/li><\/ul><\/nav><\/div>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"what-is-circle-of-kindness-foundation\">\u4ec0\u4e48\u662f Circle of Kindness \u57fa\u91d1\u4f1a\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">2021\u5e741\u6708\uff0c\u4fc4\u7f57\u65af\u603b\u7edf\u5f17\u62c9\u57fa\u7c73\u5c14\u00b7\u666e\u4eac\u7b7e\u7f72\u547d\u4ee4\uff0c\u6210\u7acbCircle of Kindness\u57fa\u91d1\u4f1a\u3002\u8be5\u57fa\u91d1\u4f1a\u6db5\u76d6100\u79cd\u75be\u75c5\uff0c\u5176\u4e3b\u8981\u76ee\u6807\u662f\u6539\u5584\u7f55\u89c1\u548c\u5371\u53ca\u751f\u547d\u7684\u75be\u75c5\u513f\u7ae5\u7684\u836f\u7269\u548c\u533b\u7597\u7528\u54c1\u7684\u7ec4\u7ec7\u548c\u8d44\u91d1\u4f9b\u5e94\u3002<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"why-was-circle-of-kindness-foundation-established\">\u4e3a\u4ec0\u4e48\u8981\u6210\u7acbCircle of Kindness\u57fa\u91d1\u4f1a\uff1f<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5b64\u513f\u75c5\u7ed9\u533b\u7597\u4fdd\u5065\u7cfb\u7edf\u5e26\u6765\u4e86\u6c89\u91cd\u7684\u793e\u4f1a\u7ecf\u6d4e\u8d1f\u62c5\u3002\u4e3a\u4e86\u4fdd\u969c\u5b64\u513f\u75c5\u60a3\u8005\uff0c\u5c24\u5176\u662f\u513f\u7ae5\u60a3\u8005\uff0c\u80fd\u591f\u83b7\u5f97\u6602\u8d35\u7684\u836f\u7269\uff0c\u5404\u56fd\u5236\u5b9a\u4e86\u5404\u79cd\u65b9\u6848\u30022021\u5e74\uff0c\u201cCircle of Kindness\u201d\u57fa\u91d1\u4f1a\u5728\u4fc4\u7f57\u65af\u6210\u7acb\uff0c\u65e8\u5728\u5e2e\u52a9\u60a3\u6709\u6162\u6027\u548c\u5371\u53ca\u751f\u547d\u7684\u75be\u75c5\uff08\u5305\u62ec\u7f55\u89c1\u75c5\uff09\u7684\u513f\u7ae5\u3002<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"take-from-the-rich-give-to-the-poor\">\u52ab\u5bcc\u6d4e\u8d2b<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u5c3d\u7ba1\u7f55\u89c1\u75c5\uff08\u5b64\u513f\u75c5\uff09\u7ed9\u536b\u751f\u7cfb\u7edf\u5e26\u6765\u4e86\u6c89\u91cd\u7684\u8d22\u653f\u8d1f\u62c5\uff0c\u4e14\u8fd9\u4e9b\u6602\u8d35\u7597\u6cd5\u7684\u53ef\u53ca\u6027\u53d7\u5230\u9650\u5236\uff0c\u4fc4\u7f57\u65af\u4ecd\u8bbe\u7acb\u4e86\u4e00\u4e2a\u540d\u4e3a\u201cCircle of Kindness\u201d\u7684\u57fa\u91d1\u4f1a\uff0c\u5176\u8d44\u91d1\u6765\u81ea\u9ad8\u6536\u5165\u8005\u7f34\u7eb3\u7684\u4e2a\u4eba\u6240\u5f97\u7a0e\u76842%\u3002\u81ea2021\u5e74\u6210\u7acb\u4ee5\u6765\uff0c\u8fd9\u4e00\u53ef\u6301\u7eed\u673a\u5236\u5df2\u4e3a\u4fc4\u7f57\u65af\u8054\u90a684\u4e2a\u5730\u533a\u76842.4\u4e07\u591a\u540d\u7f55\u89c1\u75c5\u513f\u7ae5\u63d0\u4f9b\u4e86\u836f\u7269\uff0c\u603b\u989d\u8d85\u8fc7$24\u4ebf\u7f8e\u5143\u3002\u8d44\u6e90\u5206\u914d\u51b3\u7b56\u57fa\u4e8e\u536b\u751f\u6280\u672f\u8bc4\u4f30\u6d41\u7a0b\u3002<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u9ad8\u6536\u5165\u8005\u4e2a\u4eba\u6240\u5f97\u7a0e\u76842%\u5c06\u7528\u4e8e\u8d44\u52a9\u201cCircle of Kindness\u201d\u57fa\u91d1\u4f1a\u3002\u6362\u53e5\u8bdd\u8bf4\uff0c\u6bcf\u4f4d\u5e74\u6536\u5165\u8d85\u8fc7500\u4e07\u5362\u5e03\u7684\u4fc4\u7f57\u65af\u516c\u6c11\u90fd\u4f1a\u5c062%\u7684\u7a0e\u6b3e\u6350\u8d60\u7ed9\u8be5\u57fa\u91d1\u4f1a\u3002\u9664\u4e86\u786e\u4fdd\u60a3\u6709\u7f55\u89c1\u548c\u5371\u53ca\u751f\u547d\u7684\u75be\u75c5\u7684\u513f\u7ae5\u80fd\u591f\u83b7\u5f97\u5b64\u513f\u836f\u5916\uff0c\u8fd9\u79cd\u53ef\u9760\u4e14\u53ef\u6301\u7eed\u7684\u878d\u8d44\u65b9\u5f0f\u8fd8\u6d88\u9664\u4e86\u6301\u7eed\u5f00\u5c55\u793e\u533a\u7b79\u6b3e\u6d3b\u52a8\u7684\u9700\u8981\u3002<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cCircle of Kindness\u201d\u81ea\u6210\u7acb\u4ee5\u6765\u5df2\u5728 84 \u4e2a\u5730\u70b9\u5e2e\u52a9\u4e86\u8d85\u8fc7 24,000 \u540d\u513f\u7ae5\uff0c\u4e3a\u8fd9\u9879\u6025\u9700\u7684\u6cbb\u7597\u82b1\u8d39\u4e86 2.26 \u4ebf\u5362\u5e03\uff08$ \u76f8\u5f53\u4e8e 24 \u4ebf\u7f8e\u5143\uff09\u3002<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"fas-and-circle-of-kindness-have-achieved-a-price-reduction-for-the-first-gene-therapy-elevidys\">\u4fc4\u7f57\u65af\u9996\u4e2a\u57fa\u56e0\u7597\u6cd5Elevidys\u964d\u4ef7<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Circle of Kindness\u6148\u5584\u56fd\u5bb6\u57fa\u91d1\u4f1a\u4e0e\u8054\u90a6\u53cd\u5784\u65ad\u5c40\u5408\u4f5c\uff0c\u5927\u5e45\u964d\u4f4e\u4e86Elevidys\uff08delandistrogene moxeparvec\uff09\u7684\u4ef7\u683c\u3002Elevidys\u662f\u7f8e\u56fdSarepta Therapeutics\u516c\u53f8\u751f\u4ea7\u7684\u9996\u4e2a\u57fa\u56e0\u7597\u6cd5\u3002\u5b83\u662f\u9996\u4e2a\u7528\u4e8e\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u60a3\u8005\u57fa\u56e0\u66ff\u4ee3\u6cbb\u7597\u7684\u5355\u5242\u91cf\u836f\u7269\u3002\u8be5\u836f\u7269\u5728\u4fc4\u7f57\u65af\u5c1a\u672a\u6ce8\u518c\u3002<\/p>\n\n\n\n<h2 class=\"wp-block-heading\" id=\"69-children-in-russia-receive-elevidys-gene-therapy\">\u4fc4\u7f57\u65af69\u540d\u513f\u7ae5\u63a5\u53d7Elevidys\u57fa\u56e0\u6cbb\u7597<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u9664\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u57fa\u56e0\u5916\u663e\u5b508\u548c\/\u62169\u7f3a\u5931\u7684\u513f\u7ae5\u5916\uff0cElevidys\u7597\u6cd5\u63a8\u8350\u7528\u4e8e4-5\u5c81\u5df2\u8bc1\u5b9e\u5b58\u5728DMD\u57fa\u56e0\u7a81\u53d8\u7684\u513f\u7ae5\u3002\u636e\u8be5\u57fa\u91d1\u4f1a\u79f0\uff0c\u4e34\u5e8a\u8bd5\u9a8c\u5df2\u8bc1\u660e\u8be5\u5e74\u9f84\u6bb5\u513f\u7ae5\u7684\u7597\u6548\u6700\u4f73\u3002\u4ed6\u4eec\u4e8e2024\u5e74\u5f00\u59cb\u91c7\u8d2d\u8be5\u836f\u7269\u3002\u76ee\u524d\u5df2\u670969\u540d\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\uff08DMD\uff09\u513f\u7ae5\u63a5\u53d7\u4e86\u5355\u5242\u91cf\u57fa\u56e0\u66ff\u4ee3\u836f\u7269\u6cbb\u7597\uff0c\u8be5\u836f\u7269\u5728\u4fc4\u7f57\u65af\u5df2\u5411\u4ed6\u4eec\u63d0\u4f9b\uff0c\u4fc4\u7f57\u65af\u662f\u9996\u6279\u83b7\u5f97\u8be5\u836f\u7269\u7684\u56fd\u5bb6\u4e4b\u4e00\u30022021\u5e74\u81f32024\u5e74\u95f4\uff0c\u8be5\u57fa\u91d1\u4f1a\u5df2\u5e2e\u52a9\u4e86531\u540d\u60a3\u6709\u8be5\u75be\u75c5\u7684\u513f\u7ae5\u3002<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u4e86\u89e3\u66f4\u591a\uff1a <a href=\"https:\/\/dmdwarrior.com\/zh\/russian-biotech-company-generium-has-begun-clinical-trials-of-a-gene-therapy-for-duchenne-muscular-dystrophy\/\">\u4fc4\u7f57\u65af\u751f\u7269\u79d1\u6280\u516c\u53f8 Generium \u5df2\u5f00\u59cb\u5bf9\u675c\u6c0f\u808c\u8425\u517b\u4e0d\u826f\u75c7\u8fdb\u884c\u57fa\u56e0\u6cbb\u7597\u7684\u4e34\u5e8a\u8bd5\u9a8c<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>According to the Foundation&#8217;s press office, &#8220;as a result of the negotiations, the price of one of the most expensive drugs (Elevidys) in the world was reduced by 18%, that is by \u20ac400,000, to \u20ac2.2 million.&#8221; (FAQ Elevidys) What is Circle of Kindness Foundation? In January 2021, Russian President Vladimir Putin signed an order creating [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":3746,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[355,33,179,61,135,65],"class_list":["post-3743","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-circle-of-kindness","tag-elevidys","tag-elevidys-gene-therapy","tag-gene-therapy","tag-russia","tag-sarepta"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/3743","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/comments?post=3743"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/posts\/3743\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media\/3746"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/media?parent=3743"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/categories?post=3743"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/zh\/wp-json\/wp\/v2\/tags?post=3743"}],"curies":[{"name":"\u53ef\u6e7f\u6027\u7c89\u5242","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}