{"id":5375,"date":"2025-12-17T13:43:10","date_gmt":"2025-12-17T10:43:10","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=5375"},"modified":"2025-12-17T13:43:11","modified_gmt":"2025-12-17T10:43:11","slug":"secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/ru\/secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa\/","title":{"rendered":"\u0413\u043e\u0441\u0441\u0435\u043a\u0440\u0435\u0442\u0430\u0440\u044c \u041a\u0435\u043d\u043d\u0435\u0434\u0438 \u0440\u0430\u0441\u0448\u0438\u0440\u044f\u0435\u0442 \u043f\u0440\u043e\u0433\u0440\u0430\u043c\u043c\u0443 \u0441\u043a\u0440\u0438\u043d\u0438\u043d\u0433\u0430 \u043d\u043e\u0432\u043e\u0440\u043e\u0436\u0434\u0435\u043d\u043d\u044b\u0445, \u0432\u043a\u043b\u044e\u0447\u0438\u0432 \u0432 \u043d\u0435\u0435 \u043c\u044b\u0448\u0435\u0447\u043d\u0443\u044e \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044e \u0414\u044e\u0448\u0435\u043d\u043d\u0430 \u0432 \u0421\u0428\u0410."},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u041c\u044b\u0448\u0435\u0447\u043d\u0430\u044f \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044f \u0414\u044e\u0448\u0435\u043d\u043d\u0430 (\u0414\u044e\u0448\u0435\u043d\u043d\u0430) \u043e\u0444\u0438\u0446\u0438\u0430\u043b\u044c\u043d\u043e \u0432\u043a\u043b\u044e\u0447\u0435\u043d\u0430 \u0432 \u0420\u0435\u043a\u043e\u043c\u0435\u043d\u0434\u043e\u0432\u0430\u043d\u043d\u0443\u044e \u0435\u0434\u0438\u043d\u0443\u044e \u043f\u0430\u043d\u0435\u043b\u044c \u0441\u043a\u0440\u0438\u043d\u0438\u043d\u0433\u0430 (RUSP) \u041c\u0438\u043d\u0438\u0441\u0442\u0435\u0440\u0441\u0442\u0432\u043e\u043c \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0438 \u0441\u043e\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0445 \u0441\u043b\u0443\u0436\u0431 \u0421\u0428\u0410 (HHS), \u0447\u0442\u043e \u0440\u0430\u0441\u0448\u0438\u0440\u044f\u0435\u0442 \u0441\u043f\u0438\u0441\u043e\u043a \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439, \u0440\u0435\u043a\u043e\u043c\u0435\u043d\u0434\u043e\u0432\u0430\u043d\u043d\u044b\u0445 \u0434\u043b\u044f \u0441\u043a\u0440\u0438\u043d\u0438\u043d\u0433\u0430 \u043d\u043e\u0432\u043e\u0440\u043e\u0436\u0434\u0435\u043d\u043d\u044b\u0445 \u043f\u043e \u0432\u0441\u0435\u0439 \u0441\u0442\u0440\u0430\u043d\u0435. <strong>\u042d\u0442\u043e \u0437\u043d\u0430\u043a\u043e\u0432\u043e\u0435 \u0440\u0435\u0448\u0435\u043d\u0438\u0435 \u0437\u043d\u0430\u0447\u0438\u0442\u0435\u043b\u044c\u043d\u043e \u0440\u0430\u0441\u0448\u0438\u0440\u044f\u0435\u0442 \u0432\u043e\u0437\u043c\u043e\u0436\u043d\u043e\u0441\u0442\u0438 \u0440\u0430\u043d\u043d\u0435\u0439 \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0438 \u0438 \u043b\u0435\u0447\u0435\u043d\u0438\u044f \u0434\u0435\u0442\u0435\u0439 \u0441 \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u0439 \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u0435\u0439 \u0414\u044e\u0448\u0435\u043d\u043d\u0430.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u041c\u0438\u043d\u0438\u0441\u0442\u0440 \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0438 \u0441\u043e\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0445 \u0441\u043b\u0443\u0436\u0431 \u0421\u0428\u0410 \u0420\u043e\u0431\u0435\u0440\u0442 \u0424. \u041a\u0435\u043d\u043d\u0435\u0434\u0438-\u043c\u043b\u0430\u0434\u0448\u0438\u0439 \u0441\u0435\u0433\u043e\u0434\u043d\u044f \u043e\u0434\u043e\u0431\u0440\u0438\u043b \u0432\u043a\u043b\u044e\u0447\u0435\u043d\u0438\u0435 \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u0439 \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u0438 \u0414\u044e\u0448\u0435\u043d\u043d\u0430 (\u041c\u0414\u0414) \u0438 \u043c\u0435\u0442\u0430\u0445\u0440\u043e\u043c\u0430\u0442\u0438\u0447\u0435\u0441\u043a\u043e\u0439 \u043b\u0435\u0439\u043a\u043e\u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u0438 (\u041c\u041b\u0414) \u0432 \u0420\u0435\u043a\u043e\u043c\u0435\u043d\u0434\u043e\u0432\u0430\u043d\u043d\u0443\u044e \u0435\u0434\u0438\u043d\u0443\u044e \u043f\u0430\u043d\u0435\u043b\u044c \u0441\u043a\u0440\u0438\u043d\u0438\u043d\u0433\u0430 (RUSP) \u043f\u043e\u0441\u043b\u0435 \u043d\u0430\u0443\u0447\u043d\u043e\u0439 \u044d\u043a\u0441\u043f\u0435\u0440\u0442\u0438\u0437\u044b \u0438 \u043e\u0431\u0449\u0435\u0441\u0442\u0432\u0435\u043d\u043d\u043e\u0433\u043e \u043e\u0431\u0441\u0443\u0436\u0434\u0435\u043d\u0438\u044f. \u0420\u0430\u043d\u043d\u0435\u0435 \u0432\u044b\u044f\u0432\u043b\u0435\u043d\u0438\u0435 \u043e\u0431\u043e\u0438\u0445 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439 \u043f\u043e\u0437\u0432\u043e\u043b\u044f\u0435\u0442 \u0434\u0435\u0442\u044f\u043c \u043f\u043e\u043b\u0443\u0447\u0430\u0442\u044c \u043e\u0434\u043e\u0431\u0440\u0435\u043d\u043d\u044b\u0435 \u0434\u043b\u044f \u0442\u0435\u0440\u0430\u043f\u0438\u0438 FDA \u043f\u0440\u0435\u043f\u0430\u0440\u0430\u0442\u044b \u0432 \u043d\u0430\u0438\u0431\u043e\u043b\u0435\u0435 \u044d\u0444\u0444\u0435\u043a\u0442\u0438\u0432\u043d\u043e\u0435 \u0432\u0440\u0435\u043c\u044f, \u0447\u0442\u043e \u043f\u043e\u043c\u043e\u0433\u0430\u0435\u0442 \u0437\u0430\u043c\u0435\u0434\u043b\u0438\u0442\u044c \u043f\u0440\u043e\u0433\u0440\u0435\u0441\u0441\u0438\u0440\u043e\u0432\u0430\u043d\u0438\u0435 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u044f \u0438 \u0441\u043e\u0445\u0440\u0430\u043d\u0438\u0442\u044c \u043a\u0430\u0447\u0435\u0441\u0442\u0432\u043e \u0438\u0445 \u0436\u0438\u0437\u043d\u0438.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c\u041a\u0430\u043a \u0433\u043e\u0432\u043e\u0440\u0438\u043b \u043c\u043e\u0439 \u0434\u044f\u0434\u044f: \u2018\u0425\u043e\u0442\u044f \u0434\u0435\u0442\u0438 \u043c\u043e\u0433\u0443\u0442 \u0431\u044b\u0442\u044c \u0436\u0435\u0440\u0442\u0432\u0430\u043c\u0438 \u0441\u0443\u0434\u044c\u0431\u044b, \u043e\u043d\u0438 \u043d\u0435 \u0441\u0442\u0430\u043d\u0443\u0442 \u0436\u0435\u0440\u0442\u0432\u0430\u043c\u0438 \u043d\u0430\u0448\u0435\u0439 \u0445\u0430\u043b\u0430\u0442\u043d\u043e\u0441\u0442\u0438\u2019\u201d, \u2014 \u0441\u043a\u0430\u0437\u0430\u043b \u043c\u0438\u043d\u0438\u0441\u0442\u0440 \u041a\u0435\u043d\u043d\u0435\u0434\u0438. \u201c\u042d\u0442\u043e\u0442 \u0448\u0430\u0433 \u0441\u043e\u043e\u0442\u0432\u0435\u0442\u0441\u0442\u0432\u0443\u0435\u0442 \u044d\u0442\u043e\u043c\u0443 \u043f\u0440\u0438\u043d\u0446\u0438\u043f\u0443. \u0420\u0430\u043d\u043d\u044f\u044f \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0430 \u0434\u0430\u0435\u0442 \u043a\u0430\u0436\u0434\u043e\u043c\u0443 \u0440\u0435\u0431\u0435\u043d\u043a\u0443 \u0440\u0430\u0432\u043d\u044b\u0435 \u0448\u0430\u043d\u0441\u044b \u043d\u0430 \u0441\u0432\u043e\u0435\u0432\u0440\u0435\u043c\u0435\u043d\u043d\u0443\u044e \u0438 \u044d\u0444\u0444\u0435\u043a\u0442\u0438\u0432\u043d\u0443\u044e \u043f\u043e\u043c\u043e\u0449\u044c, \u0430 \u0442\u0430\u043a\u0436\u0435 \u043f\u0440\u0435\u0434\u043e\u0441\u0442\u0430\u0432\u043b\u044f\u0435\u0442 \u0441\u0435\u043c\u044c\u044f\u043c \u043e\u0442\u0432\u0435\u0442\u044b \u0438 \u0432\u0430\u0440\u0438\u0430\u043d\u0442\u044b \u043b\u0435\u0447\u0435\u043d\u0438\u044f, \u043a\u043e\u0442\u043e\u0440\u044b\u0445 \u043e\u043d\u0438 \u0437\u0430\u0441\u043b\u0443\u0436\u0438\u0432\u0430\u044e\u0442, \u2014 \u0438\u043c\u0435\u043d\u043d\u043e \u0442\u043e\u0433\u0434\u0430, \u043a\u043e\u0433\u0434\u0430 \u043e\u043d\u0438 \u0431\u043e\u043b\u044c\u0448\u0435 \u0432\u0441\u0435\u0433\u043e \u0432 \u044d\u0442\u043e\u043c \u043d\u0443\u0436\u0434\u0430\u044e\u0442\u0441\u044f\u201d.\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0427\u0438\u0442\u0430\u0442\u044c \u0434\u0430\u043b\u0435\u0435<\/strong>:&nbsp;<a href=\"https:\/\/dmdwarrior.com\/ru\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u041a\u043b\u0438\u043d\u0438\u0447\u0435\u0441\u043a\u0438\u0435 \u0438\u0441\u043f\u044b\u0442\u0430\u043d\u0438\u044f \u043c\u044b\u0448\u0435\u0447\u043d\u043e\u0439 \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u0438 \u0414\u044e\u0448\u0435\u043d\u043d\u0430 (\u0441\u043f\u0438\u0441\u043e\u043a \u0432\u0441\u0435\u0445 \u0438\u0441\u0441\u043b\u0435\u0434\u043e\u0432\u0430\u043d\u0438\u0439)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Duchenne muscular dystrophy (Duchenne) has been officially added to the Recommended Uniform Screening Panel (RUSP) by the U.S. Department of Health and Human Services (HHS), expanding the list of conditions recommended for newborn screening nationwide. This landmark action significantly improves opportunities for early diagnosis and care for children with Duchenne. The U.S. Department of Health [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5376,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[469,79],"class_list":["post-5375","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-robert-f-kennedy","tag-usa"],"subtitle":"\u0412 \u0441\u043f\u0438\u0441\u043e\u043a \u0440\u0435\u043a\u043e\u043c\u0435\u043d\u0434\u043e\u0432\u0430\u043d\u043d\u044b\u0445 \u041c\u0438\u043d\u0438\u0441\u0442\u0435\u0440\u0441\u0442\u0432\u043e\u043c \u0437\u0434\u0440\u0430\u0432\u043e\u043e\u0445\u0440\u0430\u043d\u0435\u043d\u0438\u044f \u0438 \u0441\u043e\u0446\u0438\u0430\u043b\u044c\u043d\u044b\u0445 \u0441\u043b\u0443\u0436\u0431 \u0421\u0428\u0410 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439 \u0432\u043a\u043b\u044e\u0447\u0435\u043d\u0430 \u043c\u044b\u0448\u0435\u0447\u043d\u0430\u044f \u0434\u0438\u0441\u0442\u0440\u043e\u0444\u0438\u044f \u0414\u044e\u0448\u0435\u043d\u043d\u0430, \u0447\u0442\u043e \u0443\u043b\u0443\u0447\u0448\u0430\u0435\u0442 \u0440\u0430\u043d\u043d\u044e\u044e \u0434\u0438\u0430\u0433\u043d\u043e\u0441\u0442\u0438\u043a\u0443 \u0438 \u043b\u0435\u0447\u0435\u043d\u0438\u0435 \u043f\u043e \u0432\u0441\u0435\u0439 \u0441\u0442\u0440\u0430\u043d\u0435.","_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/posts\/5375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/comments?post=5375"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/posts\/5375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/media\/5376"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/media?parent=5375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/categories?post=5375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ru\/wp-json\/wp\/v2\/tags?post=5375"}],"curies":[{"name":"WP","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}