{"id":5375,"date":"2025-12-17T13:43:10","date_gmt":"2025-12-17T10:43:10","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=5375"},"modified":"2025-12-17T13:43:11","modified_gmt":"2025-12-17T10:43:11","slug":"secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/pt\/secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa\/","title":{"rendered":"O secret\u00e1rio Kennedy amplia o rastreio neonatal para incluir a distrofia muscular de Duchenne nos EUA."},"content":{"rendered":"<p class=\"wp-block-paragraph\">A distrofia muscular de Duchenne (Duchenne) foi oficialmente adicionada ao Painel Uniforme de Triagem Recomendado (RUSP, na sigla em ingl\u00eas) pelo Departamento de Sa\u00fade e Servi\u00e7os Humanos dos EUA (HHS, na sigla em ingl\u00eas), ampliando a lista de doen\u00e7as recomendadas para triagem neonatal em todo o pa\u00eds. <strong>Essa a\u00e7\u00e3o hist\u00f3rica melhora significativamente as oportunidades de diagn\u00f3stico precoce e tratamento para crian\u00e7as com distrofia muscular de Duchenne.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">O Secret\u00e1rio de Sa\u00fade e Servi\u00e7os Humanos dos EUA (HHS), Robert F. Kennedy Jr., aprovou hoje a inclus\u00e3o da Distrofia Muscular de Duchenne (DMD) e da Leucodistrofia Metacrom\u00e1tica (MLD) no Painel Uniforme de Triagem Recomendado (RUSP), ap\u00f3s revis\u00e3o cient\u00edfica e consulta p\u00fablica. A detec\u00e7\u00e3o precoce de ambas as doen\u00e7as permite que as crian\u00e7as recebam as terapias aprovadas pela FDA no momento mais eficaz, ajudando a retardar a progress\u00e3o da doen\u00e7a e a preservar sua qualidade de vida.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cComo meu tio costumava dizer, &#039;embora as crian\u00e7as possam ser v\u00edtimas do destino, elas n\u00e3o ser\u00e3o v\u00edtimas de nossa neglig\u00eancia&#039;\u2018, disse o Secret\u00e1rio Kennedy. \u2019Esta a\u00e7\u00e3o honra esse princ\u00edpio. A triagem precoce oferece a todas as crian\u00e7as uma chance justa de receber cuidados oportunos e eficazes, e proporciona \u00e0s fam\u00edlias as respostas e as op\u00e7\u00f5es de tratamento que elas merecem \u2014 exatamente quando mais precisam.\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Ler mais<\/strong>:&nbsp;<a href=\"https:\/\/dmdwarrior.com\/pt\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">Ensaios cl\u00ednicos para distrofia muscular de Duchenne (lista de todas as pesquisas)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Duchenne muscular dystrophy (Duchenne) has been officially added to the Recommended Uniform Screening Panel (RUSP) by the U.S. Department of Health and Human Services (HHS), expanding the list of conditions recommended for newborn screening nationwide. This landmark action significantly improves opportunities for early diagnosis and care for children with Duchenne. The U.S. Department of Health [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5376,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[469,79],"class_list":["post-5375","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-robert-f-kennedy","tag-usa"],"subtitle":"A distrofia muscular de Duchenne foi adicionada ao Painel Uniforme de Triagem Recomendado pelo Departamento de Sa\u00fade e Servi\u00e7os Humanos (HHS), melhorando a identifica\u00e7\u00e3o precoce e o atendimento em todo o pa\u00eds.","_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/posts\/5375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/comments?post=5375"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/posts\/5375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/media\/5376"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/media?parent=5375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/categories?post=5375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/pt\/wp-json\/wp\/v2\/tags?post=5375"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}