{"id":5375,"date":"2025-12-17T13:43:10","date_gmt":"2025-12-17T10:43:10","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=5375"},"modified":"2025-12-17T13:43:11","modified_gmt":"2025-12-17T10:43:11","slug":"secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/fr\/secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa\/","title":{"rendered":"Le secr\u00e9taire Kennedy \u00e9tend le d\u00e9pistage n\u00e9onatal \u00e0 la dystrophie musculaire de Duchenne aux \u00c9tats-Unis."},"content":{"rendered":"<p class=\"wp-block-paragraph\">La dystrophie musculaire de Duchenne (Duchenne) a \u00e9t\u00e9 officiellement ajout\u00e9e au panel de d\u00e9pistage uniforme recommand\u00e9 (RUSP) par le d\u00e9partement am\u00e9ricain de la Sant\u00e9 et des Services sociaux (HHS), \u00e9largissant ainsi la liste des affections recommand\u00e9es pour le d\u00e9pistage n\u00e9onatal \u00e0 l&#039;\u00e9chelle nationale. <strong>Cette mesure historique am\u00e9liore consid\u00e9rablement les possibilit\u00e9s de diagnostic pr\u00e9coce et de prise en charge des enfants atteints de dystrophie musculaire de Duchenne.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Le secr\u00e9taire am\u00e9ricain \u00e0 la Sant\u00e9 et aux Services sociaux, Robert F. Kennedy Jr., a approuv\u00e9 aujourd&#039;hui l&#039;ajout de la dystrophie musculaire de Duchenne (DMD) et de la leucodystrophie m\u00e9tachromatique (MLD) au panel de d\u00e9pistage uniforme recommand\u00e9 (RUSP), suite \u00e0 un examen scientifique et \u00e0 une consultation publique. Le d\u00e9pistage pr\u00e9coce de ces deux maladies permet aux enfants de b\u00e9n\u00e9ficier des traitements approuv\u00e9s par l&#039;ITP149T au moment le plus opportun, contribuant ainsi \u00e0 ralentir la progression de la maladie et \u00e0 pr\u00e9server leur qualit\u00e9 de vie.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201c\u00a0Comme l\u2019a dit mon oncle\u00a0: \u2018Si les enfants peuvent \u00eatre victimes du destin, ils ne seront pas victimes de notre n\u00e9gligence\u2019, a d\u00e9clar\u00e9 le secr\u00e9taire Kennedy. Cette mesure respecte ce principe. Le d\u00e9pistage pr\u00e9coce offre \u00e0 chaque enfant une chance \u00e9gale de b\u00e9n\u00e9ficier de soins efficaces et prodigu\u00e9s en temps opportun, et il apporte aux familles les r\u00e9ponses et les options de traitement qu\u2019elles m\u00e9ritent, au moment o\u00f9 elles en ont le plus besoin.\u00a0\u201d<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>En savoir plus<\/strong>:&nbsp;<a href=\"https:\/\/dmdwarrior.com\/fr\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">Essais cliniques sur la dystrophie musculaire de Duchenne (Liste de toutes les recherches)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Duchenne muscular dystrophy (Duchenne) has been officially added to the Recommended Uniform Screening Panel (RUSP) by the U.S. Department of Health and Human Services (HHS), expanding the list of conditions recommended for newborn screening nationwide. This landmark action significantly improves opportunities for early diagnosis and care for children with Duchenne. The U.S. Department of Health [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5376,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[469,79],"class_list":["post-5375","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-robert-f-kennedy","tag-usa"],"subtitle":"La dystrophie musculaire de Duchenne a \u00e9t\u00e9 ajout\u00e9e au panel de d\u00e9pistage uniforme recommand\u00e9 par le HHS, ce qui am\u00e9liore le d\u00e9pistage pr\u00e9coce et la prise en charge \u00e0 l'\u00e9chelle nationale.","_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/posts\/5375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/comments?post=5375"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/posts\/5375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/media\/5376"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/media?parent=5375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/categories?post=5375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/fr\/wp-json\/wp\/v2\/tags?post=5375"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}