{"id":5375,"date":"2025-12-17T13:43:10","date_gmt":"2025-12-17T10:43:10","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=5375"},"modified":"2025-12-17T13:43:11","modified_gmt":"2025-12-17T10:43:11","slug":"secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/es\/secretary-kennedy-expands-newborn-screening-to-include-duchenne-muscular-dystrophy-in-usa\/","title":{"rendered":"El Secretario Kennedy ampl\u00eda la detecci\u00f3n precoz de la distrofia muscular de Duchenne en reci\u00e9n nacidos en EE. UU."},"content":{"rendered":"<p class=\"wp-block-paragraph\">El Departamento de Salud y Servicios Humanos de los EE. UU. (HHS) ha agregado oficialmente la distrofia muscular de Duchenne (Duchenne) al Panel de detecci\u00f3n uniforme recomendado (RUSP), ampliando la lista de afecciones recomendadas para la detecci\u00f3n en reci\u00e9n nacidos en todo el pa\u00eds. <strong>Esta acci\u00f3n hist\u00f3rica mejora significativamente las oportunidades de diagn\u00f3stico temprano y atenci\u00f3n para los ni\u00f1os con Duchenne.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">El Secretario del Departamento de Salud y Servicios Humanos de los Estados Unidos (HHS), Robert F. Kennedy, Jr., aprob\u00f3 hoy la incorporaci\u00f3n de la Distrofia Muscular de Duchenne (DMD) y la Leucodistrofia Metacrom\u00e1tica (MLD) al Panel Uniforme de Detecci\u00f3n Recomendado (RUSP), tras la revisi\u00f3n cient\u00edfica y la consulta p\u00fablica. La detecci\u00f3n temprana de ambas afecciones permite que los ni\u00f1os reciban terapias aprobadas por FDA en el momento m\u00e1s eficaz, lo que ayuda a retrasar la progresi\u00f3n de la enfermedad y a preservar su calidad de vida.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u201cComo dijo mi t\u00edo, &#039;aunque los ni\u00f1os sean v\u00edctimas del destino, no ser\u00e1n v\u00edctimas de nuestra negligencia&#039;\u2018, declar\u00f3 el Secretario Kennedy. \u2019Esta medida honra ese principio. La detecci\u00f3n temprana brinda a cada ni\u00f1o una oportunidad justa de recibir atenci\u00f3n oportuna y eficaz, y brinda a las familias las respuestas y las opciones de tratamiento que merecen, justo cuando m\u00e1s las necesitan\u201d.\u201c<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>Leer m\u00e1s<\/strong>:&nbsp;<a href=\"https:\/\/dmdwarrior.com\/es\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">Ensayos cl\u00ednicos para la distrofia muscular de Duchenne (Lista de todas las investigaciones)<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Duchenne muscular dystrophy (Duchenne) has been officially added to the Recommended Uniform Screening Panel (RUSP) by the U.S. Department of Health and Human Services (HHS), expanding the list of conditions recommended for newborn screening nationwide. This landmark action significantly improves opportunities for early diagnosis and care for children with Duchenne. The U.S. Department of Health [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":5376,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[469,79],"class_list":["post-5375","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-robert-f-kennedy","tag-usa"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/posts\/5375","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/comments?post=5375"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/posts\/5375\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/media\/5376"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/media?parent=5375"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/categories?post=5375"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/es\/wp-json\/wp\/v2\/tags?post=5375"}],"curies":[{"name":"gracias","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}