{"id":8335,"date":"2026-08-07T11:41:14","date_gmt":"2026-08-07T08:41:14","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=8335"},"modified":"2026-08-07T12:01:11","modified_gmt":"2026-08-07T09:01:11","slug":"dmd-associations-hashtag-campaigns-effectiveness","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/ar\/dmd-associations-hashtag-campaigns-effectiveness\/","title":{"rendered":"\u0647\u0644 \u062a\u0633\u0627\u0639\u062f \u062d\u0645\u0644\u0627\u062a \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u062c \u0639\u0644\u0649 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0639\u0644\u0649 \u062a\u062d\u0633\u064a\u0646 \u0627\u0644\u0648\u0635\u0648\u0644 \u0625\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a 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\u062a\u0635\u0628\u062d \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0627\u0644\u0647\u062f\u0641 \u0627\u0644\u0646\u0647\u0627\u0626\u064a \u0644\u0644\u062f\u0639\u0648\u0629. \u0628\u0627\u0644\u0646\u0633\u0628\u0629 \u0644\u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0627\u0644\u062a\u064a \u062a\u0645\u062b\u0644 \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0647\u0630\u0627 \u0627\u0644\u0645\u0631\u0636 \u0627\u0644\u0645\u062a\u0641\u0627\u0642\u0645 \u0648\u0627\u0644\u0645\u0647\u062f\u062f \u0644\u0644\u062d\u064a\u0627\u0629\u060c \u064a\u062c\u0628 \u0623\u0646 \u062a\u064f\u0642\u0627\u0633 \u062c\u0647\u0648\u062f \u0627\u0644\u062f\u0639\u0648\u0629 \u0641\u064a \u0646\u0647\u0627\u064a\u0629 \u0627\u0644\u0645\u0637\u0627\u0641 \u0628\u0627\u0644\u062a\u062d\u0633\u064a\u0646\u0627\u062a \u0627\u0644\u0645\u0644\u0645\u0648\u0633\u0629 \u0641\u064a \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0631\u0636\u0649\u060c \u0644\u0627 \u0628\u0625\u062d\u0635\u0627\u0621\u0627\u062a \u0627\u0644\u062a\u0641\u0627\u0639\u0644 \u0639\u0628\u0631 \u0627\u0644\u0625\u0646\u062a\u0631\u0646\u062a.<\/p>\n\n\n\n<div class=\"wp-block-rank-math-toc-block\" id=\"rank-math-toc\"><h2>\u062c\u062f\u0648\u0644 \u0627\u0644\u0645\u062d\u062a\u0648\u064a\u0627\u062a<\/h2><nav><ul><li><a href=\"#visibility-is-not-the-same-as-impact\">\u0625\u0646 \u0627\u0644\u0638\u0647\u0648\u0631 \u0644\u0627 \u064a\u0639\u0646\u064a \u0628\u0627\u0644\u0636\u0631\u0648\u0631\u0629 \u0627\u0644\u062a\u0623\u062b\u064a\u0631<\/a><\/li><li><a href=\"#the-comfort-of-easy-advocacy\">\u0631\u0627\u062d\u0629 \u0633\u0647\u0648\u0644\u0629 \u0627\u0644\u0645\u0631\u0627\u0641\u0639\u0629<\/a><\/li><li><a href=\"#the-metrics-that-truly-matter\">\u0627\u0644\u0645\u0642\u0627\u064a\u064a\u0633 \u0627\u0644\u062a\u064a \u062a\u0647\u0645 \u062d\u0642\u0627\u064b<\/a><\/li><li><a href=\"#why-hashtag-campaigns-rarely-influence-healthcare-policy\">\u0644\u0645\u0627\u0630\u0627 \u0646\u0627\u062f\u0631\u0627\u064b \u0645\u0627 \u062a\u0624\u062b\u0631 \u062d\u0645\u0644\u0627\u062a \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u063a \u0639\u0644\u0649 \u0633\u064a\u0627\u0633\u0629 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629<\/a><\/li><li><a href=\"#awareness-without-accountability\">\u0627\u0644\u0648\u0639\u064a \u0628\u062f\u0648\u0646 \u0645\u0633\u0627\u0621\u0644\u0629<\/a><\/li><li><a href=\"#advocacy-should-challenge-systems-not-algorithms\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u062a\u062d\u062f\u0649 \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0623\u0646\u0638\u0645\u0629\u060c \u0644\u0627 \u0627\u0644\u062e\u0648\u0627\u0631\u0632\u0645\u064a\u0627\u062a.<\/a><\/li><li><a href=\"#what-dmd-associations-should-do-instead\">\u0645\u0627 \u0627\u0644\u0630\u064a \u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0641\u0639\u0644\u0647 \u0628\u062f\u0644\u0627\u064b \u0645\u0646 \u0630\u0644\u0643\u061f<\/a><ul><li><a href=\"#1-publish-annual-advocacy-impact-reports\">1. \u0646\u0634\u0631 \u062a\u0642\u0627\u0631\u064a\u0631 \u0633\u0646\u0648\u064a\u0629 \u0639\u0646 \u0623\u062b\u0631 \u0623\u0646\u0634\u0637\u0629 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629<\/a><\/li><li><a href=\"#2-build-strong-national-patient-registries\">2. \u0628\u0646\u0627\u0621 \u0633\u062c\u0644\u0627\u062a \u0648\u0637\u0646\u064a\u0629 \u0642\u0648\u064a\u0629 \u0644\u0644\u0645\u0631\u0636\u0649<\/a><\/li><li><a href=\"#3-produce-independent-scientific-reviews\">3. \u0625\u0639\u062f\u0627\u062f \u0645\u0631\u0627\u062c\u0639\u0627\u062a \u0639\u0644\u0645\u064a\u0629 \u0645\u0633\u062a\u0642\u0644\u0629<\/a><\/li><li><a href=\"#4-demand-greater-transparency-from-industry\">4. \u0627\u0644\u0645\u0637\u0627\u0644\u0628\u0629 \u0628\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629 \u0645\u0646 \u062c\u0627\u0646\u0628 \u0627\u0644\u0635\u0646\u0627\u0639\u0629<\/a><\/li><li><a href=\"#5-engage-policymakers-continuously\">5. \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0645\u0633\u062a\u0645\u0631 \u0645\u0639 \u0635\u0646\u0627\u0639 \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a<\/a><\/li><li><a href=\"#6-publish-international-access-reports\">6. \u0646\u0634\u0631 \u062a\u0642\u0627\u0631\u064a\u0631 \u0627\u0644\u0648\u0635\u0648\u0644 \u0627\u0644\u062f\u0648\u0644\u064a<\/a><\/li><li><a href=\"#7-invest-in-health-economics\">7. \u0627\u0644\u0627\u0633\u062a\u062b\u0645\u0627\u0631 \u0641\u064a \u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0627\u062a \u0627\u0644\u0635\u062d\u0629<\/a><\/li><li><a href=\"#8-create-international-advocacy-coalitions\">8. \u0625\u0646\u0634\u0627\u0621 \u062a\u062d\u0627\u0644\u0641\u0627\u062a \u0645\u0646\u0627\u0635\u0631\u0629 \u062f\u0648\u0644\u064a\u0629<\/a><\/li><li><a href=\"#9-define-success-before-every-campaign\">9. \u062d\u062f\u062f \u0645\u0639\u0627\u064a\u064a\u0631 \u0627\u0644\u0646\u062c\u0627\u062d \u0642\u0628\u0644 \u0643\u0644 \u062d\u0645\u0644\u0629<\/a><\/li><li><a href=\"#10-use-social-media-as-a-tool-not-the-mission\">10. \u0627\u0633\u062a\u062e\u062f\u0645 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0643\u0623\u062f\u0627\u0629 - \u0648\u0644\u064a\u0633 \u0643\u063a\u0627\u064a\u0629 \u0641\u064a \u062d\u062f \u0630\u0627\u062a\u0647\u0627<\/a><\/li><\/ul><\/li><li><a href=\"#the-future-of-duchenne-advocacy\">\u0645\u0633\u062a\u0642\u0628\u0644 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u062f\u0648\u0634\u064a\u0646<\/a><\/li><li><a href=\"#conclusion\">\u062e\u0627\u062a\u0645\u0629<\/a><\/li><\/ul><\/nav><\/div>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"visibility-is-not-the-same-as-impact\" class=\"wp-block-heading\">\u0625\u0646 \u0627\u0644\u0638\u0647\u0648\u0631 \u0644\u0627 \u064a\u0639\u0646\u064a \u0628\u0627\u0644\u0636\u0631\u0648\u0631\u0629 \u0627\u0644\u062a\u0623\u062b\u064a\u0631<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0643\u0627\u0641\u0626 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0627\u0644\u062d\u062f\u064a\u062b\u0629 \u0627\u0644\u0638\u0647\u0648\u0631 \u0648\u0627\u0644\u0638\u0647\u0648\u0631.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0643\u0627\u0641\u0626 \u0623\u0646\u0638\u0645\u0629 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629 \u0627\u0644\u0623\u062f\u0644\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0630\u0647 \u0623\u0646\u0638\u0645\u0629 \u0645\u062e\u062a\u0644\u0641\u0629 \u062a\u0645\u0627\u0645\u0627\u064b.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0642\u062f \u062a\u0635\u0644 \u062d\u0645\u0644\u0629 \u0639\u0644\u0649 \u0645\u0646\u0635\u0629 X \u0623\u0648 \u0647\u0627\u0634\u062a\u0627\u062c \u0639\u0644\u0649 \u0625\u0646\u0633\u062a\u063a\u0631\u0627\u0645 \u0625\u0644\u0649 \u0645\u0644\u0627\u064a\u064a\u0646 \u0627\u0644\u0623\u0634\u062e\u0627\u0635 \u062f\u0648\u0646 \u0627\u0644\u062a\u0623\u062b\u064a\u0631 \u0639\u0644\u0649 \u0642\u0631\u0627\u0631 \u0648\u0627\u062d\u062f \u064a\u062a\u0639\u0644\u0642 \u0628\u0633\u062f\u0627\u062f \u0627\u0644\u062a\u0643\u0627\u0644\u064a\u0641 \u0623\u0648 \u062a\u0633\u0631\u064a\u0639 \u0627\u0644\u0648\u0635\u0648\u0644 \u0625\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0644\u0633\u0648\u0621 \u0627\u0644\u062d\u0638\u060c \u0644\u0627 \u062a\u0632\u0627\u0644 \u0627\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u062a\u0633\u0644\u0637 \u0627\u0644\u0636\u0648\u0621 \u0639\u0644\u0649 \u0645\u0642\u0627\u064a\u064a\u0633 \u0645\u062b\u0644:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0639\u062f\u062f \u0645\u0631\u0627\u062a \u0627\u0644\u0638\u0647\u0648\u0631<\/li>\n\n\n\n<li>\u0639\u062f\u062f \u0627\u0644\u0623\u0633\u0647\u0645<\/li>\n\n\n\n<li>\u0627\u0644\u0647\u0627\u0634\u062a\u0627\u063a\u0627\u062a \u0627\u0644\u0631\u0627\u0626\u062c\u0629<\/li>\n\n\n\n<li>\u0645\u0639\u062f\u0644\u0627\u062a \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629<\/li>\n\n\n\n<li>\u0639\u062f\u062f \u0627\u0644\u0645\u062a\u0627\u0628\u0639\u064a\u0646 \u0627\u0644\u062c\u062f\u062f<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0642\u062f \u062a\u0634\u064a\u0631 \u0647\u0630\u0647 \u0627\u0644\u0623\u0631\u0642\u0627\u0645 \u0625\u0644\u0649 \u0646\u062c\u0627\u062d \u0627\u0644\u062a\u0648\u0627\u0635\u0644\u060c \u0644\u0643\u0646\u0647\u0627 \u0644\u0627 \u062a\u0643\u0634\u0641 \u0625\u0644\u0627 \u0627\u0644\u0642\u0644\u064a\u0644 \u062c\u062f\u0627\u064b \u0639\u0645\u0627 \u0625\u0630\u0627 \u0643\u0627\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0642\u062f \u0627\u0633\u062a\u0641\u0627\u062f\u0648\u0627 \u0627\u0633\u062a\u0641\u0627\u062f\u0629 \u062d\u0642\u064a\u0642\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u064a\u062a\u0644\u0642\u0649 \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0639\u0644\u0627\u062c \u0628\u0633\u0628\u0628 \u0627\u0646\u062a\u0634\u0627\u0631 \u0648\u0633\u0645 \u0645\u0639\u064a\u0646.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u062a\u0644\u0642\u0648\u0646 \u0627\u0644\u0639\u0644\u0627\u062c \u0628\u0633\u0628\u0628 \u062a\u063a\u064a\u0631 \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u062a\u064f\u0635\u0627\u063a \u0633\u064a\u0627\u0633\u0627\u062a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629 \u0627\u0644\u0648\u0637\u0646\u064a\u0629 \u0628\u0646\u0627\u0621\u064b \u0639\u0644\u0649 \u0627\u0644\u0648\u0633\u0648\u0645 \u0627\u0644\u0631\u0627\u0626\u062c\u0629\u060c \u0628\u0644 \u0639\u0644\u0649 \u0627\u0644\u0623\u062f\u0644\u0629 \u0627\u0644\u0639\u0644\u0645\u064a\u0629\u060c \u0648\u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0627\u062a \u0627\u0644\u0635\u062d\u0629\u060c \u0648\u0627\u0644\u0645\u0631\u0627\u062c\u0639\u0629 \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629\u060c \u0648\u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0645\u0633\u062a\u0645\u0631 \u0645\u0639 \u0635\u0646\u0627\u0639 \u0627\u0644\u0642\u0631\u0627\u0631. \u0627\u0642\u0631\u0623 \u0627\u0644\u0645\u0632\u064a\u062f: <a href=\"https:\/\/dmdwarrior.com\/ar\/dmd-donations-how-associations-use-donations\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0643\u064a\u0641 \u062a\u0646\u0641\u0642 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0627\u0644\u062a\u0628\u0631\u0639\u0627\u062a<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"the-comfort-of-easy-advocacy\" class=\"wp-block-heading\">\u0631\u0627\u062d\u0629 \u0633\u0647\u0648\u0644\u0629 \u0627\u0644\u0645\u0631\u0627\u0641\u0639\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0646\u0627\u0643 \u0633\u0628\u0628 \u0639\u0645\u0644\u064a \u0648\u0631\u0627\u0621 \u0634\u064a\u0648\u0639 \u062d\u0645\u0644\u0627\u062a \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u062c.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0625\u0646\u0647\u0627 \u0631\u062e\u064a\u0635\u0629 \u0646\u0633\u0628\u064a\u0627\u064b.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0625\u0646\u0647\u0627 \u0644\u0627 \u062a\u062a\u0637\u0644\u0628 \u062a\u062e\u0637\u064a\u0637\u0627\u064b \u0643\u0628\u064a\u0631\u0627\u064b.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u064a\u0645\u0643\u0646 \u0644\u0644\u0645\u062a\u0637\u0648\u0639\u064a\u0646 \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0645\u0646 \u0623\u064a \u0645\u0643\u0627\u0646.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u064a\u0645\u0643\u0646 \u0644\u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0623\u0646 \u062a\u064f\u0638\u0647\u0631 \u0628\u0633\u0631\u0639\u0629 \u0646\u0634\u0627\u0637\u064b\u0627 \u0648\u0627\u0636\u062d\u064b\u0627 \u0639\u0628\u0631 \u0645\u0646\u0635\u0627\u062a \u0645\u062a\u0639\u062f\u062f\u0629.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0644\u0627 \u062a\u0648\u062c\u062f \u0623\u064a \u0645\u0646 \u0647\u0630\u0647 \u0627\u0644\u062e\u0635\u0627\u0626\u0635 \u0633\u0644\u0628\u064a\u0629 \u0628\u0637\u0628\u064a\u0639\u062a\u0647\u0627.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0648\u0645\u0639 \u0630\u0644\u0643\u060c \u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u0623\u0628\u062f\u0627\u064b \u0623\u0646 \u062a\u062d\u0644 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0633\u0647\u0644\u0629 \u0645\u062d\u0644 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0641\u0639\u0627\u0644\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u0627\u0633\u062a\u062b\u0645\u0631\u062a \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0628\u0634\u0643\u0644 \u0645\u062a\u0643\u0631\u0631 \u0627\u0644\u0648\u0642\u062a \u0641\u064a \u062d\u0645\u0644\u0627\u062a \u062a\u062c\u0630\u0628 \u0627\u0644\u0627\u0646\u062a\u0628\u0627\u0647 \u0648\u0644\u0643\u0646\u0647\u0627 \u062a\u0641\u0634\u0644 \u0641\u064a \u0625\u0632\u0627\u0644\u0629 \u0627\u0644\u0639\u0648\u0627\u0626\u0642 \u0623\u0645\u0627\u0645 \u0627\u0644\u062a\u0634\u062e\u064a\u0635 \u0623\u0648 \u0627\u0644\u0639\u0644\u0627\u062c \u0623\u0648 \u0627\u0644\u0633\u062f\u0627\u062f \u0623\u0648 \u0627\u0644\u0628\u062d\u062b \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u060c \u0641\u064a\u062c\u0628 \u0639\u0644\u064a\u0647\u0627 \u0623\u0646 \u062a\u0633\u0623\u0644 \u0628\u0635\u062f\u0642 \u0645\u0627 \u0625\u0630\u0627 \u0643\u0627\u0646 \u0645\u0646 \u0627\u0644\u0645\u0645\u0643\u0646 \u0627\u0633\u062a\u062e\u062f\u0627\u0645 \u062a\u0644\u0643 \u0627\u0644\u0645\u0648\u0627\u0631\u062f \u0628\u0634\u0643\u0644 \u0623\u0643\u062b\u0631 \u0641\u0639\u0627\u0644\u064a\u0629 \u0641\u064a \u0645\u0643\u0627\u0646 \u0622\u062e\u0631.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0643\u0644 \u0633\u0627\u0639\u0629 \u062a\u064f\u062e\u0635\u0635 \u0644\u0644\u062f\u0641\u0627\u0639 \u0639\u0646 \u0627\u0644\u0642\u0636\u0627\u064a\u0627 \u062a\u062d\u0645\u0644 \u062a\u0643\u0644\u0641\u0629 \u0641\u0631\u0635\u0629 \u0628\u062f\u064a\u0644\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0628\u0627\u0644\u0646\u0633\u0628\u0629 \u0644\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u062a\u064a \u062a\u0639\u0627\u0646\u064a \u0645\u0646 \u0636\u0645\u0648\u0631 \u062f\u0648\u0634\u064a\u0646 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\u0628\u0627\u062e\u062a\u0635\u0627\u0631: \u0627\u0644\u0648\u0642\u062a \u0647\u0648 \u0627\u0644\u0639\u0636\u0644\u0627\u062a.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"the-metrics-that-truly-matter\" class=\"wp-block-heading\">\u0627\u0644\u0645\u0642\u0627\u064a\u064a\u0633 \u0627\u0644\u062a\u064a \u062a\u0647\u0645 \u062d\u0642\u0627\u064b<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u0643\u0627\u0646\u062a \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u062a\u0631\u063a\u0628 \u0641\u064a \u0625\u062b\u0628\u0627\u062a \u0641\u0639\u0627\u0644\u064a\u062a\u0647\u0627\u060c \u0641\u0639\u0644\u064a\u0647\u0627 \u0627\u0644\u0625\u0628\u0644\u0627\u063a \u0639\u0646 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u062a\u064a \u062a\u0624\u062b\u0631 \u0628\u0634\u0643\u0644 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\u0647\u062f\u0641 \u0645\u0647\u0645.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0648\u0645\u0639 \u0630\u0644\u0643\u060c \u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0623\u0646 \u062a\u062d\u0627\u0633\u0628 \u0646\u0641\u0633\u0647\u0627 \u0623\u064a\u0636\u0627\u064b.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0645\u0646 \u062d\u0642 \u0627\u0644\u0645\u0631\u0636\u0649 \u0623\u0646 \u064a\u0639\u0631\u0641\u0648\u0627:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u0645\u0627 \u0647\u064a \u0627\u0644\u0623\u0647\u062f\u0627\u0641 \u0627\u0644\u062a\u064a \u062a\u0645 \u062a\u062d\u0642\u064a\u0642\u0647\u0627\u061f<\/strong><\/li>\n\n\n\n<li><strong>\u0645\u0627 \u0647\u064a \u0627\u0644\u0648\u0639\u0648\u062f \u0627\u0644\u062a\u064a \u0644\u0645 \u062a\u0643\u062a\u0645\u0644 \u0628\u0639\u062f\u061f<\/strong><\/li>\n\n\n\n<li><strong>\u0645\u0627 \u0647\u064a \u0627\u0644\u0639\u0648\u0627\u0626\u0642 \u0627\u0644\u0633\u064a\u0627\u0633\u064a\u0629 \u0627\u0644\u062a\u064a \u0644\u0627 \u062a\u0632\u0627\u0644 \u0642\u0627\u0626\u0645\u0629\u061f<\/strong><\/li>\n\n\n\n<li><strong>\u0645\u0627 \u0627\u0644\u062a\u0642\u062f\u0645 \u0627\u0644\u0645\u0644\u0645\u0648\u0633 \u0627\u0644\u0630\u064a \u062a\u062d\u0642\u0642 \u062e\u0644\u0627\u0644 \u0627\u0644\u0639\u0627\u0645 \u0627\u0644\u0645\u0627\u0636\u064a\u061f<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u0631\u0643\u0632 \u0627\u0644\u062a\u0642\u0627\u0631\u064a\u0631 \u0627\u0644\u0633\u0646\u0648\u064a\u0629 \u0628\u0634\u0643\u0644 \u0623\u0642\u0644 \u0639\u0644\u0649 \u062a\u062d\u0644\u064a\u0644\u0627\u062a \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0648\u0623\u0643\u062b\u0631 \u0639\u0644\u0649 \u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0645\u0631\u0636\u0649.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629 \u062a\u0639\u0632\u0632 \u0627\u0644\u062b\u0642\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"advocacy-should-challenge-systems-not-algorithms\" class=\"wp-block-heading\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u062a\u062d\u062f\u0649 \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0623\u0646\u0638\u0645\u0629\u060c \u0644\u0627 \u0627\u0644\u062e\u0648\u0627\u0631\u0632\u0645\u064a\u0627\u062a.<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0643\u0627\u0641\u0626 \u0627\u0644\u062e\u0648\u0627\u0631\u0632\u0645\u064a\u0627\u062a \u0627\u0644\u0645\u062d\u062a\u0648\u0649 \u0627\u0644\u0639\u0627\u0637\u0641\u064a.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0633\u062a\u062c\u064a\u0628 \u0623\u0646\u0638\u0645\u0629 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629 \u0644\u0644\u0623\u062f\u0644\u0629 \u0627\u0644\u0645\u0646\u0638\u0645\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0630\u0627\u060c \u062a\u062a\u0637\u0644\u0628 \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0646\u0627\u062c\u062d\u0629 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0645\u0628\u0627\u0634\u0631 \u0645\u0639 \u0627\u0644\u0645\u0624\u0633\u0633\u0627\u062a \u0627\u0644\u0642\u0627\u062f\u0631\u0629 \u0639\u0644\u0649 \u062a\u063a\u064a\u064a\u0631 \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0631\u0636\u0649.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0648\u0647\u0630\u0627 \u064a\u0634\u0645\u0644:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0648\u0632\u0627\u0631\u0627\u062a \u0627\u0644\u0635\u062d\u0629<\/li>\n\n\n\n<li>\u0627\u0644\u0633\u0644\u0637\u0627\u062a \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629<\/li>\n\n\n\n<li>\u0648\u0643\u0627\u0644\u0627\u062a \u0627\u0644\u0633\u062f\u0627\u062f<\/li>\n\n\n\n<li>\u0644\u062c\u0627\u0646 \u0648\u0636\u0639 \u0627\u0644\u0645\u0628\u0627\u062f\u0626 \u0627\u0644\u062a\u0648\u062c\u064a\u0647\u064a\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629<\/li>\n\n\n\n<li>\u0645\u062f\u064a\u0631\u0648 \u0627\u0644\u0645\u0633\u062a\u0634\u0641\u064a\u0627\u062a<\/li>\n\n\n\n<li>\u0627\u0644\u062c\u0645\u0639\u064a\u0627\u062a \u0627\u0644\u0637\u0628\u064a\u0629<\/li>\n\n\n\n<li>\u0634\u0628\u0643\u0627\u062a \u0627\u0644\u0628\u062d\u062b<\/li>\n\n\n\n<li>\u0634\u0631\u0643\u0627\u062a \u0627\u0644\u0623\u062f\u0648\u064a\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u063a\u0627\u0644\u0628\u0627\u064b \u0645\u0627 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\u0627\u0644\u0645\u0628\u0627\u062f\u0631\u0627\u062a \u0630\u0627\u062a \u0627\u0644\u062a\u0623\u062b\u064a\u0631 \u0627\u0644\u0642\u0627\u0628\u0644 \u0644\u0644\u0642\u064a\u0627\u0633.<\/p>\n\n\n\n<h3 id=\"1-publish-annual-advocacy-impact-reports\" class=\"wp-block-heading\">1. \u0646\u0634\u0631 \u062a\u0642\u0627\u0631\u064a\u0631 \u0633\u0646\u0648\u064a\u0629 \u0639\u0646 \u0623\u062b\u0631 \u0623\u0646\u0634\u0637\u0629 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u0628\u062f\u0644\u0627\u064b \u0645\u0646 \u0627\u0644\u0625\u0628\u0644\u0627\u063a \u0639\u0646 \u0627\u0644\u0627\u0646\u0637\u0628\u0627\u0639\u0627\u062a \u0648\u0627\u0644\u062a\u0641\u0627\u0639\u0644\u060c \u0627\u0646\u0634\u0631 \u0625\u0646\u062c\u0627\u0632\u0627\u062a \u0642\u0627\u0628\u0644\u0629 \u0644\u0644\u0642\u064a\u0627\u0633 \u0645\u062b\u0644 \u0627\u062c\u062a\u0645\u0627\u0639\u0627\u062a \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a\u060c \u0648\u062a\u0623\u0645\u064a\u0646 \u0627\u0644\u062a\u0645\u0648\u064a\u0644\u060c \u0648\u062a\u0648\u0633\u064a\u0639 \u0646\u0637\u0627\u0642 \u0627\u0644\u0648\u0635\u0648\u0644 \u0625\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c\u060c \u0648\u062e\u0644\u0642 \u0641\u0631\u0635 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629. \u0644\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0639\u0644\u0648\u0645\u0627\u062a: <a href=\"https:\/\/dmdwarrior.com\/clinical-trials\/statistics\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0625\u062d\u0635\u0627\u0626\u064a\u0627\u062a \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"2-build-strong-national-patient-registries\" class=\"wp-block-heading\">2. \u0628\u0646\u0627\u0621 \u0633\u062c\u0644\u0627\u062a \u0648\u0637\u0646\u064a\u0629 \u0642\u0648\u064a\u0629 \u0644\u0644\u0645\u0631\u0636\u0649<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u062f\u0639\u0645 \u0628\u064a\u0627\u0646\u0627\u062a \u0627\u0644\u0645\u0631\u0636\u0649 \u0627\u0644\u0645\u0648\u062b\u0648\u0642\u0629 \u0627\u0644\u0628\u062d\u062b \u0648\u062a\u062e\u0637\u064a\u0637 \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a \u0648\u062a\u062c\u0646\u064a\u062f \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u064a\u0646 \u0641\u064a \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\u060c \u0628\u064a\u0646\u0645\u0627 \u062a\u0645\u0646\u062d \u0627\u0644\u062d\u0643\u0648\u0645\u0627\u062a \u0641\u0647\u0645\u064b\u0627 \u0623\u0648\u0636\u062d \u0644\u0644\u0627\u062d\u062a\u064a\u0627\u062c\u0627\u062a \u0627\u0644\u0648\u0637\u0646\u064a\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"3-produce-independent-scientific-reviews\" class=\"wp-block-heading\">3. \u0625\u0639\u062f\u0627\u062f \u0645\u0631\u0627\u062c\u0639\u0627\u062a \u0639\u0644\u0645\u064a\u0629 \u0645\u0633\u062a\u0642\u0644\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u062d\u062a\u0627\u062c \u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0625\u0644\u0649 \u062a\u062d\u0644\u064a\u0644\u0627\u062a \u0645\u062a\u0648\u0627\u0632\u0646\u0629 \u0644\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\u060c \u0648\u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u0645\u0639\u062a\u0645\u062f\u0629\u060c \u0648\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0633\u0644\u0627\u0645\u0629\u060c \u0648\u0627\u0644\u0642\u064a\u0648\u062f\u060c \u0648\u0627\u0644\u0634\u0643\u0648\u0643 \u0627\u0644\u0645\u062a\u0628\u0642\u064a\u0629 - \u0648\u0644\u064a\u0633 \u0645\u0644\u062e\u0635\u0627\u062a \u062a\u0631\u0648\u064a\u062c\u064a\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"4-demand-greater-transparency-from-industry\" class=\"wp-block-heading\">4. \u0627\u0644\u0645\u0637\u0627\u0644\u0628\u0629 \u0628\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629 \u0645\u0646 \u062c\u0627\u0646\u0628 \u0627\u0644\u0635\u0646\u0627\u0639\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0623\u0646 \u062a\u0637\u0644\u0628 \u0628\u0627\u0633\u062a\u0645\u0631\u0627\u0631 \u0646\u0634\u0631\u064b\u0627 \u0634\u0627\u0645\u0644\u0627\u064b \u0644\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0630\u0627\u062a \u0627\u0644\u0623\u0647\u0645\u064a\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\u060c \u0628\u0645\u0627 \u0641\u064a \u0630\u0644\u0643 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0648\u0638\u064a\u0641\u064a\u0629\u060c \u0648\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0633\u0644\u0627\u0645\u0629\u060c \u0648\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0645\u0624\u0634\u0631\u0627\u062a \u0627\u0644\u062d\u064a\u0648\u064a\u0629\u060c \u0648\u0627\u0644\u0645\u062a\u0627\u0628\u0639\u0629 \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0623\u0645\u062f. \u0644\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0639\u0644\u0648\u0645\u0627\u062a: <a href=\"https:\/\/dmdwarrior.com\/ar\/biomarkers-in-duchenne-muscular-dystrophy\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0627\u0644\u0645\u0624\u0634\u0631\u0627\u062a \u0627\u0644\u062d\u064a\u0648\u064a\u0629 \u0641\u064a \u062f\u0648\u0634\u064a\u0646<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u064f\u0641\u064a\u062f \u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629 \u0627\u0644\u0645\u0631\u0636\u0649 \u0648\u0627\u0644\u0623\u0637\u0628\u0627\u0621 \u0648\u0627\u0644\u0628\u0627\u062d\u062b\u064a\u0646 \u0648\u0627\u0644\u062c\u0647\u0627\u062a \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629 \u0639\u0644\u0649 \u062d\u062f \u0633\u0648\u0627\u0621.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"5-engage-policymakers-continuously\" class=\"wp-block-heading\">5. \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0645\u0633\u062a\u0645\u0631 \u0645\u0639 \u0635\u0646\u0627\u0639 \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u0634\u0645\u0644 \u0623\u0646\u0634\u0637\u0629 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u062d\u0648\u0627\u0631\u0627\u064b \u0645\u0646\u062a\u0638\u0645\u0627\u064b \u0645\u0639 \u0635\u0646\u0627\u0639 \u0627\u0644\u0642\u0631\u0627\u0631 \u0639\u0644\u0649 \u0645\u062f\u0627\u0631 \u0627\u0644\u0639\u0627\u0645 \u0628\u062f\u0644\u0627\u064b \u0645\u0646 \u062a\u0631\u0643\u064a\u0632 \u0627\u0644\u0646\u0634\u0627\u0637 \u062d\u0648\u0644 \u0623\u064a\u0627\u0645 \u0627\u0644\u062a\u0648\u0639\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0624\u062b\u0631 \u0627\u0644\u0639\u0644\u0627\u0642\u0627\u062a \u0639\u0644\u0649 \u0627\u0644\u0633\u064a\u0627\u0633\u0627\u062a \u0628\u0634\u0643\u0644 \u0623\u0643\u062b\u0631 \u0641\u0639\u0627\u0644\u064a\u0629 \u0645\u0646 \u0627\u0644\u062d\u0645\u0644\u0627\u062a \u0627\u0644\u0645\u0646\u0639\u0632\u0644\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"6-publish-international-access-reports\" class=\"wp-block-heading\">6. \u0646\u0634\u0631 \u062a\u0642\u0627\u0631\u064a\u0631 \u0627\u0644\u0648\u0635\u0648\u0644 \u0627\u0644\u062f\u0648\u0644\u064a<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u0645\u0642\u0627\u0631\u0646\u0629 \u0627\u0644\u062f\u0648\u0644 \u0628\u0646\u0627\u0621\u064b \u0639\u0644\u0649:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u062a\u0648\u0627\u0641\u0631 \u0627\u0644\u0639\u0644\u0627\u062c<\/li>\n\n\n\n<li>\u062d\u0627\u0644\u0629 \u0627\u0644\u0633\u062f\u0627\u062f<\/li>\n\n\n\n<li>\u0623\u0648\u0642\u0627\u062a \u0627\u0644\u0627\u0646\u062a\u0638\u0627\u0631<\/li>\n\n\n\n<li>\u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629 \u0641\u064a \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629<\/li>\n\n\n\n<li>\u0645\u0639\u0627\u064a\u064a\u0631 \u0627\u0644\u0631\u0639\u0627\u064a\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0634\u062c\u0639 \u0627\u0644\u0645\u0633\u0627\u0621\u0644\u0629 \u0627\u0644\u0639\u0627\u0645\u0629 \u0639\u0644\u0649 \u0627\u0644\u062a\u062d\u0633\u064a\u0646.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"7-invest-in-health-economics\" class=\"wp-block-heading\">7. \u0627\u0644\u0627\u0633\u062a\u062b\u0645\u0627\u0631 \u0641\u064a \u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0627\u062a \u0627\u0644\u0635\u062d\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0639\u062a\u0645\u062f \u0642\u0631\u0627\u0631\u0627\u062a \u0627\u0644\u0648\u0635\u0648\u0644 \u0628\u0634\u0643\u0644 \u0645\u062a\u0632\u0627\u064a\u062f \u0639\u0644\u0649 \u0627\u0644\u0623\u062f\u0644\u0629 \u0627\u0644\u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0623\u0646 \u062a\u0643\u0644\u0641 \u0623\u0648 \u062a\u062f\u0639\u0645 \u062a\u062d\u0644\u064a\u0644\u0627\u062a \u0645\u0633\u062a\u0642\u0644\u0629 \u062a\u064f\u0638\u0647\u0631 \u0627\u0644\u0642\u064a\u0645\u0629 \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0645\u062f\u0649 \u0644\u0644\u062a\u0634\u062e\u064a\u0635 \u0641\u064a \u0627\u0644\u0648\u0642\u062a \u0627\u0644\u0645\u0646\u0627\u0633\u0628 \u0648\u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0645\u062a\u0639\u062f\u062f\u0629 \u0627\u0644\u062a\u062e\u0635\u0635\u0627\u062a \u0648\u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u0641\u0639\u0627\u0644\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"8-create-international-advocacy-coalitions\" class=\"wp-block-heading\">8. \u0625\u0646\u0634\u0627\u0621 \u062a\u062d\u0627\u0644\u0641\u0627\u062a \u0645\u0646\u0627\u0635\u0631\u0629 \u062f\u0648\u0644\u064a\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u0628\u062f\u0644\u0627\u064b \u0645\u0646 \u062a\u0646\u0638\u064a\u0645 \u062d\u0645\u0644\u0627\u062a \u0648\u0637\u0646\u064a\u0629 \u0645\u0646\u0641\u0635\u0644\u0629\u060c \u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u062a\u0646\u0633\u064a\u0642 \u062a\u0648\u0635\u064a\u0627\u062a \u0633\u064a\u0627\u0633\u0627\u062a \u0645\u0634\u062a\u0631\u0643\u0629 \u0642\u0627\u0626\u0645\u0629 \u0639\u0644\u0649 \u0627\u0644\u0623\u062f\u0644\u0629 \u064a\u0645\u0643\u0646 \u062a\u0642\u062f\u064a\u0645\u0647\u0627 \u0641\u064a \u0648\u0642\u062a \u0648\u0627\u062d\u062f \u0625\u0644\u0649 \u0627\u0644\u062c\u0647\u0627\u062a \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629 \u0648\u0627\u0644\u062d\u0643\u0648\u0645\u0627\u062a \u0641\u064a \u0628\u0644\u062f\u0627\u0646 \u0645\u062a\u0639\u062f\u062f\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"9-define-success-before-every-campaign\" class=\"wp-block-heading\">9. \u062d\u062f\u062f \u0645\u0639\u0627\u064a\u064a\u0631 \u0627\u0644\u0646\u062c\u0627\u062d \u0642\u0628\u0644 \u0643\u0644 \u062d\u0645\u0644\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u0628\u062f\u0623 \u0643\u0644 \u0645\u0628\u0627\u062f\u0631\u0629 \u0645\u0646\u0627\u0635\u0631\u0629 \u0628\u0633\u0624\u0627\u0644 \u0648\u0627\u062d\u062f:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0645\u0627 \u0647\u0648 \u0627\u0644\u062a\u063a\u064a\u064a\u0631 \u0627\u0644\u0642\u0627\u0628\u0644 \u0644\u0644\u0642\u064a\u0627\u0633 \u0627\u0644\u0630\u064a \u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u064f\u062d\u062f\u062b\u0647 \u0647\u0630\u0647 \u0627\u0644\u062d\u0645\u0644\u0629\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u0644\u0645 \u064a\u0643\u0646 \u0645\u0646 \u0627\u0644\u0645\u0645\u0643\u0646 \u062a\u062d\u062f\u064a\u062f \u0627\u0644\u0625\u062c\u0627\u0628\u0629 \u0628\u0648\u0636\u0648\u062d\u060c \u0641\u064a\u0646\u0628\u063a\u064a \u0625\u0639\u0627\u062f\u0629 \u0627\u0644\u0646\u0638\u0631 \u0641\u064a \u0627\u0644\u062d\u0645\u0644\u0629.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h3 id=\"10-use-social-media-as-a-tool-not-the-mission\" class=\"wp-block-heading\">10. \u0627\u0633\u062a\u062e\u062f\u0645 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0643\u0623\u062f\u0627\u0629 - \u0648\u0644\u064a\u0633 \u0643\u063a\u0627\u064a\u0629 \u0641\u064a \u062d\u062f \u0630\u0627\u062a\u0647\u0627<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u062a\u0632\u0627\u0644 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0645\u0646\u0635\u0629 \u0645\u0645\u062a\u0627\u0632\u0629 \u0644\u0644\u062a\u0639\u0644\u064a\u0645\u060c \u0648\u0628\u0646\u0627\u0621 \u0627\u0644\u0645\u062c\u062a\u0645\u0639\u060c \u0648\u062c\u0645\u0639 \u0627\u0644\u062a\u0628\u0631\u0639\u0627\u062a\u060c \u0648\u0645\u0634\u0627\u0631\u0643\u0629 \u0627\u0644\u062a\u0637\u0648\u0631\u0627\u062a \u0627\u0644\u0639\u0644\u0645\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0648\u0645\u0639 \u0630\u0644\u0643\u060c \u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u064a\u0639\u0632\u0632 \u0630\u0644\u0643 \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u0646\u0627\u062c\u062d\u0629 - \u0644\u0627 \u0623\u0646 \u064a\u062d\u0644 \u0645\u062d\u0644\u0647\u0627.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u064f\u0639\u0628\u0651\u0631 \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u063a\u0627\u062a \u0639\u0646 \u0627\u0644\u0625\u0646\u062c\u0627\u0632\u0627\u062a\u060c \u0644\u0627 \u0623\u0646 \u062a\u0635\u0628\u062d \u0647\u064a \u0627\u0644\u0625\u0646\u062c\u0627\u0632 \u0646\u0641\u0633\u0647.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"the-future-of-duchenne-advocacy\" class=\"wp-block-heading\">\u0645\u0633\u062a\u0642\u0628\u0644 \u0627\u0644\u062a\u0648\u0639\u064a\u0629 \u0628\u0645\u0631\u0636 \u062f\u0648\u0634\u064a\u0646<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0642\u062f \u062d\u0642\u0642 \u0645\u062c\u062a\u0645\u0639 \u062f\u0648\u0634\u064a\u0646 \u062a\u0642\u062f\u0645\u0627\u064b \u0627\u0633\u062a\u062b\u0646\u0627\u0626\u064a\u0627\u064b \u0639\u0644\u0649 \u0645\u062f\u0649 \u0627\u0644\u0639\u0642\u062f\u064a\u0646 \u0627\u0644\u0645\u0627\u0636\u064a\u064a\u0646.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u062a\u0633\u0627\u0631\u0639 \u0627\u0644\u0627\u0628\u062a\u0643\u0627\u0631 \u0627\u0644\u0639\u0644\u0645\u064a.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0633\u062a\u0645\u0631 \u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u062c\u064a\u0646\u064a\u0629\u060c \u0648\u0639\u0644\u0627\u062c\u0627\u062a \u062a\u062e\u0637\u064a \u0627\u0644\u0625\u0643\u0633\u0648\u0646\u060c \u0648\u062a\u062d\u0631\u064a\u0631 \u0627\u0644\u062c\u064a\u0646\u0627\u062a\u060c \u0648\u063a\u064a\u0631\u0647\u0627 \u0645\u0646 \u0627\u0644\u0623\u0633\u0627\u0644\u064a\u0628 \u0627\u0644\u0646\u0627\u0634\u0626\u0629 \u0641\u064a \u0625\u0639\u0627\u062f\u0629 \u062a\u0634\u0643\u064a\u0644 \u0627\u0644\u062a\u0648\u0642\u0639\u0627\u062a \u0644\u0644\u0645\u0633\u062a\u0642\u0628\u0644.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u062c\u0628 \u0623\u0646 \u062a\u062a\u0637\u0648\u0631 \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0628\u0646\u0641\u0633 \u0627\u0644\u0648\u062a\u064a\u0631\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0644\u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0623\u0646 \u062a\u062a\u062c\u0627\u0648\u0632 \u0642\u064a\u0627\u0633 \u0627\u0644\u0646\u062c\u0627\u062d \u0645\u0646 \u062e\u0644\u0627\u0644 \u0627\u0644\u0638\u0647\u0648\u0631 \u0627\u0644\u0625\u0639\u0644\u0627\u0645\u064a\u060c \u0648\u0623\u0646 \u062a\u062a\u0628\u0646\u0649 \u0628\u062f\u0644\u0627\u064b \u0645\u0646 \u0630\u0644\u0643 \u0646\u062a\u0627\u0626\u062c \u0642\u0627\u0628\u0644\u0629 \u0644\u0644\u0642\u064a\u0627\u0633 \u062a\u062a\u0645\u062d\u0648\u0631 \u062d\u0648\u0644 \u0627\u0644\u0645\u0631\u064a\u0636.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u062a\u062d\u062a\u0627\u062c \u0627\u0644\u0639\u0627\u0626\u0644\u0627\u062a \u0627\u0644\u062a\u064a \u062a\u0648\u0627\u062c\u0647 \u0645\u0631\u0636 \u062f\u0648\u0634\u064a\u0646 \u0625\u0644\u0649 \u0627\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0648\u0633\u0648\u0645 \u0627\u0644\u0631\u0627\u0626\u062c\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0646\u0647\u0645 \u0628\u062d\u0627\u062c\u0629 \u0625\u0644\u0649 \u062a\u0634\u062e\u064a\u0635 \u0623\u0633\u0631\u0639.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0645\u0639\u0627\u064a\u064a\u0631 \u0631\u0639\u0627\u064a\u0629 \u0623\u0641\u0636\u0644.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0627\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0641\u0631\u0635 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0645\u0643\u0627\u0646\u064a\u0629 \u0627\u0644\u062d\u0635\u0648\u0644 \u0639\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u0645\u0639\u062a\u0645\u062f\u0629 \u0628\u0623\u0633\u0639\u0627\u0631 \u0645\u0639\u0642\u0648\u0644\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0630\u0647 \u0647\u064a \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u062a\u064a \u062a\u062d\u062f\u062f \u0646\u062c\u0627\u062d \u062c\u0647\u0648\u062f \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u062a\u062f\u0639\u0645 \u0643\u0644 \u0627\u0644\u0623\u0645\u0648\u0631 \u0627\u0644\u0623\u062e\u0631\u0649 \u062a\u0644\u0643 \u0627\u0644\u0623\u0647\u062f\u0627\u0641\u060c \u0644\u0627 \u0623\u0646 \u062a\u062d\u0644 \u0645\u062d\u0644\u0647\u0627.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 id=\"conclusion\" class=\"wp-block-heading\">\u062e\u0627\u062a\u0645\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u062a\u062a\u0628\u0639 \u062c\u0645\u064a\u0639 \u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0646\u0641\u0633 \u0627\u0644\u0646\u0647\u062c.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0633\u062a\u062b\u0645\u0631 \u0627\u0644\u0639\u062f\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0646\u0638\u0645\u0627\u062a \u0648\u0642\u062a\u0627\u064b \u0648\u062e\u0628\u0631\u0629 \u0648\u0645\u0648\u0627\u0631\u062f \u0647\u0627\u0626\u0644\u0629 \u0641\u064a \u0645\u062c\u0627\u0644 \u0627\u0644\u0645\u0646\u0627\u0635\u0631\u0629 \u0627\u0644\u062a\u064a \u062a\u064f\u062d\u0633\u0651\u0646 \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0631\u0636\u0649 \u0628\u0634\u0643\u0644 \u062d\u0642\u064a\u0642\u064a.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0643\u0646 \u0622\u062e\u0631\u064a\u0646 \u0645\u0627 \u0632\u0627\u0644\u0648\u0627 \u064a\u0639\u062a\u0645\u062f\u0648\u0646 \u0628\u0634\u0643\u0644 \u0643\u0628\u064a\u0631 \u0639\u0644\u0649 \u062d\u0645\u0644\u0627\u062a \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u062c \u0639\u0644\u0649 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a \u0627\u0644\u062a\u064a \u0646\u0627\u062f\u0631\u0627\u064b \u0645\u0627 \u062a\u062d\u0642\u0642 \u0646\u062a\u0627\u0626\u062c \u0642\u0627\u0628\u0644\u0629 \u0644\u0644\u0642\u064a\u0627\u0633.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0628\u0627\u0644\u0646\u0633\u0628\u0629 \u0644\u0644\u0639\u0627\u0626\u0644\u0627\u062a\u060c \u0642\u062f \u064a\u0648\u0641\u0631 \u0627\u0644\u0627\u0646\u0636\u0645\u0627\u0645 \u0625\u0644\u0649 \u062d\u0645\u0644\u0629 \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u062c \u0634\u0639\u0648\u0631\u0627\u064b \u0628\u0627\u0644\u0648\u062d\u062f\u0629 \u0648\u0627\u0644\u0623\u0645\u0644 \u0648\u0627\u0644\u0645\u0634\u0627\u0631\u0643\u0629.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0646\u0627\u0643 \u0642\u064a\u0645\u0629 \u0641\u064a \u0630\u0644\u0643.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0643\u0646 \u0627\u0644\u0623\u0645\u0644 \u0648\u062d\u062f\u0647 \u0644\u0627 \u064a\u063a\u064a\u0631 \u0633\u064a\u0627\u0633\u0629 \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0644\u0627 \u064a\u0639\u0646\u064a \u0627\u0646\u062a\u0634\u0627\u0631 \u0648\u0633\u0645 \u0631\u0627\u0626\u062c \u0627\u0644\u0645\u0648\u0627\u0641\u0642\u0629 \u0639\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u064a\u0624\u062f\u064a \u0627\u0646\u062a\u0634\u0627\u0631 \u0645\u0646\u0634\u0648\u0631 \u0639\u0644\u0649 \u0646\u0637\u0627\u0642 \u0648\u0627\u0633\u0639 \u0625\u0644\u0649 \u0632\u064a\u0627\u062f\u0629 \u0627\u0644\u062a\u0639\u0648\u064a\u0636\u0627\u062a.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0625\u0646 \u0622\u0644\u0627\u0641 \u0627\u0644\u062a\u063a\u0631\u064a\u062f\u0627\u062a \u0627\u0644\u0645\u062a\u0637\u0627\u0628\u0642\u0629 \u0644\u0627 \u062a\u0632\u064a\u0644 \u0627\u0644\u0639\u0648\u0627\u0626\u0642 \u0623\u0645\u0627\u0645 \u0627\u0644\u0639\u0644\u0627\u062c.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0641\u064a \u062d\u0627\u0644\u0629 \u062f\u0648\u0634\u064a\u0646\u060c \u0627\u0644\u0648\u0642\u062a \u0647\u0648 \u0627\u0644\u0639\u0636\u0644\u0627\u062a.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0643\u0644 \u0634\u0647\u0631 \u064a\u064f\u0642\u0636\u0649 \u0641\u064a \u0627\u0644\u0627\u062d\u062a\u0641\u0627\u0644 \u0628\u0627\u0644\u062a\u0641\u0627\u0639\u0644 \u0639\u0628\u0631 \u0627\u0644\u0625\u0646\u062a\u0631\u0646\u062a \u062f\u0648\u0646 \u0625\u062d\u0631\u0627\u0632 \u062a\u0642\u062f\u0645 \u0645\u0644\u0645\u0648\u0633 \u0647\u0648 \u0634\u0647\u0631 \u0622\u062e\u0631 \u064a\u0633\u062a\u0645\u0631 \u0641\u064a\u0647 \u0627\u0644\u0645\u0631\u0636\u0649 \u0641\u064a \u0641\u0642\u062f\u0627\u0646 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062a\u064a \u0644\u0627 \u064a\u0645\u0643\u0646 \u0627\u0633\u062a\u0639\u0627\u062f\u062a\u0647\u0627 \u0623\u0628\u062f\u0627\u064b.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u0644\u0644\u062f\u0639\u0648\u0629 \u0623\u0646 \u062a\u062e\u0644\u0637 \u0628\u064a\u0646 \u0627\u0644\u0638\u0647\u0648\u0631 \u0648\u0627\u0644\u0641\u0639\u0627\u0644\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0648\u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u062a\u0634\u062c\u064a\u0639 \u0627\u0644\u0645\u0631\u0636\u0649 \u0639\u0644\u0649 \u0627\u0644\u0627\u0639\u062a\u0642\u0627\u062f \u0628\u0623\u0646 \u0627\u0644\u0646\u0634\u0627\u0637 \u0639\u0628\u0631 \u0627\u0644\u0625\u0646\u062a\u0631\u0646\u062a \u0648\u062d\u062f\u0647 \u064a\u0645\u062b\u0644 \u062a\u0642\u062f\u0645\u0627\u064b \u0630\u0627 \u0645\u063a\u0632\u0649.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u062a\u0633\u0628\u0628 \u0647\u0630\u0627 \u0627\u0644\u0645\u0642\u0627\u0644 \u0641\u064a \u0625\u0632\u0639\u0627\u062c \u0628\u0639\u0636 \u0627\u0644\u0645\u0646\u0638\u0645\u0627\u062a\u060c \u0641\u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u062a\u062c\u0627\u0647\u0644 \u0647\u0630\u0627 \u0627\u0644\u0625\u0632\u0639\u0627\u062c \u062a\u0644\u0642\u0627\u0626\u064a\u0627\u064b \u0628\u0627\u0639\u062a\u0628\u0627\u0631\u0647 \u0646\u0642\u062f\u0627\u064b \u063a\u064a\u0631 \u0639\u0627\u062f\u0644.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0628\u0644 \u064a\u0646\u0628\u063a\u064a \u0627\u0644\u0646\u0638\u0631 \u0625\u0644\u064a\u0647\u0627 \u0643\u0641\u0631\u0635\u0629 \u0644\u0644\u062a\u0623\u0645\u0644 \u0627\u0644\u0635\u0627\u062f\u0642.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0628\u063a\u064a \u0639\u0644\u0649 \u0643\u0644 \u0645\u0646\u0638\u0645\u0629 \u0645\u0646\u0627\u0635\u0631\u0629 \u0623\u0646 \u062a\u0643\u0648\u0646 \u0645\u0633\u062a\u0639\u062f\u0629 \u0644\u0644\u0625\u062c\u0627\u0628\u0629 \u0639\u0644\u0649 \u0633\u0624\u0627\u0644 \u0628\u0633\u064a\u0637 \u0648\u0627\u062d\u062f:<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0628\u0639\u062f \u062d\u0645\u0644\u0629 \u0627\u0644\u0647\u0627\u0634\u062a\u0627\u062c \u0627\u0644\u0623\u062e\u064a\u0631\u0629 \u0627\u0644\u062a\u064a \u0642\u0645\u062a \u0628\u0647\u0627\u060c \u0645\u0627 \u0647\u064a \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0642\u0627\u0628\u0644\u0629 \u0644\u0644\u0642\u064a\u0627\u0633 \u0627\u0644\u062a\u064a \u062d\u0642\u0642\u0647\u0627 \u0627\u0644\u0645\u0631\u0636\u0649 \u0628\u0627\u0644\u0641\u0639\u0644\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u062a\u062d\u0633\u0646\u062a \u0625\u0645\u0643\u0627\u0646\u064a\u0629 \u0627\u0644\u062d\u0635\u0648\u0644 \u0639\u0644\u0649 \u0627\u0644\u0639\u0644\u0627\u062c\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u062a\u063a\u064a\u0631\u062a \u0633\u064a\u0627\u0633\u0627\u062a \u0627\u0644\u062a\u0639\u0648\u064a\u0636\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u0642\u0627\u0645\u062a \u0627\u0644\u062d\u0643\u0648\u0645\u0629 \u0628\u0645\u0631\u0627\u062c\u0639\u0629 \u0633\u064a\u0627\u0633\u062a\u0647\u0627 \u0627\u0644\u0635\u062d\u064a\u0629\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u0634\u0627\u0631\u0643 \u0639\u062f\u062f \u0623\u0643\u0628\u0631 \u0645\u0646 \u0627\u0644\u0645\u0631\u0636\u0649 \u0641\u064a \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u0632\u0627\u062f\u062a \u0627\u0644\u0634\u0641\u0627\u0641\u064a\u0629\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u0644\u0645 \u064a\u0643\u0646 \u0628\u0627\u0644\u0625\u0645\u0643\u0627\u0646 \u0627\u0644\u0625\u062c\u0627\u0628\u0629 \u0639\u0644\u0649 \u0647\u0630\u0647 \u0627\u0644\u0623\u0633\u0626\u0644\u0629 \u0628\u0623\u062f\u0644\u0629 \u0648\u0627\u0636\u062d\u0629\u060c \u0641\u0631\u0628\u0645\u0627 \u062d\u0627\u0646 \u0627\u0644\u0648\u0642\u062a \u0644\u0637\u0631\u062d \u0633\u0624\u0627\u0644 \u0645\u062e\u062a\u0644\u0641.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0647\u0644 \u0646\u0642\u064a\u0633 \u0627\u0644\u0646\u062c\u0627\u062d \u0645\u0646 \u062e\u0644\u0627\u0644 \u0627\u0644\u062a\u0641\u0627\u0639\u0644 \u0639\u0644\u0649 \u0648\u0633\u0627\u0626\u0644 \u0627\u0644\u062a\u0648\u0627\u0635\u0644 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0623\u0645 \u0645\u0646 \u062e\u0644\u0627\u0644 \u062a\u062d\u0633\u064a\u0646\u0627\u062a \u0641\u064a \u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0631\u0636\u0649\u061f<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0633\u062a\u062d\u0642 \u0645\u062c\u062a\u0645\u0639 \u062f\u0648\u0634\u064a\u0646 \u062f\u0639\u0645\u0627\u064b \u064a\u062a\u062c\u0627\u0648\u0632 \u0645\u062c\u0631\u062f \u0627\u0644\u062a\u0648\u0639\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0644\u0623\u0646\u0647 \u0641\u064a \u0646\u0647\u0627\u064a\u0629 \u0643\u0644 \u062d\u0645\u0644\u0629\u060c \u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u064a\u0643\u0648\u0646 \u0627\u0644\u0633\u0624\u0627\u0644 \u0623\u0628\u062f\u064b\u0627 &quot;\u0643\u0645 \u0639\u062f\u062f \u0627\u0644\u0623\u0634\u062e\u0627\u0635 \u0627\u0644\u0630\u064a\u0646 \u0646\u0634\u0631\u0648\u0627\u061f&quot; \u0628\u0644 \u064a\u062c\u0628 \u0623\u0646 \u064a\u0643\u0648\u0646 \u062f\u0627\u0626\u0645\u064b\u0627 &quot;\u0643\u0645 \u0639\u062f\u062f \u0627\u0644\u0623\u0631\u0648\u0627\u062d \u0627\u0644\u062a\u064a \u062a\u062d\u0633\u0646\u062a\u061f&quot;\u201c<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u064a\u062a\u0639\u0644\u0645 \u0623\u0643\u062b\u0631<\/strong>: <a href=\"https:\/\/dmdwarrior.com\/ar\/dmd-associations-failure-treatment-access\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0627\u0644\u0641\u0634\u0644 \u0627\u0644\u0645\u0646\u0647\u062c\u064a \u0644\u062c\u0645\u0639\u064a\u0627\u062a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>Every year, dozens of Duchenne muscular dystrophy (DMD) associations organize social media campaigns encouraging families and supporters to share hashtags on platforms such as X (formerly Twitter), Instagram, Facebook, and LinkedIn. DMD associations celebrate campaigns that generate 60,000 or even 100,000 hashtag posts as major advocacy successes. Yet the number of social media posts is [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":8343,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[282],"tags":[860,229,863,865,864,861,230,862],"class_list":["post-8335","post","type-post","status-publish","format-standard","has-post-thumbnail","category-editorials","tag-dmd-advocacy","tag-dmd-associations","tag-dmd-hashtag-campaigns","tag-dmd-patient-advocacy","tag-dmd-social-media-campaigns","tag-duchenne-advocacy","tag-duchenne-associations","tag-rare-disease-advocacy"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/8335","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/comments?post=8335"}],"version-history":[{"count":15,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/8335\/revisions"}],"predecessor-version":[{"id":8351,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/8335\/revisions\/8351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media\/8343"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media?parent=8335"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/categories?post=8335"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/tags?post=8335"}],"curies":[{"name":"\u0648\u0648\u0631\u062f\u0628\u0631\u064a\u0633","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}