{"id":7765,"date":"2026-04-30T08:56:04","date_gmt":"2026-04-30T05:56:04","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=7765"},"modified":"2026-04-30T08:58:30","modified_gmt":"2026-04-30T05:58:30","slug":"inesss-rejects-vamorolone-agamree-reimbursement","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/ar\/inesss-rejects-vamorolone-agamree-reimbursement\/","title":{"rendered":"\u0631\u0641\u0636 \u0627\u0644\u0645\u0639\u0647\u062f \u0627\u0644\u0648\u0637\u0646\u064a \u0644\u0644\u062a\u0645\u064a\u0632 \u0641\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629 \u0627\u0644\u0635\u062d\u064a\u0629 (INESSS) \u0637\u0644\u0628 \u0627\u0644\u0645\u0648\u0627\u0641\u0642\u0629 \u0639\u0644\u0649 \u0628\u0631\u0646\u0627\u0645\u062c Vamorolone (\u0623\u062c\u0627\u0645\u0631\u064a): \u0639\u0646\u062f\u0645\u0627 \u062a\u064f\u0639\u0637\u0649 \u0627\u0644\u0623\u0648\u0644\u0648\u064a\u0629 \u0644\u0644\u062a\u0643\u0644\u0641\u0629 \u0639\u0644\u0649 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\u0623\u0643\u062b\u0631 \u0645\u0646 \u0645\u062c\u0631\u062f \u0646\u062a\u064a\u062c\u0629 \u0628\u064a\u0631\u0648\u0642\u0631\u0627\u0637\u064a\u0629 - \u0641\u0647\u0648 \u064a\u0643\u0634\u0641 \u0639\u0646 \u0641\u0634\u0644 \u0645\u0646\u0647\u062c\u064a \u0641\u064a \u0645\u0648\u0627\u0632\u0646\u0629 \u0627\u0644\u0646\u0645\u0627\u0630\u062c \u0627\u0644\u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0629 \u0645\u0639 \u0627\u0644\u0627\u062d\u062a\u064a\u0627\u062c\u0627\u062a \u0627\u0644\u0645\u0644\u062d\u0629 \u0644\u0644\u0623\u0637\u0641\u0627\u0644 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0636\u0645\u0648\u0631 \u062f\u0648\u0634\u064a\u0646 \u0627\u0644\u0639\u0636\u0644\u064a (DMD).<\/p>\n\n\n\n<h2 class=\"wp-block-heading\">\u0645\u0631\u0636 \u0645\u0639\u0631\u0648\u0641\u060c \u062d\u0627\u062c\u0629 \u0645\u0639\u0631\u0648\u0641\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0646 \u0645\u0631\u0636 \u0636\u0645\u0648\u0631 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\u0627\u0644\u0639\u0645\u0631.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u0627\u0644\u0642\u064a\u0627\u0633\u064a\u0629 - \u0648\u062e\u0627\u0635\u0629 \u0627\u0644\u0643\u0648\u0631\u062a\u064a\u0643\u0648\u0633\u062a\u064a\u0631\u0648\u064a\u062f\u0627\u062a \u0645\u062b\u0644 \u0628\u0631\u064a\u062f\u0646\u064a\u0632\u0648\u0646 \u0648\u062f\u064a\u0641\u0644\u0627\u0632\u0627\u0643\u0648\u0631\u062a - \u0641\u0639\u0627\u0644\u0629 \u0648\u0644\u0643\u0646\u0647\u0627 \u062a\u0623\u062a\u064a \u0628\u062a\u0643\u0644\u0641\u0629:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0643\u0628\u062d \u0627\u0644\u0646\u0645\u0648<\/li>\n\n\n\n<li>\u0627\u0644\u0627\u0636\u0637\u0631\u0627\u0628\u0627\u062a \u0627\u0644\u0633\u0644\u0648\u0643\u064a\u0629<\/li>\n\n\n\n<li>\u0647\u0634\u0627\u0634\u0629 \u0627\u0644\u0639\u0638\u0627\u0645 \u0648\u0627\u0644\u0643\u0633\u0648\u0631<\/li>\n\n\n\n<li>\u0627\u0644\u0645\u0636\u0627\u0639\u0641\u0627\u062a \u0627\u0644\u0623\u064a\u0636\u064a\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0646 \u0627\u0644\u062d\u0627\u062c\u0629 \u0625\u0644\u0649 \u0628\u062f\u0627\u0626\u0644 \u0623\u0643\u062b\u0631 \u0623\u0645\u0627\u0646\u0627\u064b \u0644\u064a\u0633\u062a \u0645\u062c\u0631\u062f \u0641\u0631\u0636\u064a\u0629\u060c \u0628\u0644 \u0647\u064a \u062d\u0627\u062c\u0629 \u0645\u0644\u062d\u0629 \u0648\u0645\u0648\u062b\u0642\u0629 \u062c\u064a\u062f\u0627\u064b. \u0644\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0639\u0644\u0648\u0645\u0627\u062a: <a href=\"https:\/\/dmdwarrior.com\/ar\/pros-and-cons-of-steroids-for-duchenne-muscular-dystrophy\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0625\u064a\u062c\u0627\u0628\u064a\u0627\u062a \u0648\u0633\u0644\u0628\u064a\u0627\u062a \u0627\u0633\u062a\u062e\u062f\u0627\u0645 \u0627\u0644\u0633\u062a\u064a\u0631\u0648\u064a\u062f\u0627\u062a (\u0627\u0644\u0643\u0648\u0631\u062a\u064a\u0632\u0648\u0646) \u0644\u0639\u0644\u0627\u062c \u062f\u0648\u0634\u064a\u0646<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0645\u0627 \u064a\u0642\u062f\u0645\u0647 \u062a\u0637\u0628\u064a\u0642 \u0623\u062c\u0627\u0645\u0631\u064a \u0641\u0639\u0644\u064a\u0627\u064b<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0625\u0646 \u0627\u0644\u0645\u0639\u0647\u062f \u0627\u0644\u0648\u0637\u0646\u064a \u0644\u0644\u0628\u062d\u0648\u062b \u0641\u064a \u0627\u0644\u0639\u0644\u0648\u0645 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a\u0629 \u0648\u0627\u0644\u0633\u0644\u0648\u0643\u064a\u0629 (INESSS) \u0646\u0641\u0633\u0647 \u064a\u0639\u062a\u0631\u0641 \u0628\u0623\u0646 \u0627\u0644\u0641\u0627\u0645\u0648\u0631\u0648\u0644\u0648\u0646 \u0644\u0647 \u0642\u064a\u0645\u0629 \u0639\u0644\u0627\u062c\u064a\u0629.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u064f\u0638\u0647\u0631 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0645\u0627 \u064a\u0644\u064a:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u062a\u062d\u0633\u0646 \u0630\u0648 \u062f\u0644\u0627\u0644\u0629 \u0625\u062d\u0635\u0627\u0626\u064a\u0629 \u0645\u0642\u0627\u0631\u0646\u0629 \u0628\u0627\u0644\u062f\u0648\u0627\u0621 \u0627\u0644\u0648\u0647\u0645\u064a \u0641\u064a \u0627\u0644\u0648\u0638\u064a\u0641\u0629 \u0627\u0644\u062d\u0631\u0643\u064a\u0629 (\u0639\u0644\u0649 \u0633\u0628\u064a\u0644 \u0627\u0644\u0645\u062b\u0627\u0644\u060c \u0627\u062e\u062a\u0628\u0627\u0631 \u0627\u0644\u0645\u0634\u064a \u0644\u0645\u062f\u0629 6 \u062f\u0642\u0627\u0626\u0642\u060c \u0627\u062e\u062a\u0628\u0627\u0631 \u0627\u0644\u0648\u0642\u0648\u0641 \u0644\u0645\u062f\u0629 TTSTAND)<\/li>\n\n\n\n<li>\u0641\u0639\u0627\u0644\u064a\u0629 \u0645\u0645\u0627\u062b\u0644\u0629 \u0644\u0644\u0628\u0631\u064a\u062f\u0646\u064a\u0632\u0648\u0646<\/li>\n\n\n\n<li>\u0645\u0632\u0627\u064a\u0627 \u0627\u0644\u0633\u0644\u0627\u0645\u0629 \u0627\u0644\u0645\u062d\u062a\u0645\u0644\u0629:\n<ul class=\"wp-block-list\">\n<li>\u0622\u062b\u0627\u0631 \u062c\u0627\u0646\u0628\u064a\u0629 \u0633\u0644\u0648\u0643\u064a\u0629 \u0623\u0642\u0644 (20% \u0645\u0642\u0627\u0628\u0644 32%)<\/li>\n\n\n\n<li>\u0646\u062a\u0627\u0626\u062c \u0646\u0645\u0648 \u0623\u0641\u0636\u0644<\/li>\n\n\n\n<li>\u0627\u0646\u062e\u0641\u0627\u0636 \u0625\u0634\u0627\u0631\u0627\u062a \u062e\u0637\u0631 \u0627\u0644\u0643\u0633\u0648\u0631<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0630\u0627 \u0644\u064a\u0633 \u062f\u0648\u0627\u0621\u064b \u0641\u0627\u0634\u0644\u0627\u064b.<br><strong>\u0647\u0630\u0627 \u0628\u062f\u064a\u0644 \u062a\u0645 \u0627\u0644\u062a\u062d\u0642\u0642 \u0645\u0646\u0647 \u0633\u0631\u064a\u0631\u064a\u064b\u0627 \u0645\u0639 \u062a\u062d\u0633\u064a\u0646\u0627\u062a \u0647\u0627\u0645\u0629 \u0641\u064a \u0627\u0644\u0633\u0644\u0627\u0645\u0629.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0627\u0644\u0633\u0628\u0628 \u0627\u0644\u062d\u0642\u064a\u0642\u064a \u0644\u0644\u0631\u0641\u0636: \u0627\u0644\u062a\u0643\u0644\u0641\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0645 \u064a\u0631\u0641\u0636 \u0645\u0639\u0647\u062f INESSS \u0628\u0631\u0646\u0627\u0645\u062c Agamree \u0644\u0623\u0646\u0647 \u0644\u0627 \u064a\u0639\u0645\u0644.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0631\u0641\u0636\u0648\u0627 \u0630\u0644\u0643 \u0644\u0644\u0623\u0633\u0628\u0627\u0628 \u0627\u0644\u062a\u0627\u0644\u064a\u0629:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0627\u0644\u062a\u0643\u0644\u0641\u0629 \u0627\u0644\u0633\u0646\u0648\u064a\u0629 \u0644\u0643\u0644 \u0645\u0631\u064a\u0636: <strong>~$65,000 \u0625\u0644\u0649 $125,000<\/strong><\/li>\n\n\n\n<li>\u0646\u0633\u0628\u0629 \u0641\u0639\u0627\u0644\u064a\u0629 \u0627\u0644\u062a\u0643\u0644\u0641\u0629:<br><strong>$2,217,370 \u0644\u0643\u0644 \u0633\u0646\u0629 \u062d\u064a\u0627\u0629 \u0645\u0639\u062f\u0644\u0629 \u062d\u0633\u0628 \u0627\u0644\u062c\u0648\u062f\u0629 (QALY)<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u062a\u062d\u0642\u064a\u0642 \u0627\u0644\u0645\u0639\u0627\u064a\u064a\u0631 \u0627\u0644\u0645\u0642\u0628\u0648\u0644\u0629:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u064a\u062c\u0628 \u0623\u0646 \u064a\u0646\u062e\u0641\u0636 \u0627\u0644\u0633\u0639\u0631 \u0628\u0646\u0633\u0628\u0629 <strong>96\u201398%<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u062d\u062a\u0649 \u0641\u064a \u0638\u0644 \u0627\u0641\u062a\u0631\u0627\u0636\u0627\u062a \u0645\u062a\u0641\u0627\u0626\u0644\u0629:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0645\u0627 \u0632\u0627\u0644 <strong>$312,142 \u0644\u0643\u0644 \u0633\u0646\u0629 \u062d\u064a\u0627\u0629 \u0645\u0639\u062f\u0644\u0629 \u062d\u0633\u0628 \u0627\u0644\u062c\u0648\u062f\u0629<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0627\u0644\u062e\u0644\u0627\u0635\u0629:<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u201c&quot;\u0646\u0633\u0628\u0629 \u0627\u0644\u062a\u0643\u0644\u0641\u0629 \u0625\u0644\u0649 \u0627\u0644\u0641\u0627\u0626\u062f\u0629 \u063a\u064a\u0631 \u0645\u0639\u0642\u0648\u0644\u0629.&quot;\u201d<\/p>\n<\/blockquote>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0645\u0648\u0627\u0637\u0646 \u0642\u0635\u0648\u0631 INESSS<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0639\u0644\u0649 \u0627\u0644\u0631\u063a\u0645 \u0645\u0646 \u0623\u0646 \u0627\u0644\u0642\u0631\u0627\u0631 \u0645\u062a\u0633\u0642 \u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0627\u064b\u060c \u0625\u0644\u0627 \u0623\u0646\u0647 \u064a\u0643\u0634\u0641 \u0639\u0646 \u0646\u0642\u0627\u0637 \u0639\u0645\u064a\u0627\u0621 \u0623\u062e\u0644\u0627\u0642\u064a\u0629 \u062e\u0637\u064a\u0631\u0629.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">1. \u0627\u0644\u0627\u0639\u062a\u0645\u0627\u062f \u0627\u0644\u0645\u0641\u0631\u0637 \u0639\u0644\u0649 \u0646\u0645\u0627\u0630\u062c \u0641\u0639\u0627\u0644\u064a\u0629 \u0627\u0644\u062a\u0643\u0644\u0641\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u062a\u064f\u0644\u062d\u0642 \u0627\u0644\u0623\u0637\u0631 \u0627\u0644\u0642\u0627\u0626\u0645\u0629 \u0639\u0644\u0649 \u0645\u0642\u064a\u0627\u0633 \u062c\u0648\u062f\u0629 \u0627\u0644\u062d\u064a\u0627\u0629 \u0627\u0644\u0645\u0639\u062f\u0644\u0629 (QALY) \u0636\u0631\u0631\u0627\u064b \u0645\u0646\u0647\u062c\u064a\u0627\u064b \u0628\u0645\u0627 \u064a\u0644\u064a:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0646\u0627\u062f\u0631\u0629<\/li>\n\n\n\n<li>\u0627\u0644\u0641\u0626\u0627\u062a \u0627\u0644\u0633\u0643\u0627\u0646\u064a\u0629 \u0644\u0644\u0623\u0637\u0641\u0627\u0644<\/li>\n\n\n\n<li>\u0627\u0644\u0639\u0644\u0627\u062c\u0627\u062a \u063a\u064a\u0631 \u0627\u0644\u0634\u0627\u0641\u064a\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u0641\u0634\u0644 \u0647\u0630\u0647 \u0627\u0644\u0646\u0645\u0627\u0630\u062c \u0641\u064a \u0631\u0635\u062f \u0645\u0627 \u064a\u0644\u064a:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u062a\u062e\u0641\u064a\u0641 \u0639\u0628\u0621 \u0645\u0642\u062f\u0645\u064a \u0627\u0644\u0631\u0639\u0627\u064a\u0629<\/li>\n\n\n\n<li>\u062a\u0639\u0648\u064a\u0636\u0627\u062a \u062a\u0643\u0627\u0644\u064a\u0641 \u0627\u0644\u0625\u0639\u0627\u0642\u0629 \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0623\u062c\u0644<\/li>\n\n\n\n<li>\u0627\u0644\u0641\u0631\u0648\u0642 \u0627\u0644\u062f\u0642\u064a\u0642\u0629 \u0641\u064a \u062c\u0648\u062f\u0629 \u0627\u0644\u062d\u064a\u0627\u0629 \u0644\u062f\u0649 \u0627\u0644\u0623\u0637\u0641\u0627\u0644<\/li>\n<\/ul>\n\n\n\n<h3 class=\"wp-block-heading\">2. \u062a\u062c\u0627\u0647\u0644 \u0627\u0644\u0645\u0643\u0627\u0633\u0628 \u0627\u0644\u062a\u062f\u0631\u064a\u062c\u064a\u0629 \u0641\u064a \u0645\u062c\u0627\u0644 \u0627\u0644\u0633\u0644\u0627\u0645\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u062d\u062a\u0649 \u0627\u0644\u062a\u062d\u0633\u064a\u0646\u0627\u062a \u0627\u0644\u0637\u0641\u064a\u0641\u0629 \u0641\u064a \u0627\u0644\u0633\u0644\u0627\u0645\u0629 \u0644\u0647\u0627 \u0623\u0647\u0645\u064a\u0629 \u0628\u0627\u0644\u063a\u0629 \u0641\u064a \u0645\u0631\u0636 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a:<\/strong><\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0627\u0646\u062e\u0641\u0627\u0636 \u0639\u062f\u062f \u0627\u0644\u0643\u0633\u0648\u0631 \u2190 \u0627\u0646\u062e\u0641\u0627\u0636 \u062d\u0627\u0644\u0627\u062a \u062f\u062e\u0648\u0644 \u0627\u0644\u0645\u0633\u062a\u0634\u0641\u0649<\/li>\n\n\n\n<li>\u0646\u0645\u0648 \u0623\u0641\u0636\u0644 \u2190 \u062a\u0623\u062b\u064a\u0631 \u062a\u0646\u0645\u0648\u064a \u0637\u0648\u064a\u0644 \u0627\u0644\u0623\u062c\u0644<\/li>\n\n\n\n<li>\u0627\u0644\u062d\u062f \u0645\u0646 \u0627\u0644\u0633\u0645\u064a\u0629 \u0627\u0644\u0633\u0644\u0648\u0643\u064a\u0629 \u2190 \u0627\u0633\u062a\u0642\u0631\u0627\u0631 \u0627\u0644\u0623\u0633\u0631\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0642\u0631\u0651 \u0627\u0644\u0645\u0639\u0647\u062f \u0627\u0644\u0648\u0637\u0646\u064a \u0644\u0644\u062a\u0645\u064a\u0632 \u0641\u064a \u0627\u0644\u0639\u0644\u0648\u0645 \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a\u0629 \u0648\u0627\u0644\u062f\u0631\u0627\u0633\u0627\u062a \u0627\u0644\u0627\u062c\u062a\u0645\u0627\u0639\u064a\u0629 (INESSS) \u0628\u0647\u0630\u0647 \u0627\u0644\u0623\u0645\u0648\u0631\u060c \u0644\u0643\u0646\u0647 \u064a\u062a\u062c\u0627\u0647\u0644\u0647\u0627 \u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0627\u064b.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">3. \u0627\u0644\u0635\u0631\u0627\u0639 \u0628\u064a\u0646 \u0627\u0644\u0625\u0646\u0635\u0627\u0641 \u0648\u0627\u0644\u0643\u0641\u0627\u0621\u0629<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u064a\u0646\u0635 \u0627\u0644\u0642\u0631\u0627\u0631 \u0636\u0645\u0646\u064a\u064b\u0627 \u0639\u0644\u0649 \u0645\u0627 \u064a\u0644\u064a:<\/p>\n\n\n\n<blockquote class=\"wp-block-quote is-layout-flow wp-block-quote-is-layout-flow\">\n<p class=\"wp-block-paragraph\">\u201c&quot;\u0647\u0630\u0627 \u0627\u0644\u062f\u0648\u0627\u0621 \u0641\u0639\u0627\u0644\u060c \u0644\u0643\u0646 \u0644\u064a\u0633 \u0628\u0627\u0644\u0642\u062f\u0631 \u0627\u0644\u0643\u0627\u0641\u064a \u0644\u062a\u0628\u0631\u064a\u0631 \u0633\u0639\u0631\u0647.&quot;\u201d<\/p>\n<\/blockquote>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0628\u0627\u0644\u0646\u0633\u0628\u0629 \u0644\u0644\u0623\u0637\u0641\u0627\u0644 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0645\u0631\u0636 \u0645\u0645\u064a\u062a\u060c \u0641\u0625\u0646 \u0647\u0630\u0627 \u0644\u064a\u0633 \u0628\u064a\u0627\u0646\u0627\u064b \u0645\u062d\u0627\u064a\u062f\u0627\u064b\u060c \u0628\u0644 \u0647\u0648 \u0625\u0646\u0643\u0627\u0631 \u0644\u0644\u0648\u0635\u0648\u0644 \u0627\u0644\u0639\u0627\u062f\u0644 \u0625\u0644\u0649 \u0627\u0644\u0627\u0628\u062a\u0643\u0627\u0631.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0633\u0627\u0646\u062b\u064a\u0631\u0627 \u062a\u0633\u062a\u062d\u0642 \u0627\u0644\u062a\u062f\u0642\u064a\u0642 \u0627\u0644\u0645\u062a\u0633\u0627\u0648\u064a<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0627 \u064a\u062c\u0628 \u0623\u0646 \u064a\u062a\u0648\u0642\u0641 \u0627\u0644\u0646\u0642\u062f \u0639\u0646\u062f \u0645\u0639\u0647\u062f INESSS.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u062a\u062a\u062d\u0645\u0644 \u0627\u0644\u0634\u0631\u0643\u0629 \u0627\u0644\u0645\u0635\u0646\u0639\u0629\u060c \u0633\u0627\u0646\u062b\u064a\u0631\u0627\u060c \u0645\u0633\u0624\u0648\u0644\u064a\u0629 \u0643\u0628\u064a\u0631\u0629.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0623\u0633\u0639\u0627\u0631 \u0623\u063a\u0627\u0645\u0631\u064a \u0639\u0644\u0649 \u0627\u0644\u0646\u062d\u0648 \u0627\u0644\u062a\u0627\u0644\u064a:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u064a\u0635\u0644 \u0627\u0644\u0645\u0628\u0644\u063a \u0625\u0644\u0649 $125,000 \u062c\u0646\u064a\u0647 \u0625\u0633\u062a\u0631\u0644\u064a\u0646\u064a \u0633\u0646\u0648\u064a\u064b\u0627 \u0644\u0643\u0644 \u0637\u0641\u0644<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">...\u0641\u064a \u0645\u0631\u0636 \u0645\u0635\u062d\u0648\u0628 \u0628\u0645\u0627 \u064a\u0644\u064a:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0644\u0627 \u064a\u0648\u062c\u062f \u0639\u0644\u0627\u062c<\/li>\n\n\n\n<li>\u0628\u062f\u0627\u0626\u0644 \u0645\u062d\u062f\u0648\u062f\u0629<\/li>\n\n\n\n<li>\u062d\u0627\u062c\u0629 \u0645\u0644\u062d\u0629 \u063a\u064a\u0631 \u0645\u0644\u0628\u0627\u0629<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">...\u064a\u062b\u064a\u0631 \u0645\u062e\u0627\u0648\u0641 \u0623\u062e\u0644\u0627\u0642\u064a\u0629 \u062c\u062f\u064a\u0629.<\/p>\n\n\n\n<h3 class=\"wp-block-heading\">\u0645\u0634\u0643\u0644\u0629 \u0627\u0644\u062a\u0633\u0639\u064a\u0631<\/h3>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0644\u0648\u0635\u0648\u0644 \u0625\u0644\u0649 \u0627\u0644\u0639\u062a\u0628\u0627\u062a \u0627\u0644\u0645\u0642\u0628\u0648\u0644\u0629\u060c \u062a\u064f\u0642\u062f\u0651\u0631 INESSS \u0645\u0627 \u064a\u0644\u064a:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u062a\u062e\u0641\u064a\u0636 \u0627\u0644\u0633\u0639\u0631 \u0627\u0644\u0645\u0637\u0644\u0648\u0628: <strong>85%\u201398%<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0630\u0627 \u0644\u064a\u0633 \u062e\u0637\u0623\u064b \u0647\u0627\u0645\u0634\u064a\u0627\u064b \u0641\u064a \u0627\u0644\u062a\u0633\u0639\u064a\u0631.<br><strong>\u0647\u0630\u0627 \u062a\u0636\u062e\u0645 \u0645\u0645\u0646\u0647\u062c \u0641\u064a \u0627\u0644\u0623\u0633\u0639\u0627\u0631.<\/strong><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0645\u0633\u0624\u0648\u0644\u064a\u0629 \u0639\u0627\u0644\u0645\u064a\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u064a\u064f\u0639\u062f\u0651 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0645\u0631\u0636\u0627\u064b \u0639\u0627\u0644\u0645\u064a\u0627\u064b.<br><\/strong>\u0625\u0646 \u0627\u0644\u062a\u0641\u0627\u0648\u062a\u0627\u062a \u0641\u064a \u0627\u0644\u0648\u0635\u0648\u0644 \u0644\u064a\u0633\u062a \u0627\u0642\u062a\u0635\u0627\u062f\u064a\u0629 \u0641\u062d\u0633\u0628\u060c \u0628\u0644 \u0647\u064a \u0623\u062e\u0644\u0627\u0642\u064a\u0629 \u0623\u064a\u0636\u0627\u064b.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0630\u0627 \u0644\u0645 \u062a\u062a\u063a\u064a\u0631 \u0627\u0644\u0623\u0633\u0639\u0627\u0631:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u0633\u062a\u062a\u0631\u062f\u062f \u0627\u0644\u062f\u0648\u0644 \u0630\u0627\u062a \u0627\u0644\u062f\u062e\u0644 \u0627\u0644\u0645\u0631\u062a\u0641\u0639<\/li>\n\n\n\n<li>\u0633\u064a\u062a\u0645 \u0627\u0633\u062a\u0628\u0639\u0627\u062f \u0627\u0644\u0628\u0644\u062f\u0627\u0646 \u0630\u0627\u062a \u0627\u0644\u062f\u062e\u0644 \u0627\u0644\u0645\u062a\u0648\u0633\u0637 \u0648\u0627\u0644\u0645\u0646\u062e\u0641\u0636 \u0628\u0627\u0644\u0643\u0627\u0645\u0644<\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0648\u0647\u0630\u0627 \u064a\u064f\u0646\u0634\u0626 \u0646\u0638\u0627\u0645\u064b\u0627 \u0630\u0627 \u0645\u0633\u062a\u0648\u064a\u064a\u0646:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>\u064a\u062d\u0635\u0644 \u0628\u0639\u0636 \u0627\u0644\u0623\u0637\u0641\u0627\u0644 \u0639\u0644\u0649 \u0639\u0644\u0627\u062c \u0623\u0643\u062b\u0631 \u0623\u0645\u0627\u0646\u064b\u0627<\/li>\n\n\n\n<li><strong>\u0628\u064a\u0646\u0645\u0627 \u064a\u0644\u062c\u0623 \u0622\u062e\u0631\u0648\u0646 \u0625\u0644\u0649 \u0623\u062f\u0648\u064a\u0629 \u0623\u0642\u062f\u0645 \u0648\u0623\u0643\u062b\u0631 \u0633\u0645\u064a\u0629.<\/strong><\/li>\n<\/ul>\n\n\n\n<p class=\"wp-block-paragraph\">\u0647\u0630\u0647 \u0627\u0644\u0646\u062a\u064a\u062c\u0629 \u0644\u0627 \u064a\u0645\u0643\u0646 \u0627\u0644\u062f\u0641\u0627\u0639 \u0639\u0646\u0647\u0627.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0645\u0627 \u0627\u0644\u0630\u064a \u064a\u062c\u0628 \u062a\u063a\u064a\u064a\u0631\u0647\u061f<\/h2>\n\n\n\n<h3 class=\"wp-block-heading\">\u0644\u0644\u0645\u0639\u0647\u062f \u0627\u0644\u0648\u0637\u0646\u064a \u0644\u0644\u0623\u0645\u0646 \u0648\u0627\u0644\u0633\u0644\u0627\u0645\u0629 \u0627\u0644\u0645\u0647\u0646\u064a\u0629 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class=\"wp-block-heading\">\u0644\u0633\u0627\u0646\u062b\u064a\u0631\u0627:<\/h3>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>\u062a\u0646\u0641\u064a\u0630 \u062a\u062e\u0641\u064a\u0636\u0627\u062a \u0643\u0628\u064a\u0631\u0629 \u0641\u064a \u0627\u0644\u0623\u0633\u0639\u0627\u0631 \u0627\u0644\u0639\u0627\u0644\u0645\u064a\u0629<\/strong><\/li>\n\n\n\n<li>\u0627\u0639\u062a\u0645\u0627\u062f \u0646\u0645\u0627\u0630\u062c \u0627\u0644\u062a\u0633\u0639\u064a\u0631 \u0627\u0644\u0645\u062a\u062f\u0631\u062c\u0629<\/li>\n\n\n\n<li><strong>\u064a\u062c\u0628 \u0623\u0646 \u062a\u062a\u0648\u0627\u0641\u0642 \u0627\u0644\u0623\u0633\u0639\u0627\u0631 \u0645\u0639 \u0627\u0644\u0642\u064a\u0645\u0629 \u0627\u0644\u062d\u0642\u064a\u0642\u064a\u0629 \u0641\u064a \u0627\u0644\u0639\u0627\u0644\u0645 \u0627\u0644\u0648\u0627\u0642\u0639\u064a\u060c \u0648\u0644\u064a\u0633 \u0645\u0639 \u0627\u0644\u062d\u062f \u0627\u0644\u0623\u0642\u0635\u0649 \u0627\u0644\u0646\u0638\u0631\u064a.<\/strong><\/li>\n<\/ul>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u0627\u0644\u0623\u0641\u0643\u0627\u0631 \u0627\u0644\u0646\u0647\u0627\u0626\u064a\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u0625\u0646 \u0631\u0641\u0636 INESSS \u0644\u0640 Agamree \u064a\u0624\u0643\u062f \u0648\u062c\u0648\u062f \u0635\u0631\u0627\u0639 \u0623\u0639\u0645\u0642 \u0628\u064a\u0646 \u0636\u0628\u0637 \u0627\u0644\u062a\u0643\u0627\u0644\u064a\u0641 \u0648\u0627\u062d\u062a\u064a\u0627\u062c\u0627\u062a \u0627\u0644\u0645\u0631\u0636\u0649.<\/strong> \u064a\u064f\u0642\u062f\u0651\u0645 \u0627\u0644\u0639\u0644\u0627\u062c Vamorolone \u0641\u0648\u0627\u0626\u062f \u0645\u0644\u0645\u0648\u0633\u0629\u060c \u062d\u062a\u0649 \u0648\u0625\u0646 \u0643\u0627\u0646\u062a \u0637\u0641\u064a\u0641\u0629. \u0628\u0627\u0644\u0646\u0633\u0628\u0629 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\u0627\u0644\u0642\u064a\u0645\u0629 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u062a\u0642\u0639 \u0639\u0644\u0649 \u0639\u0627\u062a\u0642 \u0634\u0631\u0643\u0629 \u0633\u0627\u0646\u062b\u064a\u0631\u0627 \u0645\u0633\u0624\u0648\u0644\u064a\u0629 \u062a\u062d\u0633\u064a\u0646 \u0627\u0644\u0642\u062f\u0631\u0629 \u0639\u0644\u0649 \u062a\u062d\u0645\u0644 \u0627\u0644\u062a\u0643\u0627\u0644\u064a\u0641 \u0639\u0644\u0649 \u0645\u0633\u062a\u0648\u0649 \u0627\u0644\u0639\u0627\u0644\u0645. \u0648\u0628\u062f\u0648\u0646 \u062a\u0639\u062f\u064a\u0644\u0627\u062a \u0641\u064a \u0627\u0644\u0623\u0633\u0639\u0627\u0631\u060c \u0633\u064a\u0638\u0644 \u0627\u0644\u0648\u0635\u0648\u0644 \u0625\u0644\u0649 \u0647\u0630\u0647 \u0627\u0644\u062e\u062f\u0645\u0627\u062a \u0645\u062d\u062f\u0648\u062f\u0627\u064b.<\/strong> \u064a\u062a\u0639\u064a\u0646 \u0639\u0644\u0649 \u0627\u0644\u062c\u0647\u0627\u062a \u0627\u0644\u062a\u0646\u0638\u064a\u0645\u064a\u0629 \u062a\u0643\u064a\u064a\u0641 \u0623\u0637\u0631\u0647\u0627 \u0627\u0644\u062e\u0627\u0635\u0629 \u0628\u0627\u0644\u0623\u0645\u0631\u0627\u0636 \u0627\u0644\u0646\u0627\u062f\u0631\u0629. \u0648\u0627\u0644\u062a\u0639\u0627\u0648\u0646 \u0636\u0631\u0648\u0631\u064a \u0644\u062a\u062d\u0642\u064a\u0642 \u0627\u0644\u062a\u0648\u0627\u0632\u0646 \u0628\u064a\u0646 \u0627\u0644\u062a\u0643\u0644\u0641\u0629 \u0648\u0627\u0644\u0631\u0639\u0627\u064a\u0629. \u0648\u0641\u064a \u0646\u0647\u0627\u064a\u0629 \u0627\u0644\u0645\u0637\u0627\u0641\u060c \u0644\u0627 \u064a\u0646\u0628\u063a\u064a \u0623\u0646 \u064a\u062a\u062d\u0645\u0644 \u0627\u0644\u0645\u0631\u0636\u0649 \u062a\u0643\u0644\u0641\u0629 \u0625\u062e\u0641\u0627\u0642\u0627\u062a \u0627\u0644\u0646\u0638\u0627\u0645.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\">\u062e\u0627\u062a\u0645\u0629<\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">\u0623\u062c\u0627\u0645\u0631\u064a \u0644\u064a\u0633 \u062f\u0648\u0627\u0621\u064b \u0645\u062b\u0627\u0644\u064a\u0627\u064b.<br><strong>\u0644\u0643\u0646\u0647\u0627 \u062e\u0637\u0648\u0629 \u0645\u0647\u0645\u0629 \u0644\u0644\u0623\u0645\u0627\u0645 \u0628\u0627\u0644\u0646\u0633\u0628\u0629 \u0644\u0644\u0623\u0637\u0641\u0627\u0644 \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0636\u0645\u0648\u0631 \u062f\u0648\u0634\u064a\u0646 \u0627\u0644\u0639\u0636\u0644\u064a.<\/strong><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0644\u0643\u0646 \u0631\u0641\u0636 \u0627\u0644\u0648\u0635\u0648\u0644 \u0628\u0634\u0643\u0644 \u0643\u0627\u0645\u0644 \u064a\u0646\u0642\u0644 \u0627\u0644\u0639\u0628\u0621 \u0625\u0644\u0649 \u0627\u0644\u0645\u0631\u0636\u0649 - \u0648\u0647\u0645 \u0627\u0644\u0623\u0634\u062e\u0627\u0635 \u0627\u0644\u0630\u064a\u0646 \u0645\u0646 \u0627\u0644\u0645\u0641\u062a\u0631\u0636 \u0623\u0646 \u064a\u062d\u0645\u064a\u0647\u0645 \u0627\u0644\u0646\u0638\u0627\u0645.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0625\u0644\u0649 \u0623\u0646 \u064a\u062a\u0645 \u062a\u0635\u062d\u064a\u062d \u0627\u0644\u0623\u0633\u0639\u0627\u0631 \u0648\u062a\u0637\u0648\u064a\u0631 \u0623\u0637\u0631 \u0627\u0644\u062a\u0642\u064a\u064a\u0645\u060c \u0633\u064a\u0633\u062a\u0645\u0631 \u0627\u0644\u0623\u0637\u0641\u0627\u0644 \u0627\u0644\u0645\u0635\u0627\u0628\u0648\u0646 \u0628\u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a \u0641\u064a \u062f\u0641\u0639 \u062b\u0645\u0646 \u0627\u0644\u0642\u0631\u0627\u0631\u0627\u062a \u0627\u0644\u062a\u064a \u0627\u062a\u062e\u0630\u062a \u0628\u0639\u064a\u062f\u0627\u064b \u0639\u0646 \u0648\u0627\u0642\u0639\u0647\u0645.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u0627\u0642\u0631\u0623 \u0627\u0644\u0645\u0632\u064a\u062f: <a href=\"https:\/\/dmdwarrior.com\/ar\/duchenne-muscular-dystrophy-treatment-cost\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u0627\u0644\u062d\u0642\u064a\u0642\u0629 \u0627\u0644\u0645\u064f\u0631\u0651\u0629: \u0644\u0645\u0627\u0630\u0627 \u062e\u0631\u062c\u062a \u062a\u0643\u0627\u0644\u064a\u0641 \u0639\u0644\u0627\u062c \u0636\u0645\u0648\u0631 \u062f\u0648\u0634\u064a\u0646 \u0627\u0644\u0639\u0636\u0644\u064a \u0639\u0646 \u0627\u0644\u0633\u064a\u0637\u0631\u0629\u061f<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>","protected":false},"excerpt":{"rendered":"<p>The recent decision by INESSS (Institut national d&#8217;excellence en sant\u00e9 et en services sociaux) in Canada to refuse reimbursement for Agamree (vamorolone) represents more than a bureaucratic outcome\u2014it exposes a systemic failure in balancing economic models with the urgent needs of children living with Duchenne muscular dystrophy (DMD). A Known Disease, A Known Need DMD [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":7766,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[282],"tags":[42,171,727,728,41,43],"class_list":["post-7765","post","type-post","status-publish","format-standard","has-post-thumbnail","category-editorials","tag-agamree","tag-canada","tag-inesss","tag-quebec","tag-santhera","tag-vamorolone"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/7765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/comments?post=7765"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/7765\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media\/7766"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media?parent=7765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/categories?post=7765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/tags?post=7765"}],"curies":[{"name":"\u0648\u0648\u0631\u062f\u0628\u0631\u064a\u0633","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}