{"id":6701,"date":"2026-03-09T18:17:40","date_gmt":"2026-03-09T15:17:40","guid":{"rendered":"https:\/\/dmdwarrior.com\/?p=6701"},"modified":"2026-03-09T18:34:31","modified_gmt":"2026-03-09T15:34:31","slug":"vamorolone-agamree-in-dmd-real-world-experience","status":"publish","type":"post","link":"https:\/\/dmdwarrior.com\/ar\/vamorolone-agamree-in-dmd-real-world-experience\/","title":{"rendered":"Vamorolone (\u0623\u062c\u0627\u0645\u0631\u064a) \u0641\u064a \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a \u0627\u0644\u062f\u0648\u0634\u064a\u0646\u064a: \u062a\u062c\u0631\u0628\u0629 \u0648\u0627\u0642\u0639\u064a\u0629"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u0623\u0639\u0644\u0646\u062a \u0634\u0631\u0643\u0629 \u0633\u0627\u0646\u062b\u064a\u0631\u0627 \u0644\u0644\u0623\u062f\u0648\u064a\u0629 \u0639\u0646 \u0639\u0631\u0636 \u0627\u0644\u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0643\u0627\u0645\u0644\u0629 \u0644\u062a\u062d\u0644\u064a\u0644\u0627\u062a \u0645\u0642\u0627\u0631\u0646\u0629 \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0623\u0645\u062f \u0641\u064a \u0627\u0644\u0648\u0627\u0642\u0639 \u0627\u0644\u0639\u0645\u0644\u064a\u060c \u0628\u0645\u0627 \u0641\u064a \u0630\u0644\u0643 \u0627\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0627\u0644\u0623\u0633\u0627\u0633\u064a\u0629 \u0645\u0646 \u062f\u0631\u0627\u0633\u0629 GUARDIAN \u0627\u0644\u062c\u0627\u0631\u064a\u0629 \u0644\u0639\u0642\u0627\u0631 AGAMREE (\u0641\u0627\u0645\u0648\u0631\u0648\u0644\u0648\u0646)\u060c \u0641\u064a \u0627\u0644\u0645\u0624\u062a\u0645\u0631 \u0627\u0644\u0633\u0631\u064a\u0631\u064a \u0648\u0627\u0644\u0639\u0644\u0645\u064a \u0644\u062c\u0645\u0639\u064a\u0629 \u0636\u0645\u0648\u0631 \u0627\u0644\u0639\u0636\u0644\u0627\u062a (MDA) \u0644\u0639\u0627\u0645 2026 \u0641\u064a \u0623\u0648\u0631\u0644\u0627\u0646\u062f\u0648\u060c \u0641\u0644\u0648\u0631\u064a\u062f\u0627. \u0644\u0644\u0645\u0632\u064a\u062f \u0645\u0646 \u0627\u0644\u0645\u0639\u0644\u0648\u0645\u0627\u062a: <a href=\"https:\/\/dmdwarrior.com\/ar\/what-is-agamree-vamorolone-what-is-agamree-used-for\/\" data-type=\"post\" data-id=\"2333\">\u0645\u0627 \u0647\u0648 \u0623\u062c\u0627\u0645\u0631\u064a (\u0641\u0627\u0645\u0648\u0631\u0648\u0644\u0648\u0646)\u061f<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u062a\u0636\u0645\u0646 \u0645\u062c\u0645\u0648\u0639\u0629 \u0627\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0628\u064a\u0627\u0646\u0627\u062a \u062a\u0635\u0644 \u0625\u0644\u0649 \u062b\u0645\u0627\u0646\u064a \u0633\u0646\u0648\u0627\u062a \u0645\u0646 \u0627\u0644\u062a\u0639\u0631\u0636 \u0644\u0639\u0642\u0627\u0631 \u0623\u063a\u0627\u0645\u0631\u064a (\u0645\u062a\u0648\u0633\u0637 \u062e\u0645\u0633 \u0633\u0646\u0648\u0627\u062a \u062a\u0642\u0631\u064a\u0628\u064b\u0627) \u0644\u062f\u0649 \u0627\u0644\u0623\u0648\u0644\u0627\u062f \u0627\u0644\u0645\u0635\u0627\u0628\u064a\u0646 \u0628\u0636\u0645\u0648\u0631 \u062f\u0648\u0634\u064a\u0646 \u0627\u0644\u0639\u0636\u0644\u064a. \u0648\u062a\u0634\u0645\u0644 \u0627\u0644\u062a\u062d\u0644\u064a\u0644\u0627\u062a \u0628\u064a\u0627\u0646\u0627\u062a \u0645\u0646 \u0627\u0644\u0645\u0634\u0627\u0631\u0643\u064a\u0646 \u0641\u064a \u0627\u0644\u062f\u0631\u0627\u0633\u0627\u062a \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0627\u0644\u0630\u064a\u0646 \u0627\u0633\u062a\u0645\u0631\u0648\u0627 \u0641\u064a \u0627\u0644\u0639\u0644\u0627\u062c \u0645\u0646 \u062e\u0644\u0627\u0644 \u0628\u0631\u0627\u0645\u062c \u0627\u0644\u0648\u0635\u0648\u0644 \u0627\u0644\u0645\u062e\u062a\u0644\u0641\u0629\u060c \u0628\u0627\u0644\u0625\u0636\u0627\u0641\u0629 \u0625\u0644\u0649 \u062f\u0631\u0627\u0633\u0629 \u0627\u0644\u0645\u0631\u062d\u0644\u0629 \u0627\u0644\u0631\u0627\u0628\u0639\u0629 GUARDIAN (NCT06713135). \u062a\u0645\u062a \u0645\u0642\u0627\u0631\u0646\u0629 \u0627\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0623\u062c\u0644\u060c \u0628\u0645\u0627 \u0641\u064a \u0630\u0644\u0643 \u0646\u062a\u0627\u0626\u062c \u062e\u0637 \u0627\u0644\u0623\u0633\u0627\u0633 \u0645\u0646 \u062f\u0631\u0627\u0633\u0629 GUARDIAN\u060c \u0645\u0639 \u0645\u062c\u0645\u0648\u0639\u0629 \u062a\u062d\u0643\u0645 \u062a\u0627\u0631\u064a\u062e\u064a\u0629 \u0645\u062a\u0637\u0627\u0628\u0642\u0629 \u0645\u0646 \u062d\u064a\u062b \u0627\u0644\u0645\u064a\u0644\u060c \u0648\u0627\u0644\u062a\u064a \u0639\u0648\u0644\u062c\u062a \u0628\u0639\u0642\u0627\u0631 \u062f\u064a\u0641\u0644\u0627\u0632\u0627\u0643\u0648\u0631\u062a \u0623\u0648 \u0628\u0631\u064a\u062f\u0646\u064a\u0632\u0648\u0646.<a href=\"https:\/\/clinicaltrials.gov\/study\/NCT06713135\" target=\"_blank\" rel=\"noreferrer noopener\">NCT06713135<\/a>)<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">\u062a\u064f\u0638\u0647\u0631 \u0627\u0644\u0628\u064a\u0627\u0646\u0627\u062a \u0645\u062c\u062a\u0645\u0639\u0629\u064b \u0623\u0646 \u0627\u0644\u0641\u0627\u0645\u0648\u0631\u0648\u0644\u0648\u0646 \u064a\u062d\u0627\u0641\u0638 \u0639\u0644\u0649 \u0641\u0639\u0627\u0644\u064a\u0629 \u0637\u0648\u064a\u0644\u0629 \u0627\u0644\u0623\u0645\u062f \u062a\u064f\u0636\u0627\u0647\u064a \u0641\u0639\u0627\u0644\u064a\u0629 \u0627\u0644\u0643\u0648\u0631\u062a\u064a\u0643\u0648\u0633\u062a\u064a\u0631\u0648\u064a\u062f\u0627\u062a \u0627\u0644\u062a\u0642\u0644\u064a\u062f\u064a\u0629\u060c \u0645\u0639 \u062a\u062d\u0633\u064a\u0646 \u062a\u062d\u0645\u0644\u0647 \u0648\u062a\u0642\u0644\u064a\u0644 \u0627\u0644\u0622\u062b\u0627\u0631 \u0627\u0644\u062c\u0627\u0646\u0628\u064a\u0629 \u0627\u0644\u0631\u0626\u064a\u0633\u064a\u0629 \u0627\u0644\u0645\u0631\u062a\u0628\u0637\u0629 \u0628\u0627\u0644\u0643\u0648\u0631\u062a\u064a\u0643\u0648\u0633\u062a\u064a\u0631\u0648\u064a\u062f\u0627\u062a \u0628\u0634\u0643\u0644\u064d \u0645\u0644\u062d\u0648\u0638\u060c \u0648\u0627\u0644\u062a\u064a \u063a\u0627\u0644\u0628\u064b\u0627 \u0645\u0627 \u062a\u0624\u062f\u064a \u0625\u0644\u0649 \u062a\u0642\u0644\u064a\u0644 \u0627\u0644\u062c\u0631\u0639\u0629 \u0623\u0648 \u0627\u0644\u062a\u0648\u0642\u0641 \u0639\u0646 \u0627\u0644\u0639\u0644\u0627\u062c\u060c \u0645\u0645\u0627 \u064a\u0624\u062b\u0631 \u0639\u0644\u0649 \u0646\u062a\u0627\u0626\u062c \u0627\u0644\u0645\u0631\u0636\u0649 \u0639\u0644\u0649 \u0627\u0644\u0645\u062f\u0649 \u0627\u0644\u0637\u0648\u064a\u0644. \u0627\u0642\u0631\u0623 \u0627\u0644\u0645\u0632\u064a\u062f: <a href=\"https:\/\/dmdwarrior.com\/ar\/pros-and-cons-of-steroids-for-duchenne-muscular-dystrophy\/\" target=\"_blank\" data-type=\"post\" data-id=\"6244\" rel=\"noreferrer noopener\">\u0645\u0627 \u0647\u064a \u0625\u064a\u062c\u0627\u0628\u064a\u0627\u062a \u0648\u0633\u0644\u0628\u064a\u0627\u062a \u0627\u0633\u062a\u062e\u062f\u0627\u0645 \u0627\u0644\u0633\u062a\u064a\u0631\u0648\u064a\u062f\u0627\u062a (\u0627\u0644\u0643\u0648\u0631\u062a\u064a\u0632\u0648\u0646) \u0644\u0639\u0644\u0627\u062c \u062f\u0648\u0634\u064a\u0646\u061f<\/a><\/p>\n\n\n\n<p class=\"wp-block-paragraph\"><strong>\u062a\u0627\u0628\u0639 \u0647\u0630\u0647 \u0627\u0644\u0635\u0641\u062d\u0629<\/strong>&nbsp;&gt;&gt;&gt;&nbsp;<a href=\"https:\/\/dmdwarrior.com\/ar\/dmd-therapies\/\" target=\"_blank\" rel=\"noreferrer noopener\">\u062c\u0645\u064a\u0639 \u0627\u0644\u062a\u062c\u0627\u0631\u0628 \u0627\u0644\u0633\u0631\u064a\u0631\u064a\u0629 \u0644\u0645\u0631\u0636 \u062f\u0648\u0634\u064a\u0646<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>Santhera Pharmaceuticals announced that full results from long-term real-world comparative analyses, including baseline data from the ongoing GUARDIAN study of AGAMREE (vamorolone), were presented at the Muscular Dystrophy Association (MDA) Clinical &amp; Scientific Conference 2026 in Orlando, Florida. Learn More: What is Agamree (Vamorolone)? The dataset includes up to eight years of AGAMREE exposure (median [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":6703,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[281],"tags":[42,41,43],"class_list":["post-6701","post","type-post","status-publish","format-standard","has-post-thumbnail","category-press-releases","tag-agamree","tag-santhera","tag-vamorolone"],"_links":{"self":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/6701","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/comments?post=6701"}],"version-history":[{"count":0,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/posts\/6701\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media\/6703"}],"wp:attachment":[{"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/media?parent=6701"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/categories?post=6701"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dmdwarrior.com\/ar\/wp-json\/wp\/v2\/tags?post=6701"}],"curies":[{"name":"\u0648\u0648\u0631\u062f\u0628\u0631\u064a\u0633","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}